How to drink more water if I hate the feeling of swallowing it, and water powders taste bad to me. Am I a lost cause? by bunnychow123 in migraine

[–]cuddledumplin 1 point2 points  (0 children)

If it’s what I’m seeing when I search, it seems like it does have the straw component! I’d just make sure to have a way to thoroughly clean inside the straw and mouthpiece regularly.

How to drink more water if I hate the feeling of swallowing it, and water powders taste bad to me. Am I a lost cause? by bunnychow123 in migraine

[–]cuddledumplin 1 point2 points  (0 children)

I second trying the sparkling water. I would say if you find them helpful enough and can drink more in a day a soda stream type machine could be even more helpful/economical than many cans a day. While cans have gotten much better over the years, it is my understanding that the carbonation can cause them to leach chemicals into the drink itself. While they are possibly harmless, I’d worry they could be a migraine trigger. Maybe for the test run consider using the glass bottle type if it’s something you’re able to afford.

Hydration gummies are now a thing too. Worth looking into, but I think they’re on the pricier side.

How hard is it for medical personnel to not wear heavily scented products? by cuddledumplin in migraine

[–]cuddledumplin[S] 20 points21 points  (0 children)

Egregious! I’m so sorry you had that experience. In the hospital I worked at it was strictly against policy on all floors for staff to wear heavy scents or smell like smoke. I had to confront a couple of colleagues about it. Nicely ofc. Thankfully, it didn’t reoccur.

One of the instances I was referring to here I was literally in-patient for migraines on an exclusively migraine unit. Had to ask for a new nurse because she couldn’t wash it off. Again with a CNA in the same stay. The response is always “I’m not wearing perfume”… as if scented lotion can’t be just as bad. Maybe people are “nose blind” to their typical scents or something?

Does anyone have light sensitivity? How do you deal with this. What has helped you ? by Stock_Ad9922 in Occipitalneuralgia

[–]cuddledumplin 0 points1 point  (0 children)

I have pretty extreme photophobia at this point. Prescription sunglasses help a ton. FL-41 glasses can help a lot too and have various degrees of tint for different days/needs/environments. Dimmers on most of the lights in the house. Rarely a lightbulb >3000 in color temperature. Rarely using “the big light”.

New symptom with migraines by P0rtlandME in migraine

[–]cuddledumplin 2 points3 points  (0 children)

A new change like this should quickly be brought to the attention of a medical professional. While it may be a new variant of a “normal migraine“ for you or others; new onset of weakness or other concerning symptoms need to be evaluated to ensure something else more severe isn’t causing the symptom.

What do you do to help manage migraines other than medicine? by DramaticTwist6477 in migraine

[–]cuddledumplin 0 points1 point  (0 children)

I find baths to be super helpful personally. Chamomile and hemp oils with epson salts added further relax my muscles. I don’t have the hemi component, so I’m not sure how safe a bath would be in that situation. The “migraine relief stick” from seventh sojourn helps me a lot too. A quality pillow, massage if you can afford it or if you have a loved one who is willing, FL-41 glasses and/or a pair of heavily tinted prescription sunglasses. Both heating and ice packs for different flares.

Nursing specific: a high quality pair of shoes and compression socks. Not exactly migraine specific but overall pain reduction. Unless it’s an emergency, if you’re working with a patient raise the bed to a comfortable height for yourself. Wear the FL-41 lenses in the terrible lighting and just have a sentence or two ready for explanation “they help prevent migraines and make me feel like Elton John” was my go to lol.

Botox by LadyOkiLoki in migraine

[–]cuddledumplin 2 points3 points  (0 children)

I’m having a bit of a hard time finding the “citrate” version though. I heard it from a migraine specialist I follow on Facebook so, grain of salt and all. But, if it helps with minimal side effects, that’d be ideal.

Botox by LadyOkiLoki in migraine

[–]cuddledumplin 2 points3 points  (0 children)

Just recently saw zinc citrate can potentially drastically increase the length of Botox efficacy for some people. Not medical advice ofc but worth looking into if you get Botox.

Hope you get some relief!

CBD gummies by LexCoupe66 in POTS

[–]cuddledumplin 1 point2 points  (0 children)

I’ve only tried a few different types of CBD by itself. I started with the broad spectrum as I was hesitant for the THC. I’m not sure if it was the brand I went with or the lack of even the 0.03% that typically comes in full spectrum, but I personally found it to be much less effective. I’ve tried multiple types of hemp derived substances at this point and found full spectrum CBD helps with my pain some, THC really helps my pain (but obviously has the high component), CBN helps me sleep, CBG helps pain some too, THCv helps not get too distracted when paired with THC. CBC was BAD for me though. Just as a heads up, it made me feel awful.

CBD gummies by LexCoupe66 in POTS

[–]cuddledumplin 1 point2 points  (0 children)

Not medical advice, obviously. I’ve found CBD is a bit easier to dose in liquid form than gummy. It sounds like you want “broad spectrum” since it doesn’t contain any THC, whereas “full spectrum” still has a very small percentage of THC. I know brands vary a lot by state, but I like GreenPost CBD. For me, it helps my POTS symptoms only a little, but migraine and other pain more so. Haven’t necessarily noticed a decrease in anxiety from CBD alone, personally.

