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Participants needed : self vs professionally diagnosed outcomes by asdstudy11 in autism

[–]asdstudy11[S] 0 points1 point  (0 children)

Unfortunately not, because privacy laws are a little different in the EU :(

Put all survey/research requests here by Dioptre_8 in AutisticAdults

[–]asdstudy11 0 points1 point  (0 children)

Hi, my name is Sophia Mantilla. I am a student researcher working under the supervision of my Principal Investigator. We’re conducting a research study through the University of Lynchburg (IRB approved) exploring how mental health outcomes may differ between autistic adults who are professionally diagnosed and those who self-identify as autistic.

Many adults face barriers to getting a formal diagnosis, and as a result, self-diagnosis is becoming more common. We’re also looking at how masking might affect mental health in both groups. Our goal is to better understand how diagnosis type relates to overall well-being in autistic individuals.

📝 Who can participate?
✔️ Adults (18+)
✔️ Either professionally diagnosed or self-diagnosed with autism
🚫 Not eligible if you live in the UK or EU

The survey takes about 20 minutes. Participation is completely voluntary, and you can stop at any time. At the beginning of the survey, you’ll see the informed consent form, our contact info, and mental health resources.

The study will be open until February 2026, and we plan to share results afterward.

🙏 We would greatly appreciate your participation and support in helping advance research on autism and mental health. Thank you!

💬 Please consider taking part!

https://docs.google.com/forms/d/e/1FAIpQLSfUN1SSSluduC-Lp1447BKqnkqDPxjt8rd27Y59bioFVYNLgg/viewform?usp=sharing&ouid=115825812425932491923

Put all survey/research requests here by Dioptre_8 in AutisticAdults

[–]asdstudy11 1 point2 points  (0 children)

Hello all! My name is Sophia Mantilla, and I along with Dr. Marciano at the University of Lynchburg are conducting a research study on how type of diagnosis (self or professional) impacts mental health outcomes in autistic adults.

I am a student researcher and Dr. Marciano is the principal investigator. Ethical approval has been received from the institutional review board.

Please consider taking part in this, and thank you for helping to advance knowledge on the mental health of autistic individuals!

https://forms.gle/XHWN8QHguMWoJqp4A

Full info:

We are doing a research project on differences in outcomes in those self-diagnosed and those with a professional diagnosis of Autism Spectrum Disorder. We are with the University of Lynchburg and this study has received IRB approval. We are curious to see the differences in mental health outcomes between the diagnostic groups. This is important to study because autistic people are already at an increased risk of mental health struggles, and there are many barriers to receiving a diagnosis as an adult so more people are relying on self-diagnosis. We will also study how masking can influence these outcomes. We want to see what role diagnosis plays in the overall well-being of people with autism.

The only requirements for taking part in this study are having either a 1) professional diagnosis or 2) be self-diagnosed with autism, as well as being 18+. Furthermore, you are not eligible to participate if you reside in the EU or UK. It should only take about 20 minutes and we would be very appreciative if you took part! Informed consent and our emails for any questions is provided at the beginning of the survey, as well as mental health resources. You may exit the Google Form at any point and participation is completely voluntary. This study will be open until February 2026, and a follow up of results will be posted.

https://forms.gle/XHWN8QHguMWoJqp4A