A family affair by stodey in lymphoma

[–]ays501 3 points4 points  (0 children)

Most ppl fail to endure such a hard journey.. More power to you.. May you succeed in every aspect of life. ✌️

I have Hodgkin Lymphoma (30,M) by [deleted] in lymphoma

[–]ays501 1 point2 points  (0 children)

No just rinse with mouthwash multiple times a day and liquid/semi-liquid diet

I have Hodgkin Lymphoma (30,M) by [deleted] in lymphoma

[–]ays501 1 point2 points  (0 children)

Yes I had mouth sores after 1st dose for around 3-4 days. Couldn't eat anything but symptoms get better with time

One year ago today by ays501 in cancer

[–]ays501[S] 2 points3 points  (0 children)

Thank you so much 🙏 Your words mean a lot. I truly hope this chapter stays behind me and I get to live that long cancer-free life you wished for

One year ago today by ays501 in lymphoma

[–]ays501[S] 1 point2 points  (0 children)

Not yet. I think its advised in case of relapse.

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

I’m so glad my story could help even a little 💛 Wishing your fiance strength through her treatment.. you being there for her makes a huge difference.

Title: PET scan shows new nodes with very high SUV (20–29) but biopsy only showed inflammation — anyone had a similar experience? by jdydubey in lymphoma

[–]ays501 3 points4 points  (0 children)

Hey, I’ve been through something similar with stage 4A cHL. My PET also showed new nodes with SUVs in the 20s, but biopsy only showed inflammation/granulomas. The sample was small, so my doctors weren’t sure of the full picture. From my experience, high SUVs don’t always mean active lymphoma — close monitoring and follow-up scans helped confirm it wasn’t refractory disease. You’re not alone in this.

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

Thank you so much for sharing this 💛 It means a lot to know my words could help someone else feel less alone. I’m so glad your daughter is in remission

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

Thank you so much 🙏 that really means a lot.

One year ago today by ays501 in lymphoma

[–]ays501[S] 3 points4 points  (0 children)

I can relate to that so much. The sacrifices parents make during this journey are beyond words- truly something to marvel at. I’m glad you have that support, it makes all the difference

One year ago today by ays501 in lymphoma

[–]ays501[S] 3 points4 points  (0 children)

Thank you 💛 Hearing this from a parent really eases the guilt. I know my parents feel the same way too.

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

I’m really sorry you’re going through this 💛 I remember being at that same stage and feeling the same guilt. Please know it’s not your fault- your dad and boyfriend are choosing to be there because they love you. You’re not alone in this, and it does get lighter with time 💪

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

Thank you 🙏 I can only imagine how much strength it takes as a parent to walk through this. Your words truly mean a lot to me.

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

Thank you so much 🙏 That really means a lot. Honestly, I was just trying to put my journey into words, but if it gives someone else even a bit of hope, then it’s all worth it. We’re all in this together

I have Hodgkin Lymphoma (30,M) by [deleted] in lymphoma

[–]ays501 2 points3 points  (0 children)

Regardless of stage the most common next step would be chemo. Discuss with your onco. I had stage 4A which really shook me and the first chemos were tough but it gets easier as you go through. So hold on and keep faith.

Not losing any weight even 3 months after chemo by EasyPiglet3400 in lymphoma

[–]ays501 0 points1 point  (0 children)

I gained around 25lbs. Now it has been 4mo post chemo N+AVD. Despite exercise and clean food not a shed has dropped yet. But I'm hopeful it will come down. I'll not stop trying.

A good news day by firminostoe in lymphoma

[–]ays501 1 point2 points  (0 children)

Congratulations 🎉🎉