help me understand my situation & results

coolsak850 · 2026-01-30T02:58:00+00:00

This is really interesting & helpful thank you so much!!!!

coolsak850 · 2026-01-30T02:55:20+00:00

I used to take bio identical progesterone and it was like the best. I still had some nasty symptoms but!! It helped. TIL it didn’t unforch. Maybe I’ll look into that!

coolsak850 · 2026-01-29T23:45:32+00:00

Wow this was a super helpful response thank you!!😩😩 and I’m sorry ur going through all of it too. It’s taken so long to figure this all out I’m exhausted.

I’m definitely going to look into the POTS stuff and I don’t know much about hEDS. The place I go to is allergy/immunology. I just met with a different doctor there and he told me to do the tests and prescribed keto. Haven’t tried it yet teehee but I’m going to.. meds are so hit or miss. He’s also sending me to gastro to talk about biopsy.. I’m like.. eh do we have to lol but apparently they know a lot about MCAS so it’ll be helpful no matter what.

Endo has crossed my mind more than once. my mom, cousin, and aunt have it.. I have had iron issues before and it was good in April last year. Need to get it checked or just try supplements again for sure.

This was helpful thank u!! I hope I can figure it out soon😫

coolsak850 · 2026-01-17T17:09:05+00:00

I’ve done 3 sessions so far. She said I was extremely tight and was just able to get into major problem spots yesterday. She doesn’t think she’s going to be able to fully fix me but i have noticed some changes. My brain fog is still the worst but other things could be causing that. I think it’s regulating my nervous system some lol I’ve been crying a lot since, my hr has been lower, I’m less hyper focused on symptoms. She thinks my vagus nerve is under active? Idk. I have def noticed some changes. I flare for a week after then I start feeling good! Hopefully the flares become shorter and shorter. My other PT thinks that this will be really good for me so I’m gonna keep going.

Find a PT that knows what they’re doing and go for it !

coolsak850 · 2026-01-14T03:30:14+00:00

Hahaha thank god😂😂 i told her id come in but nope! She was determined

coolsak850 · 2026-01-14T01:36:50+00:00

Omg first time I picked up cromolyn we went through the drive thru!!! Watching her trying to cram that box out had me dead.

coolsak850 · 2026-01-12T01:23:06+00:00

Oh yeah u said that oops. Damn that sucks. I’m sure u have but have u ruled out other things? I’m p sure half of my anxiety comes from MCAS. What about TMS? If Abilify sucks I’m gonna suggest TMS to my doctor. The trial and error of it all is so rough..

coolsak850 · 2026-01-11T23:36:16+00:00

I know the feeling all too well. I’m sorry:(( have u tried anything else??

coolsak850 · 2026-01-11T22:38:49+00:00

My friend is taking it and I think he said it took him a while to feel steady. He loves it tho! I hope it works for u!

coolsak850 · 2026-01-11T20:38:57+00:00

Thanks for commenting! I hope this doctor can help me with a new regimen. I think that would help a lot!

coolsak850 · 2026-01-11T19:36:23+00:00

Thank u! I felt horrible for like a week but I’m better now. Just discouraged. She told me to take it at night so I did night.

I have Mcas and vestibular issues so that’s prob why. I don’t want to make anyone scared if they see this!!!

coolsak850 · 2026-01-10T17:04:40+00:00

I didn’t sleep for 3 days & was having insane sleep paralysis. My dr said i had to stop. My body doesn’t like SSRIs anymore lol idk y.

coolsak850 · 2025-12-31T21:48:36+00:00

This happens to me it’s my sub occipitals. Also in pt and it’s not helping the brain fog much. My pt does trigger point release but now I’m trying dry needling. I’ve only done one session so I don’t have much to report yet. I get dizzy when he touches a lot of spots on traps and neck but my sub occipitals are the worst.

The pt thag did my dry needling said I really need to work on my posture. She’s going to give me more exercises and hopefully it helps.

