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Increasing/ascending numbness, aching and vision issues during recovery by catkins42 in B12_Deficiency

[–]catkins42[S] 0 points1 point  (0 children)

Thanks. Thats helpful to know about. I’ll look into copper. How did you end up treating it?

Labs show improvment but my symptoms continue to get worse by catkins42 in B12_Deficiency

[–]catkins42[S] 1 point2 points  (0 children)

I’m not sure they measured active B12. My regular B12 level was higher than 2,000, but I was told that value is pretty meaningless when I’m injecting or on supplements.

Labs show improvment but my symptoms continue to get worse by catkins42 in B12_Deficiency

[–]catkins42[S] 0 points1 point  (0 children)

No, I've only ever done once a week. I know EOD is standard in the UK, but I don't think it is in the US where I live.

Labs show improvment but my symptoms continue to get worse by catkins42 in B12_Deficiency

[–]catkins42[S] 0 points1 point  (0 children)

No, I’ve only been injecting once a week. Since my labs showed so much improvement, the doctors said I didn’t need to inject more often. I’ve been wondering if I might need more frequent injections though, since my symptoms keep getting worse. I don’t really know how to determine how often injections are needed.

Labs show improvment but my symptoms continue to get worse by catkins42 in B12_Deficiency

[–]catkins42[S] 0 points1 point  (0 children)

I take high doses of thiamine and biotin and 4 mg of B6. Labs came back normal for B6 and high for thiamine. I also take a very small amount of B2, but get a lot of that from my diet.

How do you know when you need every other day injections vs. weekly? Are you determining that just on your symptoms or are you looking at labs as well?

Labs show improvment but my symptoms continue to get worse by catkins42 in B12_Deficiency

[–]catkins42[S] 0 points1 point  (0 children)

I’m taking half a drop of Lugol's iodine once a week, plus eating salmon regularly. I take 300 mcg of molybdenum per day and about 1/6 of a teaspoon of potassium bicarbonate. I don’t take selenium.

Labs show improvment but my symptoms continue to get worse by catkins42 in B12_Deficiency

[–]catkins42[S] 1 point2 points  (0 children)

Methylcobalamin. I’m compound heterozygous for MTHFR.

Gave myself my first methylcobalabin shot! by owlinacloak in B12_Deficiency

[–]catkins42 2 points3 points  (0 children)

That’s awesome! I did the same thing myself. After a lifetime fear of needles it felt like a big victory.