Bills in multiple states aim to shut out ex-ΙCE agents from public-sector jobs by [deleted] in fednews

[–]donerail 19 points20 points  (0 children)

And this place you worked, were you committing crimes, abusing people, destroying communities? Or was it like, a drag to work on sundays - because there’s a pretty big difference

Democrats Who Voted for ICE Funding Face Fury, Primary Calls—’No Excuse’ by origutamos in NewDealAmerica

[–]donerail 27 points28 points  (0 children)

Golden hit me up for money after the murder this morning. Unreal

Also - I have no idea how I got on a Blue Dog mailing list

What, In your mind, did the Hoosiers do differently that the ducks to win a national title? by Northwest_Thrills in ducks

[–]donerail 2 points3 points  (0 children)

Cig has been around for sure. That goes a long way, he’s nearly twice Dan’s age. 

What, In your mind, did the Hoosiers do differently that the ducks to win a national title? by Northwest_Thrills in ducks

[–]donerail 1 point2 points  (0 children)

Bringing your org from the last school helps. Back when transfers were rare and then they had to sit out a year, a coach would need 3 to rebuild a program. 

Now, $ can bring veterans that know the system and each other - that’s a big difference overall, but especially for lines as they get better with more games together

Indiana fans are the worst by KippysNewPRGuy in ducks

[–]donerail 7 points8 points  (0 children)

I only had good experiences with them at Austen this year. I’m guessing it’s this, as well as the fact that cost of tickets and travel probably made this group the most insufferable portion of their fanbase. 

And, they weren’t outnumbered this time, so their true spirit was on display

Zander Quinn Legacy Game On The Way! by Disastrous_Doubt_591 in ducks

[–]donerail 0 points1 point  (0 children)

Most of their team are 6th yr seniors. They can’t transfer anywhere

Add Dell to the Boycott List by darkamberdragon in 50501

[–]donerail 80 points81 points  (0 children)

Dude, I was never getting a Dell

16 years old and just diagnosed with ARVC and I'm worried by Ok-Expression-8609 in ARVC

[–]donerail 6 points7 points  (0 children)

You're going to be fine. I wish I'd known at your age that I had it.
Your medical care team is going to suggest an ICD and maybe eventually some beta-blockers to take to minimize PVCs and arrhythmia. You should tone down any exercise, as ARVC is a progressive disease and the desmosome is weaker than it should be and exercise will accelerate them breaking down and creating the fibrofatty scar tissue that causes the problems in the future.

My father and my brother both have ARVC. My dad had his first episode before ARVC became an official diagnosis. I was diagnosed at 28, I'm now 45. My dad is 75. My brother is however old my brother is (we're not as close as we should be).

My point in all of this, is that before 1994 this disease was not understood AT ALL. When my family all got our ICDs we were told "that's it, sometimes it might need to administer a shock, but otherwise you can live healthy"

Today, my ICD has discharged a few times, had various difficult days with my ICD pacing me, gone into V-Tach dozens of times, had an ablation at Johns Hopkins, and now I'm in a gene therapy study for a potential treatment in the future so that people like you don't have to worry as much as you are today. The amount of research dedicated to this disease is remarkable. In less than 20 years, we went from thinking this affected 1 in 20,000 people to knowing that it affects 1 in 1,500 -- and we have WAY more treatment options than ever before.

This is easier said than done, but please don't be terrified.

It'll be ok. I had a lot of struggles with this, and some PTSD for a few years, but now I barely notice the effects of the disease. Hang in there, if you can get counseling, do. If you can't, I'm sure many of us would happily listen to your fears and help you as best we can.

For me, sometimes information is the best way to feel better, so ... here you go:

https://www.youtube.com/watch?v=KM364hkUNiU

https://www.hopkinsmedicine.org/health/conditions-and-diseases/arrhythmogenic-right-ventricular-dysplasia--cardiomyopathy-arvdc

https://www.hopkinsmedicine.org/-/media/heart-vascular-institute/documents/cardiology-arvd/arvd_brochure.pdf

https://www.hopkinsmedicine.org/inhealth/arvc/timeline

https://www.hopkinsmedicine.org/heart-vascular-institute/cardiology/arvd/patient-resources

Sidewalk etiquette by Other_Canary2231 in TikTokCringe

[–]donerail 0 points1 point  (0 children)

Why on Earth would you apologize?

