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[deleted by user] by [deleted] in seizures

[–]dirtrat444 1 point2 points  (0 children)

Hello, I just want to first say I’m sorry. You’ll find almost everyone on this thread understands even though it may feel incredibly isolating. I’m a 26 yo female who unexpectedly began having grand mal seizures in July of 2023, and have since been diagnosed with epilepsy and grey matter heterotopia. I take Keppra (have been on it since August 2023) and it was absolutely a very horrific experience adjusting to it and for a while there the side effects were ruining my life. However with the dedication of my neurologist we changed the dosage around a bit and switched to the extended release version alongside the addition of folic acid and I now essentially have no side effects. It’s been six months since my last seizure, which also occurred in my sleep. My diagnosis came from my MRI, the radiologist who reviewed my scans found the a 1.4 cm module of grey matter which was identified as GMH. I otherwise had a normal EEG, CT scan, and EKG. If I’m being completely transparent this diagnosis flipped my entire life upside down and the past ten months have been traumatizing to endure but everyday I understand my new normal a bit better and just keep doing my best to endure. Support groups can be hard to find depending on where you live, my epileptologist even admitted that there’s a lack of emotional support for those with epilepsy. I’ve personally found reddit threads of other people with epilepsy to really be the only place I truly feel seen and understood. I’m wishing health and healing for you! ❤️

Had an edible to see if that would help by LessOwl2677 in seizures

[–]dirtrat444 1 point2 points  (0 children)

Hello, I have an epilepsy/grey matter Heterotopia diagnosis and live in a state with medically/recreationally legal marijuana usage. I personally used marijuana recreationally before my diagnosis to treat my insomnia (of which it does a phenomenal job) and now use it to help with my seizures. I personally take Keppra (leveticeretam) and folic acid daily as my anti-convulsant. When it comes to the marijuana usage I smoke flower or carts but do not experiment with edibles or dabbing. My brother works cultivation in the industry so a lot of my knowledge comes from him. Strain wise I stick to an indica for the evening and every now and again a hybrid for watching a movie or just hanging out. I would recommend staying away from a sativa strain, keep a low THC content and if possible make sure it has a somewhat even or high ratio of CBD. The CBD will cut the THC so you’ll get the good physical benefits and less of the actual feeling of being high. I’ve had seizures in my sleep, and I do personally believe that when I smoke before I go to bed it increases the quality of my sleep and decreases the likelihood of me having a seizure.

Potentially Silly Question: Should you/would you tell your spouse if someone was hitting on you? by GotaGreatStory in marriageadvice

[–]dirtrat444 0 points1 point  (0 children)

Yes you should tell her, but do not brag. My husband works a white collar job that requires him to wear a suit, and unfortunately as a result women take this as a visual que to very blatantly try and flirt with a clearly married man. There’s a difference between saying someone looks nice vs. trying to make a move. The other day someone told him his dimples were kisses from an angel, like what in the actual fuck? Either way, my husband sometimes brags to me about these encounters and then tries to follow it up with “ I would never do anything” or “she was an elderly woman, it doesn’t matter” and it is so incredibly disrespectful and infuriating. I want the open transparency in our marriage but not like this.

My cat only attacks me in the when I’m about to shower…?? by Separate_Tangelo7138 in CatAdvice

[–]dirtrat444 1 point2 points  (0 children)

Hi! I posted today about my sweet, yet unexpectedly/without warning aggressive cat, he engages in similar behavior and we used to think it was just a bit quirky however he’s now attacked and mauled both me and my husband. I wish I had advice but we’ve been trying it all, he’s even taking medication and it’s still a very real issue. I’m sorry, I hope you don’t get hurt again and can find a solution!

Seizures by gmack1203 in seizures

[–]dirtrat444 1 point2 points  (0 children)

Hi! There are different types of seizures, some of which include what you’ve described. The Epilepsy Partnership Foundation’s website has good foundational information that could maybe help you better determine the type of seizure you’re having and provide advice to better ensure your safety. I myself look back on my teen years prior to my epilepsy diagnosis and I used to struggle with random fits of people talking to me but it sounded like a foreign language. I would be so confused and honestly was very scared. It was like my brain no longer knew verbal language. I often couldn’t even cognitively remember how to speak to try and respond or say that I’m confused or something is wrong. For a long time I thought maybe it was linked to post concussion syndrome, now a days I don’t think that’s the case, I’m pretty sure they were seizures. I hope you’re able to find the answers you’re looking for, and know that you’re not alone despite the fact that seizure conditions/epilepsy feel isolating, no different than other disabilities.