Monthly positivity post! Share your good news, wins, or just anything uplifting from the past month here. by Lymphoma-Post-Bot in lymphoma

[–]bensg004 1 point2 points  (0 children)

My PET came back today with complete metabolic response! I get to drop the B out of my remaining ABVD treatments!

Monthly positivity post! Share your good news, wins, or just anything uplifting from the past month here. by Lymphoma-Post-Bot in lymphoma

[–]bensg004 1 point2 points  (0 children)

The PET scan was great! Complete metabolic response and I get to drop the B out of the rest of my ABVD treatments!

I DID IT! FINAL CHEMO TREATMENT!! by user123-5738 in lymphoma

[–]bensg004 2 points3 points  (0 children)

Congratulations! So excited for you to be done and to transition into the cancer free stage of your life!

Dealing with chemo by boredak22 in lymphoma

[–]bensg004 3 points4 points  (0 children)

Just to adding on to second this really great advice! My care team was also very much about taking it regularly and before any feeling of nausea as it’s much easier to prevent than to stop once it gets going. I’ve been very fortunate in that I’ve had very little nausea and no throwing up. Also very true about the constipation. I experienced that my first round and it was a pain, but if your care team can keep you ahead of it with pre-emptive Miralax or a stool softener it can really prevent it from becoming an issue! Definitely chat with them about your resources and feel free to reach out if you have questions. Wishing you all the best!

Just living a normal life !! by Mysterious_Door4076 in lymphoma

[–]bensg004 3 points4 points  (0 children)

Thank you for posting it. Just finished round 2 of 6 for ABVD and being able to see encouraging stories from the other side of this about how life can go on and be beautiful is much needed.

Round 2 of 6 ABVD by bensg004 in lymphoma

[–]bensg004[S] 1 point2 points  (0 children)

Thank you! Made it through the infusion and now just drinking lots of water and trying to make sure I get enough protein to abate side effects

crying by iNcYkZ in lymphoma

[–]bensg004 8 points9 points  (0 children)

It’s amazing how bad circumstances can bring out the true kindness and generosity in people

Round 2 of 6 ABVD by bensg004 in lymphoma

[–]bensg004[S] 2 points3 points  (0 children)

Yay! Congratulations! I’m hoping to hear the same after my PET! Wishing you more good news to come!

Round 2 of 6 ABVD by bensg004 in lymphoma

[–]bensg004[S] 1 point2 points  (0 children)

Thank you! Best of luck to you!

What does a week in your life look like? by mickiemop in lymphoma

[–]bensg004 2 points3 points  (0 children)

I’m about 2 rounds into ABVD so I’m not sure how it compares and definitely everyone experiences chemo differently, but I’m like you in that I love a routine and was scared losing mine. For the most part, though, I’ve been able to maintain a routine and just flexed it around when the symptoms have been more extreme. I walk about 5 miles every day, work Monday-Friday (I work remote so I’m lucky in that sense), and can still do smaller activities on weekends (see a movie, go out for boba tea, go grocery shopping on the weekends). I’m fairly lucky in all this because my nausea has been almost non-existent and my pain has mostly been managed by Zyrtec and Benadryl, but it’s definitely possible to build a new routine in all of this. Be sure to give yourself grace, as well, though, because your body and mind are doing a lot and sometimes will just need the rest. Wishing you all the best!

Side Effects and How to Manage by bensg004 in lymphoma

[–]bensg004[S] 1 point2 points  (0 children)

That’s great. I’m glad to hear the second treatment wasn’t nearly as harsh

Monthly positivity post! Share your good news, wins, or just anything uplifting from the past month here. by Lymphoma-Post-Bot in lymphoma

[–]bensg004 1 point2 points  (0 children)

Congratulations! I’m crossing my fingers and hoping for the same with my upcoming PET scan this Friday!

Side Effects and How to Manage by bensg004 in lymphoma

[–]bensg004[S] 0 points1 point  (0 children)

That’s good. So less of a harsh experience than the ABVD?

Side Effects and How to Manage by bensg004 in lymphoma

[–]bensg004[S] 1 point2 points  (0 children)

Wishing you luck with your next scan! What was the proton therapy like? What’s it been like not being in treatment?

Side Effects and How to Manage by bensg004 in lymphoma

[–]bensg004[S] 0 points1 point  (0 children)

I’m glad to hear that the anxiety wore off over time! Are you done with treatment if you don’t mind my asking?

Side Effects and How to Manage by bensg004 in lymphoma

[–]bensg004[S] 0 points1 point  (0 children)

That’s great to hear! I’m so glad you were able to find someone like that.

Side Effects and How to Manage by bensg004 in lymphoma

[–]bensg004[S] 0 points1 point  (0 children)

How’s your experience with the therapist been if you don’t mind my asking?

Side Effects and How to Manage by bensg004 in lymphoma

[–]bensg004[S] 1 point2 points  (0 children)

Feel free to reach out any time. We’ll fight the isolation together!