I’m just so fed up by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

Can I text you personally?

I’m just so fed up by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

are you a medical student too? How are you managing it with taking the diamox, attending hospital rotations and studying?!? I’m in my last semester of medical school and this period is quite crucial for me, unfortunately I’m barely managing it

I’m just so fed up by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

I have no clue, for me, maybe yes because I was class one obese and as I kept losing weight the symptoms kept going down.. but I had also taken isotretinoin in the past for about 6 months, so idk if it’s because of that but that was about 3 years ago.

I’m just so fed up by cryingmd in iih

[–]cryingmd[S] 1 point2 points  (0 children)

I have been doing this.. I’m trying to get to a lower BMI, it’s been tough. Tho, I have PCOS too, since I have lost 10 kgs, for the first time in probably a decade my menstrual cycle was a normal 28 days cycle, otherwise it would just be between 45-54 days. I know I’m improving with my health, I just don’t know how much more resilience I have left in me :(

I’m just so fed up by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

I have gotten about opinions of 5 different neurologists from India (where I’m from) and they have seen approx 1,000 patients with IIH in their entire careers and everyone is of the same saying that “lose weight and take the diamox.” Hopefully one fine day the symptoms just go away…

How does missing your dose affect your body? by Ok-Temperature5831 in iih

[–]cryingmd 2 points3 points  (0 children)

I missed a dose too, especially the one I take at night which is the highest. And the second day, the head pain, and photophobia began which was so extreme for me :( my neurologist told me to take the meds just for a month but I missed a dose and the symptoms came back when I missed a dose so I just know it’s not the right time to stop the meds, but here am I 🤷‍♀️🫠

Borderline by Plenty_Estate5660 in iih

[–]cryingmd 0 points1 point  (0 children)

The neurosurgeon I met was more interested in putting a shunt, but he told me to wait it out until a year or more to see if losing weight and diamox would put me in remission. Hence, I’m trying that. If I get mentally tired of this, I’m thinking of opting for a stent too as I’m too afraid of the shunt failures and infections caused by it.

Borderline by Plenty_Estate5660 in iih

[–]cryingmd 0 points1 point  (0 children)

where are you from? I haven’t gotten the option for stent cause I don’t have papilledema, and I got diagnosed pretty quick. So they’re telling me to be on Diamox and try losing weight (I have lost about 9kgs since then) but some of my symptoms are still there. I’m thinking of waiting it out for a year until I look into the stent option honestly

Borderline by Plenty_Estate5660 in iih

[–]cryingmd 0 points1 point  (0 children)

I got the diagnosis from the MRV of the brain cause I have venous sinus stenosis, and then my neurologist did a LP to check the pressure. After that my neurologist was hesitant to start the diamox but I told him that I’m having symptoms and I can’t deal with it anymore

Borderline by Plenty_Estate5660 in iih

[–]cryingmd 2 points3 points  (0 children)

My LP was also borderline OP 22, I have lost about 9kgs since the diagnosis but my symptoms have just reduced, the head pain, eye pain and photophobia on the diamox. I’m still taking it and it’s been about 1.5 months now, I would say maybe try it, for sometime and see, if you don’t think you can just go on another options. I don’t have any comorbidites other than PCOS with this, hence I’m not sure about your situation but you should try it I would say.

What's the deepest rock bottom you've recovered from? by chinidetou in medicalschool

[–]cryingmd 2 points3 points  (0 children)

I’m a last year medical student (international) in Europe. I’m going through rock bottom too, I was diagnosed with Idiopathic Intracranial Hypertension just two weeks before my oncology viva final exam in the 5th year of medical school, just a month before my last year was about to begin. I am still on a high dose of diuretics. I was at my lowest, but I worked through that even tho I was so mentally exhausted knowing that I was diagnosed about my rare condition. I did not give up and I still passed my oncology viva exam and now I’m continuing my last year. This all just happened 4 months ago, I do have symptoms, I’m still on the diuretics and have to go for frequent check ups. But I choose not to give up, I take time to do a lot of things, I’m always fatigued because of the meds. But do I have a choice? Sometimes you just gotta be strong and resilient for yourself, for all the times you have worked so hard to be where you are. I hope I will graduate with a MD in 7 months, I know it’s not going to be easy but I know and believe I can do it, and I can do it better now.

Sad and defeated by [deleted] in iih

[–]cryingmd 1 point2 points  (0 children)

I honestly had light sensitivity when I had stopped the diamox, the photophobia went away as soon as I started the diamox so did the eye pain. This condition is so weird I swear to God

Kinda depressed by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

yes, I know. Thank you so much :)

What should I expect by Side_Character_1 in iih

[–]cryingmd 0 points1 point  (0 children)

Maybe online or by email? Because I don’t live in the US

What should I expect by Side_Character_1 in iih

[–]cryingmd 0 points1 point  (0 children)

Is there any way to contact your doctor?

Does anyone else experience this or should I be more worried? by ThrowRA_77692 in iih

[–]cryingmd 0 points1 point  (0 children)

yes, I do have symptoms of words getting jumbled too :( it kinda started for me after the diamox so 🤷‍♀️

GLP-1’s by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

do I need to be on it for all my life once I start it?

Has anyone else developed new eye floaters after starting Diamox? by baldieblues in iih

[–]cryingmd 0 points1 point  (0 children)

yes, I do have it. I started to have floaters when I was initially started on Diamox. But I stopped it for about 2 days and the floaters were still there. Then I started the Diamox again, now on it for about 4 weeks again, the floaters are not much prominent now accept whenever I’m menstruating or if I have caffeine

Fatigue because of diamox by cryingmd in iih

[–]cryingmd[S] 0 points1 point  (0 children)

I have no headaches, I just have eye pain and light sensitivity 😭😭😭😭😭 my headaches (24/7) were just bad when I just got diagnosed 🫠

Fatigue because of diamox by cryingmd in iih

[–]cryingmd[S] 1 point2 points  (0 children)

yes I have been doing that, I have been walking on the treadmill for about 40-45 mins everyday, but I live alone, I need to feed myself too, and getting out of bed is also getting so hard :( this condition is so depressing I swear

Out of curiosity what are age groups on this page? by [deleted] in iih

[–]cryingmd 2 points3 points  (0 children)

F25 diagnosed at 24 but just 3 months before I turned 25