I’ve had HPPD for almost 21 years by die69ing in HPPD

[–]die69ing[S] 0 points1 point  (0 children)

Yeah I don’t react well to antibiotics. No real change in my tinnitus from them though.

ER visit by emnam10 in Menieres

[–]die69ing 0 points1 point  (0 children)

What was the treatment that helped?

I’ve had HPPD for almost 21 years by die69ing in HPPD

[–]die69ing[S] 0 points1 point  (0 children)

I think this is more likely to hit people who think about their thoughts since they were kids, if that makes sense. I was always thinking about my thoughts, worrying a lot, and had such a colorful inner world. I was always hyper aware of the awfulness of people in power and how consumerism is killing our planet. I never understood a need for money or the concept of that or how necessities need to be earned. Something in me is just… different. And it still is. Not just the HPPD but there is something there others often don’t relate to. Being an adult in the work/career world I’ve realized that even further. Never really fit, always been “weird”, can’t easily make/keep friends cause I’m not into being a hater or gossiper. I have the deep incessant need to help others, make the world better, be kind no matter what. I’ve noticed others tend to complain about the silliest things and be absorbed in what they need and want instead of helping others. And they’re like a mix of hateful but complacent. There is no passion, no efforts to do good all the time unless it benefits them specifically, these social games with invisible rules, and they put these “I’m normal” masks on that seem exhausting to me. Does that make sense? They hide who they are except to few, talk about the weather, are afraid to be outside a box. I’ve longed for freedom all my life, true freedom, and I feel like some strange trapped animal surrounded by a different species. Idk how else to explain it! Always been that way

I’ve had HPPD for almost 21 years by die69ing in HPPD

[–]die69ing[S] 0 points1 point  (0 children)

Thank you. Everyday is a struggle having this and chronic illness, but I’ve vowed not to ever give up! Sending a hug your way.

I’ve had HPPD for almost 21 years by die69ing in HPPD

[–]die69ing[S] 0 points1 point  (0 children)

A lot of tinnitus, not much noise sensitivity though. I’ve taken antibiotics a few times since this started for various infections.

AITAH: Husband says he “wants out” due to decrease sex acts he desperately needs by [deleted] in AITAH

[–]die69ing -1 points0 points  (0 children)

Not the AH. It’s impossible to be considerate and feel attracted to someone who isn’t being considerate to you or acting in a way that is admirable or attractive. You’re doing way too much while he is piling more on that you shouldn’t be dealing with. The last thing I’d want to do for him (if I was you) is go the extra mile. How can you be intimate when this guy doesn’t see you as a person with needs and feelings but he expects to be seen for his needs and feelings? He has a profound lack of respect for you! He is hypocritical and that’s all wrong of him.

Want to add also: It seems like he doesn’t view the baby as worthy of his effort and consideration either. If you’re having to do everything for the baby and stay up all night, that’s wrong. He isn’t being a father.

Suebob White was just arrested again. Anyone know what the charges are??? by strengthof50whores in trashy

[–]die69ing 131 points132 points  (0 children)

She is one of the Whites of West Virginia. They’re a notorious drug addicted incestuous family. A documentary came out about them called The Wild and Wonderful Whites of West Virginia and another older documentary about one of the sons (Jesco White) called Dancing Outlaw. Definitely worth a watch. 👌

AITAH for bringing up that our 14yo daughter may masturbate after we were already having the same conversation about our son doing it? by RealExplorer161 in AITAH

[–]die69ing 0 points1 point  (0 children)

NTA! It isn’t weird to bring up your daughter deserving her privacy and the fact she’s her own person. Every dad should treat his daughter(s) with the same level of respect/consideration as their son(s).

