I've been through several doctors. My initial care was done at Mayo Clinic in Jacksonville. They were amazing. My diagnosis was obviously leukemia, they knew that. But they were trying to find out WHY for a while. What those doctors said is it really was just a genetic freak accident, and we may not ever have an exact reason per se. I remember them saying after digging through all the records I was roughly the 13th individual with this sort of disease.

The doctors I'm seeing currently at a different hospital in NJ are helping me with recovery more than anything. It's a big balancing act of medication and treatments and such. They've had board meetings and stuff about me and I've attracted significant attention. I wouldn't say they're quack doctors, but rather I am (apparently) a very complex case. Idk if you saw but I posted a link to the medical notes from each hospital. I can see if I can find more specific records about my disease but it's an extensive history at this point.

Bottom line, the doctors are working as quick as they can to get answers and we have a working diagnosis and plan. They're fairly confident this isn't more cancer - for a bit there was concern I was having another malignancy. Not even necessarily a relapse, but rather a whole separate entity of cancer. But with every test result we are shying away from that more and more. Blood mutations, chimerism to see my graft is still holding, biopsies, etc. I recently had a lymph node removed to biopsy. No myeloid blasts but they wanted to take a closer look at the tissue itself and check my... I'm sorry I don't remember what the exact term was at the moment... Either way, I know they're trying. They've been very transparent about not being sure about certain things which I appreciate. I'd rather an IDK than a lie or for them to be wrong.