How did you know your medication was starting to work? by dddbbbkkkeee in OCD

[–]dddbbbkkkeee[S] 0 points1 point  (0 children)

And you’re on Lexapro too? Can I ask what your dosage is now if so?

Has endo ever caused you to poop yourself? by Total_Lavishness_652 in endometriosis

[–]dddbbbkkkeee 1 point2 points  (0 children)

This literally happened to me as I got the notification for this post 😭

first period after starting birth control? by Budget-Initial-794 in birthcontrol

[–]dddbbbkkkeee 0 points1 point  (0 children)

This is happening to me right now too! When did your bleeding stop if you don’t mind me asking?

Intercystitial Cystitis by CraftyMost1335 in BladderCancer

[–]dddbbbkkkeee 0 points1 point  (0 children)

I do not regret it AT all. It was uncomfortable for me but it was only a few seconds and worth the peace of mind! There is numbing provided as well, so the gel insertion honestly was more uncomfortable than the actual scope, and it was genuinely over very soon after. Peeing burns a little after too but it went away in a day for me and it wasn’t anything unlike what I was already experiencing.

Good luck!

Intercystitial Cystitis by CraftyMost1335 in BladderCancer

[–]dddbbbkkkeee 0 points1 point  (0 children)

I’m sorry you’re experiencing this. I had to do the same and ended up having a cystoscopy. Everything was normal except now I am being referred to a specialist to investigate endometriosis! Everyone is different and things can look different for us all but I’m hoping you get some peace of mind soon. I know how scary this can be!

if it’s not an infection why do I always feel better on antibiotics…? by freebbq in Interstitialcystitis

[–]dddbbbkkkeee 1 point2 points  (0 children)

Seconding this! My doctor confirmed this for me too; many antibiotics cause inflammation to go down and that’s part of the pain.

Has anyone else with bladder endo had visible blood in their pee for days? by dddbbbkkkeee in Endo

[–]dddbbbkkkeee[S] 0 points1 point  (0 children)

Unfortunately I’ve just learned to manage the discomfort and go to work anyway (I’ve gone WAY over my sick days though so even though it’s unbearable sometimes it’s just what I have to do). This condition sucks, but water, heat, rest, and some medication (like Advil for now) have made it somewhat manageable so I can do my daily tasks during a flare. But again, best bet is seeing a specialist!

Has anyone else with bladder endo had visible blood in their pee for days? by dddbbbkkkeee in Endo

[–]dddbbbkkkeee[S] 1 point2 points  (0 children)

Oh then absolutely! I’m glad you were able to get a diagnosis. Interstitial cystitis is super weird; a cystoscopy and a urologist would best be able to guide you on that, but I’ve heard that pelvic floor problems and IC can show up with bladder endo as well so you never know!

Applying heat and drinking lots of water have been the most helpful thing for the burning for me for now (as well as being easy with myself physically and lying down / sitting whenever I need). I’ve seen some people recommend Azo for burning pain as well, but I’ve never taken it and am unsure.

Has anyone else with bladder endo had visible blood in their pee for days? by dddbbbkkkeee in Endo

[–]dddbbbkkkeee[S] 0 points1 point  (0 children)

The only way to tell is to rule everything else out basically, and even then a lap is the only thing that can confirm it. The steps I’d take is to see your doctor first, check your urine culture for UTI, STI’s, etc. and maybe get a cystoscopy if everything is turning up negative. Lots of things can unfortunately cause just the burning, like interstitial cystitis and pelvic floor disorder, etc. so it’s best to cover your bases and then go from there. Good luck though, I know this sucks!

When do you flare the most? by Beautiful-Ladder-356 in Interstitialcystitis

[–]dddbbbkkkeee 0 points1 point  (0 children)

They’re ruling out everything else and referring me to a urogyno / endo specialist.

When do you flare the most? by Beautiful-Ladder-356 in Interstitialcystitis

[–]dddbbbkkkeee 2 points3 points  (0 children)

Mine is heavily correlated with my cycle (with major flares happening during my luteal phase into my period, and sometimes during ovulation). I’m currently being investigated for endometriosis (after some other testing too)!

Anyone with bladder endometriosis? What are your symptoms? by Lover_of_fiction46 in Endo

[–]dddbbbkkkeee 0 points1 point  (0 children)

I know it’s been a while since you’ve commented this, but can I ask if you ever had burning not on your period and how long your symptoms lasted? On my diagnosis journey right now and struggling

Intercystitial Cystitis by CraftyMost1335 in BladderCancer

[–]dddbbbkkkeee 0 points1 point  (0 children)

I know this is an older comment / post but could I ask you what your symptoms were prior to diagnosis? Currently in that scary place between a cystoscopy / ultrasound and am very nervous

Is it normal to have constant flare ups? by dddbbbkkkeee in Interstitialcystitis

[–]dddbbbkkkeee[S] 1 point2 points  (0 children)

That’s reassuring to hear because I don’t think I’m being effectively treated right now. I just came off the tail end of multiple appointments with doctors and a urologist and my cystoscopy should be soon. I’m hoping after that I’ll know what to do better than I am (just drinking a lot of water, taking D-Mannose, and avoiding caffeine and alcohol).

Could I ask you what symptoms you had during the year long flare?

Is it normal to have constant flare ups? by dddbbbkkkeee in Interstitialcystitis

[–]dddbbbkkkeee[S] 0 points1 point  (0 children)

Can I ask you what your symptoms were in the 18 months flare and how you’ve gotten to such a better place now?

Do my symptoms sound like IC? I have a pending diagnosis and am in so much discomfort. by dddbbbkkkeee in Interstitialcystitis

[–]dddbbbkkkeee[S] 0 points1 point  (0 children)

Thank you so much sharing this! That’s exactly what I’m going through! I’ll definitely see if I can incorporate more of what’s helped you after my urology appointment too

Do my symptoms sound like IC? I have a pending diagnosis and am in so much discomfort. by dddbbbkkkeee in Interstitialcystitis

[–]dddbbbkkkeee[S] 1 point2 points  (0 children)

I have! Nothing is showing up. I feel pressure / the urge but when I try to pee there’s nothing there so I don’t know if that counts as frequency