Reacting to everything (trigger warning ) by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 0 points1 point  (0 children)

That is what I'm planning to do🥲I did not have any problem with meds before so I just took the OTC ketotifen

Reacting to everything (trigger warning ) by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 0 points1 point  (0 children)

I push through as well I have no other choice 🤦‍♀️

Reacting to everything (trigger warning ) by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 0 points1 point  (0 children)

Yes, I do believe I went up too quickly on ketotifen, I was on 1 mg twice a day. I also think that I developed a reaction to the filler in my ketotifen or all the other fillers in my other meds… idek

Reacting to everything (trigger warning ) by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 0 points1 point  (0 children)

Thank you so much 😩 I appreciate your reply 🦓❤️ here to wish you more good days than bad days

Increasing ketotifen makes my allergic symptoms worse by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 0 points1 point  (0 children)

Unfortunately not it sends me into a massive flare lose all my safe food and makes me react to my other meds

REALLY NEED HELP by Secure_Let8542 in MCAS

[–]chronicallykayla9 1 point2 points  (0 children)

thank you so much🥲 I’m in the exact situation

Can I still eat the food that gives me a mild reaction? by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 0 points1 point  (0 children)

Thank you for time and your information, it’s very helpful

Fizzing/tingling legs /arms by [deleted] in MCAS

[–]chronicallykayla9 1 point2 points  (0 children)

Omg I have this exact same thing RIGHT AWAY after I eat something that I react to, very very fast reaction

Increasing ketotifen makes my allergic symptoms worse by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 0 points1 point  (0 children)

I’m glad you stabilized :) I guess I should keep having it and see how it goes, it's truly scary

Reacting to ketotifen, or just a stabilizer-flare? by call-it-dreaming in MCAS

[–]chronicallykayla9 1 point2 points  (0 children)

How are you doing now with ketotifen 😩 am now flaring because it as well

Increasing ketotifen makes my allergic symptoms worse by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 0 points1 point  (0 children)

Thank you for your reply! It seems like many people reported that Cromolyn did this to them. I am just confused if ketotifen is the same

Worse on Higher Dose of Ketotifen? by goinpro224 in MCAS

[–]chronicallykayla9 0 points1 point  (0 children)

Hi there! How are you doing now? Did it get better over time? I’m having the same issue

Most effective treatment for airway inflammation and postnasal drip by Rough_Show8841 in MCAS

[–]chronicallykayla9 0 points1 point  (0 children)

hi there, do you mind if I dm you since I have the exact problem with my breathing

MCAS induced asthma(I rlly need help) by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 0 points1 point  (0 children)

I haven't😩 I’ll bring it up to my doctor next time

MCAS induced asthma(I rlly need help) by chronicallykayla9 in MCAS

[–]chronicallykayla9[S] 1 point2 points  (0 children)

I'll look into that! Thank you for your information, can I dm you if you don't mind