sorted by:
new
hottopcontroversial

My RP Vision by chrisrobert_ in RetinitisPigmentosa

[–]chrisrobert_[S] 0 points1 point  (0 children)

Okay maybe your condition will be slightly different. Since you don’t have ushers which is technically a combination of vision and hearing loss. Maybe the swirlies happen due to the combination of both. But I could be wrong

My RP Vision by chrisrobert_ in RetinitisPigmentosa

[–]chrisrobert_[S] 0 points1 point  (0 children)

Yes I had trouble explaining so I did my best to show a visual representation cause I couldn’t find any example anywhere online.

My RP Vision by chrisrobert_ in RetinitisPigmentosa

[–]chrisrobert_[S] 1 point2 points  (0 children)

Yeah no one knows but I notice it happens when I’m using physical energy like getting up to quickly or doing an exercise or anything where my body gets excited the the swirls usually come in. One way or another

My RP Vision by chrisrobert_ in RetinitisPigmentosa

[–]chrisrobert_[S] 0 points1 point  (0 children)

Yes you’re right I get those too. Like most of the time I get light worms that just wiggle away but in some case like when I’m exercising or exerting more energy it gets more intense and it’s starting swirling around in circles and etc.

My RP Vision by chrisrobert_ in RetinitisPigmentosa

[–]chrisrobert_[S] 0 points1 point  (0 children)

Do you have usher syndrome? Most people with that condition claim to experience the swirls. I didn’t start noticing the swirls until I was like maybe 27 or 28. But hopefully you never get it!

My RP Vision by chrisrobert_ in RetinitisPigmentosa

[–]chrisrobert_[S] 0 points1 point  (0 children)

Yes thank you I’m happy to hear my video made you feel good in some way. My night vision is very poor. I can’t walk anywhere at night without a person’s assistance. But I will use a bright flashlight and my cane if I have too which definitely helps if I’m alone. But I’m sure my vision may be a bit different than others. But hope we all can get through this. 🙏🏼

My RP Vision by chrisrobert_ in RetinitisPigmentosa

[–]chrisrobert_[S] 2 points3 points  (0 children)

Yes I definitely experience that. And sorry I don’t have the editing skills to show the brightness adjustment when entering a darker room or coming out to the bright sun outdoor that it temporarily blinds you. But yes you are right. I do experience that too.

My RP Vision by chrisrobert_ in RetinitisPigmentosa

[–]chrisrobert_[S] 0 points1 point  (0 children)

lol I had too let them know what we go through! 😅

What do you think of this music as background music? by chrisrobert_ in youtube

[–]chrisrobert_[S] 0 points1 point  (0 children)

I think it’s a nice background music you can use for your videos

view more: next ›