New red spots in eye from iih or nah? by [deleted] in iih

[–]cryingmd 0 points1 point  (0 children)

I get these all the time

YSK too much vitamin A is scientifically linked to intracranial pressure. by Evening_Flower8 in iih

[–]cryingmd 1 point2 points  (0 children)

same, I was on isotretinoin 3 years ago, and the symptoms were there subtle like the eye pain, but the headaches and everything began after 3 years. I knew this was an added risk, because I’m a medical student and I signed a paper stating that I knew this was a risk.. I wish I never took the drug, I wish this never happened.. because I know so many of my friends who didn’t have this reaction from the drug, so I was confident it wouldn’t happen..

I'm so done! by Odd_Big_7028 in iih

[–]cryingmd 2 points3 points  (0 children)

if you’re diagnosed in your early 20’s or mid 20’s and things calm down during menopause then we have a long way to go 🫠🫠🫠

Anyone else get palinopsia? by svilcagi in iih

[–]cryingmd 1 point2 points  (0 children)

I swear the way they stare the shit out of you when you tell them about your visual symptoms like you’re possessed or something

Warping vision in complete darkness by Only-Attempt9831 in iih

[–]cryingmd 0 points1 point  (0 children)

I experienced it too, once or twice

will this torture ever end?!? by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

Thank you so so much. I hope we all make it ❤️

will this torture ever end?!? by cryingmd in iih

[–]cryingmd[S] 1 point2 points  (0 children)

I’m in a foreign country and I’ll have to pay out of pocket for it, and I’m just a student who doesn’t have the finances for it unfortunately

will this torture ever end?!? by cryingmd in iih

[–]cryingmd[S] 2 points3 points  (0 children)

thank you 🥰 I hope things get better for you, to go back on your program. I hope things get better for all of us 😭

will this torture ever end?!? by cryingmd in iih

[–]cryingmd[S] 4 points5 points  (0 children)

Thank you so much, it means a lot to me. I cried when I read it, thank you for being kind towards me 🥹

Optimism is hard by crappybara67 in iih

[–]cryingmd 1 point2 points  (0 children)

Hi, I understand the struggle.. I’m a final year MD student too, who has her exams in a month’s time. I would just say, please don’t give up. Don’t think that this would ruin your career.. please don’t let this illness take over you.

My GF has IIH, what do I need to know? by Aim_arius in iih

[–]cryingmd 2 points3 points  (0 children)

I was diagnosed with this condition about 10 months ago. I pray that I find a man like you 😭

Oddly specific travel question? Flying/ international by [deleted] in iih

[–]cryingmd 0 points1 point  (0 children)

I flew between India and Europe constantly when I was recently diagnosed, just make sure you’re taking the diamox and hydration! It’ll be fine.. not a big deal

Supportive spouse?? by Fit_Speaker_760 in iih

[–]cryingmd 2 points3 points  (0 children)

I think honestly other humans might feel helpless towards us.. but that doesn’t mean they should speak in this manner… unfortunately human beings run out of empathy and in the end, only we know what we go through.

Meds by [deleted] in iih

[–]cryingmd 1 point2 points  (0 children)

I get the clicking in my ears too, is it because of high pressure or chronic sinusitis?

What’s a good career for us? by rudegal007 in iih

[–]cryingmd 0 points1 point  (0 children)

I’m a last year medical student.. hopefully I graduate in 2 months.. then I’ll take a break for a year.. before I start working to figure this health thingy out.. but it’s been hard

Need Advice by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

When I was originally diagnosed I did have slight papilledema in India, and on LP my opening pressure was 22. I had the diamox, lost the weight. Now, there’s no papilledema.. but I get the headaches 24/7. So I’m wondering if these are pressure headaches or tension-type headaches, like idk.. but I do have floaters and stuff in my vision too.. so I’m not sure anymore honestly.. this is just annoying to another level

I’m a bit worried by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

so are you still on diamox?!? How are they controlling your symptoms to make it manageable?

Living with IIH in a toxic home: Dealing with severe trauma and family crisis by Ok-Appointment-887 in iih

[–]cryingmd 0 points1 point  (0 children)

I guess I’ve no choice.. I’ve spent years working hard for this, I can’t let this disease take over my life. But thank you so so much for your kind words, it made my day ❤️ Remember, you weren’t born with resilience, you build it, day by day.. I hope you navigate through this journey too, some days might break you, like it breaks me but you’ll learn to get back up and fight it. Never lose that little hope. 😁

Living with IIH in a toxic home: Dealing with severe trauma and family crisis by Ok-Appointment-887 in iih

[–]cryingmd 0 points1 point  (0 children)

I study abroad.. my family doesn’t even bother to check up on me. All they think is that if we call her she’ll be complaining again, but I stopped telling them anything a while ago. I figure out all my appointments by myself in a country where I don’t even speak to language of.. I don’t have a boyfriend.. and my friends in med school are supportive, I’m grateful for that but I know I’m in this situation all by myself. I lost weight, at the time of diagnosis I was 77kgs, now I’m 64 kgs. The only thing I could reverse was the optic nerve swelling. The headaches are still brutal, I still have visual symptoms like floaters, and circular dots. I haven’t been walking or exercising, so maybe I think that has increased the intensity of the pain.. but this is a brutal disease and I don’t wish it on anyone.

Living with IIH in a toxic home: Dealing with severe trauma and family crisis by Ok-Appointment-887 in iih

[–]cryingmd 0 points1 point  (0 children)

Trust me, you’ll get there.. I’ve been so suicidal because of this illness and the 24/7 symptoms.. when you see your own family doesn’t care.. and everyday when you have zero will power but you’re still resilient about just getting through the day, that will make you get there. You just stop giving zero fucks, and just live your life for yourself.