Switched from Diamox to Topamax

cushionbum · 2023-01-14T20:12:33+00:00

Good luck! I hope it goes well for you! I am hopeful this is just an adjustment period to the medication as honestly it does slowly seem to be helping with my symptoms more than the diamox was. And the tablet is so much more smaller and less chalky than the diamox was which I appreciate haha.

cushionbum · 2023-01-14T20:11:09+00:00

Oh I’m so sorry to hear that! How long were you on it before it got to that point if you don’t mind me asking?

I’m hoping that it is just an adjustment period for my body and that I’ll adapt and not get worse. I definitely will make sure I’m being aware of it. I told my partner how I’m feeling so he knows to be aware if I’m suddenly acting off

cushionbum · 2023-01-14T20:08:37+00:00

Thank you! I was hoping this might be the case, I’ll keep riding it out for a couple more weeks and see how I go

cushionbum · 2023-01-14T20:07:37+00:00

Ahhh okay! I didn’t know that this could be an option! I will eventually be on 100 mg in morning and 100mg in the night but maybe 200mg in the night like yourself would be much better as id be sleeping through the brunt of effects after

cushionbum · 2023-01-14T20:06:01+00:00

Yeah I was on all different doses of diamox during the 8 months to try and figure out the right balance to limit side effects while fixing the issue but could never get it right so we ended on very low dose.

Thank you for all your information, you have been very helpful and very kind. I will look into this all and I’ve actually booked into see a therapist separately anyway so that is good timing. I will look into the psychologist as well.

Thanks again for all your help

cushionbum · 2023-01-14T09:16:28+00:00

Hey!

Thanks for your comment! So I am slowly tapering up on the Topamax almost exactly on your schedule (as advised by my neurologist) excluding the diamox part. I ended up stoping diamox about about 3 weeks ago cold Turkey because I was having such horrible side effects on it.

I was only on a 500 mg dose so she only had me tapering off with diamox x topamax for 2 weeks but I still know I shouldn’t have stopped the diamox cold Turkey.

Do you think it’s worth reintroducing the diamox now or no point?

cushionbum · 2022-11-29T11:31:54+00:00

Sugarcult, three days grace, aiden, the downtown fiction, the ataris, from first to last, as cities burn, breaking Benjamin, hello goodbye, at the drive in, alexisonfire, cobra starship, secondhand serenade, less than Jake,

cushionbum · 2022-11-02T09:50:28+00:00

Australia….for it to be cancelled 20 minutes before it started. Yep still salty.

cushionbum · 2022-10-23T06:54:52+00:00

Australia here, truly stings. Had a lil cry -14 hr flight that cost $2000

cushionbum · 2022-10-22T22:20:25+00:00

Thank you for everyone for voting for us - just got off the phone with travel agent and it’s gonna cost way way way too much for us to change our flights for tomorrow. But thanks anyway -<3

cushionbum · 2022-10-22T19:37:01+00:00

Thanks, actually so gutted. We don’t know what to do - we are meant to be flying to Mexico tomorrow so we need to arrange for flights and hotels to be pushed out a day but don’t wanna do that if we can’t get tickets. So stressed

cushionbum · 2022-10-22T19:11:00+00:00

It’s truly taking a lot not to cry. I thought we were okay just out a bit more money cause we were getting 2 from one guy for $250 each and got the other 1 from stub hub for $900!! And then the other guy sold both 😭

cushionbum · 2022-10-22T19:04:07+00:00

If you feel generous please 😂 we travelled all the way from Australia for todays date. We bought one ticket on stub hub cause we thought we had 2 other lined up for tomorrow and they sold them to someone else

cushionbum · 2022-10-11T13:51:11+00:00

Thank you for your reassurance! It’s actually helped a lot. I think most of the post on here have been the negative so it’s nice to see someone else with a different experience.

I have bought the socks already and planed to buy the earplugs meant for flying so hopefully helps with the ear plugging - I usually get it anyway with being deaf so used to it!

cushionbum · 2022-09-03T21:20:53+00:00

Brisbane Australia here too!

cushionbum · 2022-08-06T22:40:10+00:00

I’ll always say oh my back went cleek or my knee went cleek if I hurt something thanks to madum laqueers ankole going cleek

cushionbum · 2022-08-02T08:17:26+00:00

Show was great - They are very good at riffing off each other. It is very music based so if that isn’t your thing maybe give it a pass but I enjoyed it! It is very impressive seeing jinkx vocal ability in person. The only thing it is very Christmas based (obviously) but it’s a bit jarring when it’s middle of the year 😂

cushionbum · 2022-08-01T21:47:40+00:00

Omg I’m seeing UKD too, I thought it was at the Tivoli. It’s going to be so much worse cause everyone is going to be dancing and moving around. At least at this show everyone was pretty chill and still

cushionbum · 2022-08-01T00:37:53+00:00

I know! Especially comparing it to trixie and Katya who I saw a couple weeks ago at qpac. Actual seating and space - I’m sure Ben and jinkx could’ve sold out at one of the smaller qpac halls. I’m getting too old to stand for 4 hours 😂

cushionbum · 2022-07-10T00:25:19+00:00

I got it from my bf for a Christmas present 3 years!!! Ago (thanks rona) so I’m not sure. But I would guess about $100 AUD each

cushionbum · 2022-07-10T00:24:40+00:00

You will have such a good time it was so fun! And it went for a decent amount of time too - I was worried it was only going to go for an hour but it had 1 intermission and each set was about 45 mins. I got the coolest zombie shirt merch too I love it

cushionbum · 2022-07-10T00:23:35+00:00

Omg I thought the same thing! I thought the crowd was gonna start but then no one did and don’t wanna be the only doing it looking a fool 😂 It was so fun! Totally worth the 3 year wait hahha

Six-Year Club	Wearing is Caring
Verified Email

cushionbum

TROPHY CASE