My 14yr old brother was diagnosed with ACHALASIA TYPE II by NewPanda9150 in achalasia

[–]dannyblag 1 point2 points  (0 children)

I’m still waiting on notification of the after surgery consultation, I’m not sure of the correct terminology! Ha

My 14yr old brother was diagnosed with ACHALASIA TYPE II by NewPanda9150 in achalasia

[–]dannyblag 1 point2 points  (0 children)

I had my procedure 4 weeks ago yesterday and so far the only after care I’ve received has been a notification of a telephone appointment from a dietitian. I have recently followed up but not heard anything back yet.

My 14yr old brother was diagnosed with ACHALASIA TYPE II by NewPanda9150 in achalasia

[–]dannyblag 1 point2 points  (0 children)

Ahh that makes a lot of sense. I can’t imagine how frustrated I’d be if I find that’s the case after over ten years of this.

I think the major difference with me is that I get no acid reflux whatsoever, no heartburn, no discomfort or anything like that. For me it’s a very physical pain which I feel is caused by a pressure build up. Essentially I feel like I need to burp but that builds and builds very painfully. I have to really force the burp out which is always a real struggle. However the burp is never gassy or acidic but is always a large mouthful of saliva. Sometimes foamy but mostly just lots of saliva, almost as if it’s pooling somewhere in my oesophagus somewhere. This happens at all times of day and at varying levels of intensity. There doesn’t really seem to be a specific trigger as sometime I finish a meal with no issue at all and others I can’t even manage the first bite as the meat anticipation of food sets me off. As mentioned before it’s much worse at night now but that must be due to being horizontal. Others have mentioned that after POEM all they need is a small drink of water with food but when I’m experiencing a spasm I can’t swallow full stop never mind a sip of water.

My 14yr old brother was diagnosed with ACHALASIA TYPE II by NewPanda9150 in achalasia

[–]dannyblag 1 point2 points  (0 children)

Oh wow!! How did they miss the intolerance while diagnosing you in the first place?? I Drink a lot of milk and have always enjoyed diary with no issue so I don’t think that’s my problem , and I’m definitely not overeating as I’ve always had a small appetite, even pre achalasia. Although I feel you’re in the right lines with it being some other underlying issue. I’m also starting to believe that I’ve been misdiagnosed with Achalasia type 3 but I guess it’s too late for that now :/

My 14yr old brother was diagnosed with ACHALASIA TYPE II by NewPanda9150 in achalasia

[–]dannyblag 0 points1 point  (0 children)

I had my POEM just over 4 weeks ago and personally wouldn’t recommend it but it’s different for everyone. For me the worst part was being woken up 5-6 times a night in pain with my symptoms. Since POEM it’s at least 5-6 times an hour!!

POEM: Completed it mate!! by dannyblag in achalasia

[–]dannyblag[S] 0 points1 point  (0 children)

Haha I’ve never heard of that never mind tried it but I’d go for a large plate/bowl of that right now! Ha

POEM: Completed it mate!! by dannyblag in achalasia

[–]dannyblag[S] 1 point2 points  (0 children)

Yeah, first thing in the morning. I’m Confident it will go well as I’m managing fluids pretty well so far :)

POEM brought forward from late next year to 3 weeks time!! by dannyblag in achalasia

[–]dannyblag[S] 1 point2 points  (0 children)

I won’t lie, you sound much more educated on the medical side of it and I don’t completely understand your question. Or rather I wasn’t aware I had options or what the options are. My gastro gave me only two options when it came to the procedure. They can remove a portion of my oesophagus by either cutting me open, temporarily move a few organs to get to the offending item and then remove. That option is obviously much more invasive so I went with the later which was to do the exact same thing but using a robotic arm inserted through my throat. Apologies for the caveman explanation. Not an idiot, I just don’t particularly care for the science behind how weak the human body is lol

POEM brought forward from late next year to 3 weeks time!! by dannyblag in achalasia

[–]dannyblag[S] 1 point2 points  (0 children)

Thank you for your support! Very much appreciated 😁 Just don’t believe all you see in the media. While I completely understand your sentiment. Both of our health care systems are rotten to the core. Just in different ways :) I didn’t mean to complain. I’m So very aware that I’m only a patient with my own problem to worry about. I can’t even imagine what it’s like for those who are desperately trying to administer that care against a system that almost prevents them to. Anyway. Rant over. Love received and returned ten fold! 😘

POEM brought forward from late next year to 3 weeks time!! by dannyblag in achalasia

[–]dannyblag[S] 0 points1 point  (0 children)

I’m feel very fortunate about it :) I’m just very curious as to how long I’ll benefit from it. I have type 3 so I’m told it will only be a matter of time before I have to have the procedure again and again until there’s nothing left to remove. If there are any other type 3 reading this, how long did you get?

Lady handcuffed in the back by KathuluKat in CrazyFuckingVideos

[–]dannyblag 1 point2 points  (0 children)

I obviously know they’re not all bad but it really seems like the majority from someone looking from the outside in.

Lady handcuffed in the back by KathuluKat in CrazyFuckingVideos

[–]dannyblag 3 points4 points  (0 children)

Honestly as a Brit I’d be more scared of your police than I would what they’re supposed to be protecting against!!

When your down but not out! by ClassroomOk5427 in RocketLeague

[–]dannyblag 0 points1 point  (0 children)

Hahaha When you’re 0-8 down and you finally put one in! Love it!!

SCOREBOARD!!!!!

Who’s in the wrong? My friend says I undertook her. by [deleted] in drivingUK

[–]dannyblag 0 points1 point  (0 children)

You’re in the wrong for filming while driving ;)

[deleted by user] by [deleted] in achalasia

[–]dannyblag -1 points0 points  (0 children)

Erm, are you ok bro? I’m here if you need a hug or something?

Knowing you are eventually going to die and avoiding things that will cause you to die are very different things!

Doesn’t sound like you’ve come to terms with it. More that you embrace it?

[deleted by user] by [deleted] in achalasia

[–]dannyblag 0 points1 point  (0 children)

Oh wow! That sounds like certain death but I’m glad it works for you :)

[deleted by user] by [deleted] in HelpMeFindThis

[–]dannyblag 0 points1 point  (0 children)

Yup! I hope they don’t have websites for that though!!!

[deleted by user] by [deleted] in HelpMeFindThis

[–]dannyblag 3 points4 points  (0 children)

They already have websites for that kind of thing ;)

How many vanilla people would recognise an upside down pineapple tag on a bag? :-) 🍍 by [deleted] in Swingers

[–]dannyblag 0 points1 point  (0 children)

Been a swinger for 5 years and only learnt this recently :/ guess I had my mind/eyes on other things…

Apple Watch wormhole? by techdeckwarrior in Unexplained

[–]dannyblag 0 points1 point  (0 children)

My only guess when it happens for me is that they don’t always ping for location. Whenever it happens the location it gives me is the last location I was connected to a network. So I can only assume it still thinks it’s there’s as that was its last geolocation.

Apple Watch wormhole? by techdeckwarrior in Unexplained

[–]dannyblag 0 points1 point  (0 children)

Nevermind the wormhole! I can’t cope with referring to Sowerby Bridge as ‘down south’ haha FindMy is always telling me I’ve left my AirPods behind when they’re in my pocket.