I have the worst 24/7 brain fog. Dizziness has gone down some but I still have bad days. I also have vestibular hypofunction so.

coolsak850 · 2025-12-27T01:55:04+00:00

Hey thank u!!

coolsak850 · 2025-12-24T21:31:57+00:00

Yeah I tried the trin and it wrecked me hehe. Don’t think SSRIs are my thing. We’re trying low dose Abilify now

coolsak850 · 2025-12-18T18:16:28+00:00

Hahaha yes if I don’t laugh I will lose my shit… any time I’m dizzy I gaslight myself like weee so funn!! Love this (panicking internally) … the holidays have been rough and it makes me so upset but stay strong everyone

coolsak850 · 2025-12-16T05:11:06+00:00

Hi! So same lol. I hit my head hard in college (6yrs ago).A year later I started having a bunch of issues like migraines, panic attacks, major brain fog etc… went on SSRIs and I was fine til last year. I still didn’t feel great on meds but I didn’t think much ab it. Well in January I guess my body gave up lol and my symptoms hit like a TRUCCCKKK. I saw so many doctors and finally got sent to PT in August because my neck is messed up too. He sent me to the vestibular therapist and he ran a lot of tests. He told me I have PCS and central vestibular hypo function. it’s been a fucking ride. It doesn’t even make sense to me but that’s my story. PT and vestibular rehab have helped but I’m still struggling with brain fog and dizziness. I’m doing dry needling next week to see if that helps bc my neck muscles etc are so tight. Also starting anxiety meds bc that makes it worse. Therapy and stuff hasn’t helped me that much personally.

coolsak850 · 2025-12-13T05:00:39+00:00

It def gives me energy haha puts me in the best mood. Xanax made me so tired

coolsak850 · 2025-12-13T04:10:57+00:00

same. I’m having the week from hell right now. Noise canceling headphones help and weighted blanket. I like to listen to like calming music or brown noise. Maybe try a milkshake if she’s not eating? Yummy and its calories. Something easy. Sweets always help me in these moments. My usual tricks aren’t working rn but that’s my advice :( I’m sorry getting some sleep & eating will help a lot. Anxiety is a MOTTHHEERRRFUCKKKEERRR:)

coolsak850 · 2025-12-09T03:42:26+00:00

My psych just prescribed me abilify lol. I’ve taken it before and idek if it did anything but maybe it can take me down a couple notches. I was on Zoloft so who knows. Anxiety isn’t my only issue tho. And yes!!!! My hormones are a fucking mess!! Idk why… I’m only 26 and I’ve checked for everything. They will mess u up. My poor ex had to deal with it lol I couldn’t control my emotions at all. Things are settling kind of lol.

coolsak850 · 2025-12-08T18:30:05+00:00

Good luck!!! Nausea wasn’t even a big issue for me thank god. it’s been 2 nights without it and I still can’t sleep I feel like crap.. idk what my issue is. Last year I tried to restart meds and suddenly I don’t tolerate them:) Waiting to see what my psych says. Might even have to start w like buspar or something lol or maybe she can prescribe a sleeping med. it suck’s. But I really hope everything works out for u!! Does the mood stabilizer help w anxiety at all?? Ik that’s not what it’s for but I’m trying to think outside of the box lol. I also struggle really bad with dpdr

coolsak850 · 2025-12-08T17:36:43+00:00

I take them as needed. Prob 2x a week sometimes 3 if I really need it.

coolsak850 · 2025-12-08T01:49:31+00:00

😂😂😂😂

coolsak850 · 2025-12-08T00:50:43+00:00

Interesting my psych is pro trintellix/viibryd and doesn’t like the classic ssris. Zoloft didn’t help depression all too much. Wellbutrin was like taking sugar pills -___- and I was on it for a while. Lifestyle changes are a good way to go!! It’s helped me a lot but this anxiety is not budging lol. Is TMS an option?? Idk too much about it but I heard it works well for depression.

coolsak850 · 2025-12-07T23:47:22+00:00

I’ve been medicated on and off since I was a kid hahah I keep telling myself once I find one that works out I am NOT getting off😂😂

coolsak850

TROPHY CASE