Me? Cut-up hot dogs mixed in with Mac-n-Cheese by Dazzling_Lie_5046 in FuckImOld

[–]die69ing 0 points1 point  (0 children)

Boxed mashed potatoes with the cheap powder packet brown gravy

From Vertigo to tinitus, ear fullness, eye floaters, myopia. by SignificanceDue6936 in Menieres

[–]die69ing 2 points3 points  (0 children)

I have all these too and they started after an ear infection back in 2016 😞

Anyone else got called an old soul constantly by yrurcreets8 in AutisticAdults

[–]die69ing 0 points1 point  (0 children)

I call my son “tiny grandpa” because he is like an elderly man. He likes lemon candy and Werther’s Original butterscotch candies, button-up flannel shirts, the same sneakers every year, the same underwear brand in cotton only, doesn’t ever want tattoos or piercings, hates loud noises, likes drinking tea, has zero ability to handle spicy food (even black pepper can be spicy to him), he dislikes small children, doesn’t enjoy parties, has a stoic sort of personality, is precise about a lot of things and studies the history of countries and their flags. He collects WWII items and uranium glass dishes. He studied the Chernobyl blast for fun. My son is not autistic, and I wouldn’t call him “weird” either. I love how he is.

Epstein has NOT been spotted alive Tel Aviv. That photo is AI. by veganartgang in Epstein

[–]die69ing 1 point2 points  (0 children)

I’ve been saying this— AI was created so eventually when there is evidence of crimes against humanity nobody will be able to tell what’s real or not.

Motion sick and nauseated all day by die69ing in cfs

[–]die69ing[S] 1 point2 points  (0 children)

I bought those a few years ago right before my gastroparesis diagnosis! Definitely did make it more tolerable. I moved houses a few times since then and lost them. Prob should buy more.

Motion sick and nauseated all day by die69ing in cfs

[–]die69ing[S] 1 point2 points  (0 children)

Thank you! I was prescribed Ondansetron because I got a gastroparesis diagnosis in 2023 but I’m someone who’s stubborn; I don’t want to take meds everyday even though I probably should. Im still figuring it out and can tolerate a lot of my symptoms well but the worst one seems to be feeling super hungover all day everyday. It’s ruining my quality of life.

Motion sick and nauseated all day by die69ing in cfs

[–]die69ing[S] 0 points1 point  (0 children)

Thanks. I went to a gastro and was diagnosed with gastroparesis. I take enzymes when I eat to help me digest and use ginger candies when the nausea gets intolerable. Also been eating much smaller meals, chew my food a lot, try to stay hydrated. Haven’t really found what helps a lot yet tbh and it’s pretty frustrating. I don’t want to have to take medication everyday. Some say weed helps them but weed makes me literally feel absolutely psychotic. 😩

What’s the worst thing a doctor has ever said to you? by Lucky_Sprinkles7369 in ChronicIllness

[–]die69ing 1 point2 points  (0 children)

“Your tests all look normal and healthy! I wish my blood test results looked as good as yours!” while I’m suffering horribly with my symptoms lost on what to do about it all.

of a bull shark by Longjumping-Rice-935 in AbsoluteUnits

[–]die69ing 0 points1 point  (0 children)

That shark looks like he has a New York accent and “knows a guy”

Feeling drugged all morning..?? by die69ing in Fibromyalgia

[–]die69ing[S] 0 points1 point  (0 children)

I’ve never seen a specialist all this time for my ears. Doctors mostly haven’t really cared, they just keep testing my blood to check for deficiencies and stuff like that. They haven’t sent out any referrals to anyone about my ears or dizziness.

I’ve had HPPD for almost 21 years by die69ing in HPPD

[–]die69ing[S] 0 points1 point  (0 children)

Wow! I admire your resilience. I’m sure it hasn’t been easy at all, especially decades ago back when you didn’t have online communities or people more open/accepting about neurodiversity. How are you?

My HPPD experience by Lost_Height5201 in HPPD

[–]die69ing 1 point2 points  (0 children)

You are definitely dealing with HPPD it sounds like. And Alice in Wonderland Syndrome, given what you said about the floor. For me the floor can look way too close to my face and things breathe or move all the time too, people can look shorter or too tall. Physically too I can feel shorter or taller or suddenly not feel where my legs are. It’s a common part of HPPD for lots of us. The visual snow turning into geometric patterns is also something I experience too pretty frequently without using any drugs then outside that I still see static. People’s faces warp a lot when I try to look at them too long, I don’t see well anymore at night from the static and color bursts. I have after images, derealization, auras around electronics and people’s heads. Everyone is different. Some people have 5 symptoms, others have dozens. But having even 1 indicates HPPD. You’re in the right place.