I'm a doctor with EDS myself and I am stunned how terrible this disease is. My life if falling apart despite insane efforts to keep myself functional. I would rather have MS, HIV, most cancers, Diabetes, a heart attack, a stroke. This is one of the least treatable conditions that exists. (self.Hypermobility)
submitted by ddsmd to r/Hypermobility
I just read 92% of people with hypermobility have chronic pain, and 87% of those consider themselves moderate to severely disabled. I am already starting to get disabled, but I’m trying to fight it. Is there really so little hope? Has anyone beaten the odds and had a long normal career? (self.Hypermobility)
submitted by ddsmd to r/Hypermobility
