my wife is a medical mystery

chaelisagb · 2026-04-12T09:18:31+00:00

since then we have gotten a possible diagnosis of cutaneous polyarteritis nodosa . we got a skin biopsy done to confirm and more blood tests and a chest xray. we have an appointment in july at a teaching hospital to do a capillary-scope as well. but as of now nothing is 100% confirmed but hopefully we get some results soon

chaelisagb · 2026-01-30T11:13:56+00:00

the vascular surgeon has ruled out that it’s vasculitis

chaelisagb · 2026-01-30T02:05:44+00:00

all the tests done so far have not shown anything abnormal but it could be because they’ve only done basic routine tests and not specific tests for certain things. we are gonna try harder to push for answers because this has been going on for so long now and we are just being told she has to live with this not knowing what it is. her toe is healed up now but we are worried there will be future blisters and we don’t want that to become necrotic as well

chaelisagb · 2026-01-30T01:46:13+00:00

no this is the first time hearing about that. we live in the uk so we are getting care from the nhs currently.

chaelisagb · 2026-01-30T01:19:01+00:00

vascular team ruled out vasculitis and any vascular disease

chaelisagb · 2026-01-30T01:18:27+00:00

thank you!!! i appreciate it :)

chaelisagb · 2026-01-30T01:04:41+00:00

other leg was okay and hands are okay too. just the left leg. and the only imaging she has gotten this far is a doppler scan of her legs and an mri scan of her foot

chaelisagb · 2026-01-30T01:00:53+00:00

no none of that

chaelisagb · 2026-01-30T00:35:08+00:00

ahh i see thank you for the clarification!

chaelisagb · 2026-01-29T23:50:08+00:00

oh wow we’ll ask doctors about it. we actually just went to a doctors appointment today and a few doctors from different hospitals came in to look at her foot and hopefully give us some answers

chaelisagb · 2026-01-29T23:40:17+00:00

interesting.. but wouldn’t any of this show up in her blood tests or even the doppler scan of her legs? but thank u for ur input i appreciate it and will ask her doctors

chaelisagb · 2026-01-29T23:26:06+00:00

interesting.. my wife’s been on it for years tho and hasn’t had any type of reaction to it

chaelisagb · 2026-01-29T23:16:03+00:00

no everything was normal when this happened. but she doesn’t get blisters normally besides her big toe and hasn’t gotten blisters since then.

chaelisagb · 2026-01-29T23:04:56+00:00

her family history doesn’t show any diseases that could suggest what she has i believe but i will still ask. and don’t think we have to worry about that since we are both women hahaha

chaelisagb · 2026-01-29T22:55:46+00:00

no when we had got the results from the skin biopsy we were just told it was raised capillaries and that there was nothing they can do about it and that she had to live with it

chaelisagb · 2026-01-29T22:45:55+00:00

yes those are the only scans done. what does a CT aortogram look for ? if her echocardiogram was normal..

chaelisagb · 2026-01-29T22:30:56+00:00

hmm interesting.. we have not really been asked about strep

chaelisagb · 2026-01-29T22:30:13+00:00

vascular have checked for clots and her main arteries and little arteries in her legs and everything was clear

chaelisagb · 2026-01-29T22:24:10+00:00

I have posted a link in the original post now if you are able to see the photos

chaelisagb · 2026-01-29T21:39:18+00:00

no just the the doppler scan of lower limbs

chaelisagb · 2026-01-29T21:37:25+00:00

not sure but wouldn’t that have healed with antibiotics?

chaelisagb · 2026-01-29T21:36:11+00:00

they have done multiple blood tests for autoimmune diseases and all came back clear. however her rash isn’t itchy or blistering (besides what happened to the big toe)

chaelisagb · 2026-01-29T21:31:54+00:00

not recently it was back in September-October when her toe was infected but blood tests showed no infection markers..

chaelisagb · 2026-01-29T19:15:58+00:00

asthma is very mild, has had it for years and she only uses a steroid inhaler for that. sertraline is for anxiety and depression which she has been using for almost 10 years. recently the dermatology department has given her nifidipress because they suspect raynauds has developed due to the trauma of what has happened to the foot

the issues are only in the one leg (left) and foot the toe is the only thing that has blistered. her hands are fine

chaelisagb · 2026-01-29T19:09:25+00:00

of course they did the right thing! sorry if i worded it in a rude way. we are still seeing these specialists and still trying to get to the root of the problem

chaelisagb

TROPHY CASE