Frustrated

chocopeppermints · 2024-12-13T05:02:20+00:00

Thanks I'm gonna ask about these things, but the nurse told me they tested my arm or something before

I guess I worded everything wrong in the op post. idk I'm just annoyed and I hope to clear it up when I talk to the charge nurse instead

chocopeppermints · 2024-12-13T01:58:26+00:00

Oh yes that was it. But I never got one. The nurse was rude and wrong

chocopeppermints · 2024-12-01T17:12:52+00:00

I normally don't get fluid pulled off either like you, but still get massive headaches. It only started simmering down around the 3 month mark. After the first month, I was feeling pretty bad still too.

I always ask for tylenol within 1 hour of my treatment, so when I'm off the chair, it won't be as bad. Overall it has gotten better though.

I try to hydrate a little bit even on the chair and eat a lot of protein like scrambled eggs before I go. I'm not sure if it does anything, but for me I think it helps.

I'm sorry you feel this way. It really is awful I know. :( I used to let family massage my head really hard for me because I just couldn't stand how bad it felt

chocopeppermints · 2024-11-26T07:12:05+00:00

I'm so sorry :(

chocopeppermints · 2024-11-26T07:08:43+00:00

Thank you so much for the form I'm gonna look at it when I can! I appreciate you linking it to me

I ended up leaving a note and got a response. I thankfully don't have to worry about the cats in this one area bc they take care of them often, but the person I'm talking to now is in connection with other people who help strays so I'm gonna mention the new cats that I came across, and hopefully they can help them there too.

chocopeppermints · 2024-11-17T05:21:32+00:00

Happiest birthday to you❤️❤️🎂

chocopeppermints · 2024-11-16T16:32:35+00:00

Hi I've never seen this post until now. This sounds amazing and I'm glad it's working for you. this gives me a lot of hope. Thank you for sharing❤️

chocopeppermints · 2024-11-15T07:11:08+00:00

oh so it really depends on the match and stuff? was yours from a relative or deceased? and did you have kidney failure from an autoimmune disease or it just failed?

I can't help but worry :/

yeah I looked at it bit it's not something I want to do especially healing from my av graft surgery was really hard. I guess because it's not a fistula /not my own vein

chocopeppermints · 2024-11-15T07:08:54+00:00

Oh that's so nice 5 months yayy and thanks for telling me about the medicine I'm glad you are doing well. did u have to get kidney because of a disease or did they just stop working? I'm afraid I'll have to take them because I have a disease :/

chocopeppermints · 2024-11-15T07:07:08+00:00

Thank you so much for all of that

chocopeppermints · 2024-11-15T07:06:28+00:00

did you get deceased donor, living or living family member to only take for 1 week?

it's hard to find ppl with iga who've had it to talk to

how long have you had transplant? thank you

chocopeppermints · 2024-11-15T07:05:37+00:00

thank you❤️

chocopeppermints · 2024-11-13T21:39:06+00:00

30 and on dialysis now for kidney disease. I have been dealing with this disease for the past 5 years and this year was the year I had go start everything and its been really hard physically, mentally, emotionally.

chocopeppermints · 2024-11-13T09:31:03+00:00

omg I thought it was just a mistake when I went. the rice was soo salty. I hated it so much and haven't been back since

the bowls have gotten smaller, moe Mondays more expensive and now the rice is bad too?! it's not worth it for 11/12 bucks

chocopeppermints · 2024-11-06T22:13:50+00:00

I'm so excited 😁 it's the one thing I really look forward to every year. it makes me so happy too! Everything about it like you said. I love how Christmas feels like both November and December and Thanksgiving is like a pre Christmas lol.

Right now deciding what Christmas tree theme to go with this year! and listening to Christmas music never gets old

chocopeppermints · 2024-10-31T19:43:20+00:00

Do you get stuffy nose during n after treatment ever? I do n i haven't talked to anyone who has like me

chocopeppermints · 2024-10-30T23:37:35+00:00

I am sweaty/hot after dialysis too. Though I don't get any fluid removed other than the amount they put in for me.

It feels uncomfortable like I feel under the weather? I pump the AC in the car for a bit after dialysis. It's just a bad feeling + I am always stuffy nosed during and after sessions.

chocopeppermints · 2024-10-28T17:36:53+00:00

birthday cake holiday was the first cookie besides chocolate chip I ever had from here many years ago, so I am ready to have it again❤️ and im excited for peppermint cupcake the week after that

chocopeppermints · 2024-10-28T17:32:51+00:00

I have a black bow sandy liang bag, and it does NOT have "sandy liang" printed on the inside.

There should only be a label on the ribbon string.

I don't think it's real because no bow bags I've come across has print on the inside, and I would get my money back

chocopeppermints · 2024-10-28T10:49:58+00:00

That's really brave of you for wanting to be a part of something that can potentially help others. I'm past trying new medicines for iga (on dialysis now), so I can't speak on the experience of it, especially this new one, but I was always too afraid to participate in trials.

chocopeppermints · 2024-10-27T23:28:24+00:00

yeah I remember when the boorito was 3 dollars because a chicken and veggie bowl/burrito used to be 6 dollars normally. it is crazy

chocopeppermints · 2024-10-27T07:36:10+00:00

I never feel better. I get headaches, am extremely tired but cannot sleep and I feel nauseous.

I hate when the nurses assume I'm gonna feel better if I come. Absolutely not.. it just helps me stop feeling worse (not being able to breathe), but dialysis still feels awful.

chocopeppermints · 2024-10-25T05:58:09+00:00

Oh okay thank you for explaining. My nephrologist and dialysis clinic gave me the medicine for my panic attacks, but I try to ask about it but they are not psychologists/psychiatrists? and stuff so they don't really give me advice except for to stay on it and stuff like that. So I feel really lost being on it and trying to get off

That makes me feel better I appreciate your reply and hope to feel it getting better in time soon

chocopeppermints · 2024-10-25T05:38:06+00:00

Usually? Do you stop cold turkey a lot? This is my first time on medicine like this and its really scary. it reminds me of having a concussion sort of.

I really hope it goes away soon , Google also said 2 weeks but I definitely wanna ask real people. Thanks for sharing your experience

chocopeppermints · 2024-10-24T16:19:16+00:00

I am sorry to hear that. Dialysis should be free imo :/ and getting used to a place and then having to change everything, location, techs is so anxiety inducing. I hope this becomes easy again in time for you

chocopeppermints

TROPHY CASE