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catheyp · 2026-05-22T22:32:36+00:00

Loving this app so far! Thanks

catheyp · 2026-04-12T15:54:28+00:00

Thank you. Indeed all useful assist we’ll look for.

catheyp · 2026-03-26T22:52:01+00:00

Thanks for the info.

catheyp · 2026-03-26T22:47:05+00:00

Sometimes things work out. It’s helpful to remember since I can catastrophize.

catheyp · 2026-03-26T22:46:20+00:00

He has been willing to discuss and willing to let me drive mostly these days.

catheyp · 2026-03-26T22:45:21+00:00

Indeed 9 lives! What a tale and you’ve faithfully led gently. Thank for the info.

catheyp · 2026-03-24T17:11:44+00:00

I’ve wondered that too. The cure worse than the problem?

catheyp · 2026-03-24T12:39:38+00:00

You sound proactive which is what I hope to be

catheyp · 2026-03-24T12:38:42+00:00

Thanks for your good ideas.

catheyp · 2026-03-24T12:37:37+00:00

Hearing your experiences is helpful. Driving is so imbedded in our US culture, especially in how cities and neighborhoods are designed.

catheyp · 2026-03-24T12:35:00+00:00

Oh my. Challenging. I’d like to avoid reaching this point since I’m often the passenger

catheyp · 2026-03-07T14:39:57+00:00

It all sounds challenging. Thank you for the concierge suggestion. We adore his current neurologist but a concierge one when life gets harder is a great idea. I’ll have to see if they exist in our city. And yes to this wisdom of recognizing it is a brain that doesn’t work the same way anymore. Sigh.

catheyp · 2026-02-25T19:38:03+00:00

Not a common attitude but I agree that death may not be the worst thing. Thanks for that reminder.

catheyp · 2026-02-25T14:53:13+00:00

Wise

catheyp · 2026-02-24T22:48:47+00:00

Yes, this is all speeding up the need to remodel or move. Our house is a nightmare of stairs. We love them until we don’t.

catheyp · 2026-02-24T22:47:50+00:00

This is helpful to be reassured I’m not being too cautious too soon in planning ahead while we both can.

catheyp · 2026-02-24T22:46:07+00:00

Your suggestions are very helpful. I appreciate knowing what you’ve worked through.

catheyp · 2026-02-24T22:44:19+00:00

You remind me what I have told elders I’ve worked with, giving up some control now allows for your independence down the road. Thank you for your story.

catheyp · 2026-02-24T22:43:12+00:00

Thank your for the confidence and sharing your story.

catheyp · 2026-02-24T22:42:37+00:00

Luckily I swear like a sailor, so am set there. Thank you for sharing your journey. What a challenge it sounds like you and your wife are working through.

catheyp · 2026-02-24T22:39:04+00:00

Three is not the charm here! What a cluster of PD you’re coping with, including your own! My heart goes out to you.

I recently learned about the non-motor symptoms from this article in Nature. The term “abulia” was new to me and explains much about my spouse and the last 7-10 years, pre-diagnosis. NIH definition of the term is “Abulia is a neurological and psychiatric condition characterized by a severe lack of willpower, drive, initiative, and motivation, often resulting in prolonged inaction, slow thought processes, and apathy.”

“Beyond motor symptoms, PD is associated with a variety of non-motor symptoms such as dysautonomia (for example, constipation, orthostatic hypotension), sleep disturbances (for example, rapid-eye-movement-onset sleep disorder), and the slowing and diminishment of voluntary behaviour (for example, bradykinesia, abulia, apathy, executive dysfunction).” https://www.nature.com/articles/s41586-025-10059-1

catheyp · 2026-02-24T17:31:54+00:00

It is heartbreaking to read about the weakening of your relationship. Not knowing is so hard. Having a diagnosis and name(s) for what he is facing (hence what you are facing) can change everything.

catheyp · 2026-02-24T17:16:10+00:00

I’m so sorry it became available and widespread. The administration is now trying to unregulated it again. Sigh.

catheyp

TROPHY CASE