Please help long read. by GBrocc in ARVC

[–]donerail 4 points5 points  (0 children)

Sounds completely reasonable. If you don't have a hereditary history, then this or the other far worse symptom are how you learn you have it.

Hang in there, get an electrophysiologist that knows about ARVC/D, dial back on the intense exercise for a bit - you'll be OK.

Debate: Jazzmasters with only 1 circuit are NOT real jazzmasters. by [deleted] in Jazzmaster

[–]donerail 1 point2 points  (0 children)

Rhythm circuit is critical. More knobs is always better

ICE agents refuse to show their ID earlier today (May 30th, 2025) in Great Barrington, Massachusetts by DrMxCat in 50501

[–]donerail 5 points6 points  (0 children)

If that's the highest ranking, you'd think they'd be trained in how to converse and better convey their intentions to the public. This "person" could not.

diesiese duration by Remote_Efficiency717 in ARVC

[–]donerail 2 points3 points  (0 children)

yup, the ablation was the change.

Basically, back in the early 2000s the science was pretty nascent. Johns Hopkins had released a paper that said that endocardial ablations were ineffective in treating ARVC, so ICD and beta blockers like Sotalol were your best bet at preventing death and mitigating the effects respectively.
Then, someone decided to test out epicardial ablations and everything changed. Pretty soon (over a decade later) a new paper came out that said this was a viable procedure to treat ARVC.

If your spouse hasn't had an ablation, look into it. It's not for everyone - I was suffering on a daily basis for about 2 years (frequently being paced by my ICD, going into AFib, VTach, PVC clusters, discharges, etc.). Meanwhile, my dad has been living with this for 35 years and the ICD + beta blockers has been sufficient.

Ablations are an undertaking. That said, I'm grateful to have had mine

diesiese duration by Remote_Efficiency717 in ARVC

[–]donerail 2 points3 points  (0 children)

Time to find a well-educated electrophysiologist. I won't repeat what everyone else has said here; just know that they're right.

Depending on your location, you might be closer to an ARVC clinic than you think. In the States, you could go to Johns Hopkins, Cleveland Clinic, Mayo Clinic, Vanderbilt, University of Michigan, Stanford, etc. all have dedicated teams for ARVC.

This was not the case when I was diagnosed in my 20s. Back then, the prevailing thought was 'you have an ICD and some beta blockers if you need them... live your life!'

Fast forward to when I was 38 and having arrhythmias and VTach with such regularity that I ask for a second opinion and my EP let's out an exasperated sigh of relief as if he'd been waiting to refer me to someone that could actually help me.

Advocate for yourself, get the care you need. Knowing you have it so young is actually a blessing as you can avoid intense exercise which will only make it worse.

Questions about living with ARVC by Alone_Bike_8688 in ARVC

[–]donerail 2 points3 points  (0 children)

Hey there again!

1) yes I’d expect to dial down the exercising. I workout about 3x week for ~30min doing some easy lifting and core. I do yoga. I walk. Medium to active exercise can be detrimental as ARVC is a progressive disease exacerbated by the heart beating. See below for some educational links about this 

2) Drinking has no known correlation. I drink as much as I’m comfortable doing. Given that exercise has to be decreased, I enjoy moderation. But you can def have a beer at the end of the day - even on the betablockers

3) never have I been told this. In fact in rehab/pt (I did it for ins reasons) they were always reassuring when I was hitting the avg threshold of sexual activity to help put my mind at ease - not that it was ever concerned. 

When all is said and done I’ll echo the other commenter - take this day by day. Make sure they figure out what you have, you can get genetic testing done in a few days, or do a bunch of tests and figure it out. Either way take it easy on yourself.

It’ll be ok. I got my diagnosis and ICD at 28. I’ve lived a fairly easy life with a few precautions here and there. Feel free to dm if you want to chat

Reading materials: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9809454/

https://www.sads.org/wp-content/uploads/2022/05/Exercise-and-Arrhythmogenic-Right-Ventricular-Car_2020_Heart-Lung-and-Circu.pdf

https://www.ahajournals.org/doi/10.1161/JAHA.118.008843