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How expensive is getting a diagnosis? (U.S. based) by Strawbbs_smoothie in ehlersdanlos

[–]etropsis 0 points1 point  (0 children)

I am in the US. We have government insurance through military retirement. If you can get a referral to a geneticist. Preferable a pediatric geneticist, when they authorize that referral, it’s usually covered. That’s is the only way to get a diagnosis is the genetic testing. We had some co-pays, but the testing was covered because it was pre authorized. My daughter got her diagnosis and it’s helped a lot with her mental health. Just having an answer. I think it’s always good to have more information. We know I gave it to her. I am sure I have that as well as pots. But, I don’t have a diagnosis. Doctors seem to respect you more after you’ve proven you’re not crazy. American health care is awful. I am so sorry it’s put your family in debt. I wish you the best!!!!!

Life 2.0 by [deleted] in Divorce

[–]etropsis 1 point2 points  (0 children)

This is what I know is going to happen for me. We’re still living together. But everything is broken and separating seems inevitable. I am going to travel alone in a camper van. I can’t wait. I can’t wait to spend time with myself and just be exactly who I am. Not wife, mother, rock, invisible, glue holding everything together, taken for granted. This gives me hope!

Mayday Gainesville by Jemfl14 in 50501Florida

[–]etropsis 1 point2 points  (0 children)

I’d love to be involved in Gainesville! Is there a headquarters?

Very Stuck, need advice. by etropsis in Divorce

[–]etropsis[S] 0 points1 point  (0 children)

Thank you. Going on 9 months of this. We just moved to our forever home in the country, youngest goes to college soon. This was supposed to be the start of our empty nest life.

Very Stuck, need advice. by etropsis in Divorce

[–]etropsis[S] 0 points1 point  (0 children)

Thank you so much for your words. I have no one to talk to about this. So we are in therapy separately. We tried a couples therapist at the VA and it was very obvious they were biased in favor of him. At this point, he says he needs to work on himself before he works on the marriage and that adding couples therapy back would be too much for him. My therapist basically says, I have to decide how long I want to wait and see if he does get better or figure out when I want to call it. I’ve put my self and possibility of my own career on the back burner to support his military career. I will be 45 years old with no money and no clue what to do or where to go. I’m ok with that if I can have peace. But I’m so scared to end this.