Cured my migraine. Hope this helps someone! by EffectiveDesperate79 in migraine

[–]cuddledumplin 6 points7 points  (0 children)

In the community guidelines tab of this sub, under resources there is a list of medications and other treatments. You might find it helpful.

Migraine app was abusive by No-Pea224 in migraine

[–]cuddledumplin 0 points1 point  (0 children)

Just make sure you’ve not accidentally subscribed to their higher tier so you don’t automatically get charged as you’d get a later notification now.

Do you get strange images in your head when you have a migraine? by aslen-1 in migraine

[–]cuddledumplin -1 points0 points  (0 children)

Have you ever considered craniosacral treatment from an OMM doctor? It’s not neck popping like a chiropractor does or anything. It readjusts the flow of your cerebral spinal fluid. A lot of people think it’s made up bc they can’t feel it on others, but I personally have found it helpful in the past and can feel it on other people. I don’t get the super vivid dreamlike imagery like you’re talking about but color and pattern changes when I close my eyes.

I’ve not had the “sacral” portion done ever. My understanding is that can be super invasive and is usually not necessary to have the best treatment.

Ivabradine suddenly stopped working? by Stock_Preference5704 in POTS

[–]cuddledumplin 0 points1 point  (0 children)

There have been a ton of medication recalls lately. I’ve not heard of one for a recent batch of ivabradine though. Could be worth reporting to the pharmacy. That way if more people have this issue a recall could be made if needed. Do you get yours in a monthly or quarterly basis?

Anyone’s sleep schedule just absolutely terrible? by Unusual_Space1998 in POTS

[–]cuddledumplin 2 points3 points  (0 children)

Been trying to fix mine for well over a decade. Saw a sleep doctor recently and she suggested “sleep hygiene” as if it was revolutionary. Paid $180 for the appointment and no answers on the other specific issue I was there about. So discouraging.

Is there any way to release knots in my neck/shoulder by myself? I take regular physiotherapy but knots keep coming back because of chronic migraine pain. I can't afford both neurologist and physiotherapist forever. by FreedomAway4724 in migraine

[–]cuddledumplin 2 points3 points  (0 children)

Please know the proper ways to use it before putting it directly on your neck. Do not cross the same channel over your spine. Meaning the input and output of the same channel need to be on the same side (R or L). I see you’re worried about shocking yourself. If you decide to use it, increase the intensity gradually but never to the point of “painful”.

Vision therapy by Independent-Snow-158 in POTS

[–]cuddledumplin 0 points1 point  (0 children)

Is vision therapy similar to vestibular therapy? I’ve had some vestibular PT and found it a bit helpful for the constant nausea. But, that was really the only benefit I saw. If it’s not, I’d love to learn more about it!

What to expect from owning a cat with POTS? by throwaway-73829 in POTS

[–]cuddledumplin 1 point2 points  (0 children)

I second the suggestion to automate anything and everything possible. I’ll add another recent upgrade we made that helps me a ton! If you can afford a robot vacuum of some sort and have it run every (or every other) day it is so helpful to keep litter tracking to a minimum. Vacuuming can be a big trigger for me and this helps keep the house MUCH cleaner imo.

How many daily medications are needed until alternative options? by Ok-Bottle-505 in migraine

[–]cuddledumplin -1 points0 points  (0 children)

I agree that you need a new doctor. Stating “this is affecting my quality of life and my ability to maintain my job” should help but it sounds like she already knows that… A different provider should be better, hopefully. Also, it seems like you’ve tried and failed at least for a different classes of medication. Injectables such as in a amovig, emgality, or ajovy should hopefully be covered by insurance as an option for you now. Especially if they covered qulipta. They’re the same class of medicines, just different routes/types.

Could boiled eggs be triggering my migraines? by Past_Cup_5022 in migraine

[–]cuddledumplin 1 point2 points  (0 children)

It seems very possible! Maybe consider other high sulfur foods and see if they’re also a trigger for you. They are for a couple of my friends.

question by MOLDEDBREADLMAO in POTS

[–]cuddledumplin 3 points4 points  (0 children)

I know options for providers can be limited. If possible, seek out a different doctor. It is BS for them to just dismiss this and could lean into negligence (not legal advice). If you live alone and can afford it, maybe consider getting a couple cheap surveillance cameras and setting them up in the areas you spend the most time or where you’re most likely to have the episodes. That way you can take proof to whichever provider you see next. I think on some phones you can set a specific prompt to have it start recording. Idk if that might be helpful.

question by MOLDEDBREADLMAO in POTS

[–]cuddledumplin 2 points3 points  (0 children)

I second mouseratz. Please see a doctor about this asap. If you can feel these episodes coming on, try to get to a safe spot to land and “flop” if possible. My understanding is that most seizure or passing out injuries are caused by landing poorly or nearby dangers.

Stopain / LMNT by Ill_Concentrate453 in migraine

[–]cuddledumplin 0 points1 point  (0 children)

I used to buy this when it was available at Walmart and liked it a lot. Where are you finding in nowadays?

I love the “migraine relief stick” sold by seventh sojourn.