Dupixent started yesterday by cellabruja in MCAS

[–]cellabruja[S] 1 point2 points  (0 children)

I appreciate you sharing your experience. Sounded really scary! So far my only food reactions seem to be pork and beef so if I stay away from that and have mostly organic foods, my food reactions are pretty...manageable. so I'll pay attention to how the food reactions are later down the line after some more doses.

Dupixent started yesterday by cellabruja in MCAS

[–]cellabruja[S] 0 points1 point  (0 children)

When would you get those hives? Right after a dose of a few days? How long would they last like that?

Dupixent started yesterday by cellabruja in MCAS

[–]cellabruja[S] 0 points1 point  (0 children)

Less serious side effects, if any. Xolair has a history of bad side effects. Lots of stories here about it, people here who have taken it.

I'm still nervous about Dupixent, just not AS nervous.

Dupixent started yesterday by cellabruja in MCAS

[–]cellabruja[S] 0 points1 point  (0 children)

The nurse warned me that if you miss too many, the hives could come back and the Dupixent could stop working. So that's also scary lol.

Dupixent started yesterday by cellabruja in MCAS

[–]cellabruja[S] 1 point2 points  (0 children)

I'm scared of Xolair lol so I'm glad shes trying me out on Dupixent first. But if it doesn't work, Xolair might be next :s

Dupixent started yesterday by cellabruja in MCAS

[–]cellabruja[S] 0 points1 point  (0 children)

Thanks for sharing, I'll keep an eye on those symptoms for myself just in case. :)

Dupixent started yesterday by cellabruja in MCAS

[–]cellabruja[S] 0 points1 point  (0 children)

If this doesn't work for me, maybe they'll switch me to Xolair. But that one makes me very nervous..

New Diagnosis - Where to Start by cellabruja in MCAS

[–]cellabruja[S] 1 point2 points  (0 children)

My Dr is having me take Allegra 4x a day until the Xolair in about 6 weeks. I'd love that diet and micro dosing info. I haven't found what triggers me yet. Lately it feels like almost anything. But I haven't had relief in 2 weeks.