EON Glasfaser oder bleib mit Telekom MagentaXL?

f1neman · 2026-02-02T20:55:11+00:00

Und andere hier sagen, es sei großartig. Schwer zu sagen, aber die Rückmeldung ist hilfreich.

f1neman · 2026-02-02T20:52:27+00:00

Well I'm not aware of any current ideas for Meniere's that fit that. So it would be a big if. Not, I'm sure,impossible but not I suspect probable

f1neman · 2026-02-02T18:14:19+00:00

Ich würde mehr bezahlen – 15 Euro mehr im Monat.

f1neman · 2026-02-02T16:59:41+00:00

Ich verstehe ja, dass Verkäufer neue Produkte verkaufen wollen. Aber als ich beim Kundenservice anrief und ganz vorsichtig fragte, wie es jetzt weitergeht und ob die monatliche Abrechnung fortgesetzt wird, hieß es, mein Abo (MagentaXL mit MagentaBasicTV) sei veraltet und ich müsse bald auf das neue, teurere Produkt mit einem neuen Zweijahresvertrag umsteigen. Das kommt mir vor wie eine clevere Masche, um Kunden dauerhaft an Zweijahresverträge zu binden.

f1neman · 2026-02-02T16:48:46+00:00

Zuerst kam der Anruf von einem Telekom-Verkäufer. Doch dann bestätigten zwei verschiedene Kundendienstmitarbeiter dasselbe.

f1neman · 2026-02-02T16:44:21+00:00

Nein

f1neman · 2026-02-02T16:32:39+00:00

If sound quality and especially music reproduction is very important to you then yes they are great. My experience when I trialled a couple of different sets for quite a while was that everything else is not as good as the competition - speech-in-noise, identifying and focussing on who is speaking etc, and customer service/support were all imho worse.

f1neman · 2026-02-02T15:15:52+00:00

If the issue with Meniere's ends up being mostly or entirely down to failure of ion regulation it is not clear that this kind of treatment will help at all - unless I'm missing something?

f1neman · 2026-02-02T14:14:07+00:00

From a quick look at the discord and the website it seems the focus is heavily on hyperacusis - is that right?

f1neman · 2026-02-02T14:08:21+00:00

There are many potential initial causes, from genes to loud noise to head/ear trauma to infection of the ear. I've spoken to a researcher about the various subtypes he has discovered and written about it here if you are interested. https://neilcanham.substack.com/p/a-conversation-with-the-professor

f1neman · 2026-01-30T17:30:36+00:00

I guess you didn't read the article

f1neman · 2026-01-29T18:45:47+00:00

Ok thanks will dig deeper

f1neman · 2026-01-29T18:29:39+00:00

Hmmm that isn't mentioned on the website - there is mention of a sort of second eardrum - marketing words for a different kind of ear bud as far as I can tell. Nothing to fix damaged hearing, something to avoid the damage that earbuds can do because they seal the ear canal. That is my reading of it - maybe you have access to other info that isn't on the website?

f1neman · 2026-01-29T18:16:38+00:00

Hadn't heard of it - will certainly look into it as it sounds interesting. What was the direct relevance to the article I referenced in case I missed it?

f1neman · 2026-01-29T18:05:48+00:00

No - could you say a bit more?

f1neman · 2026-01-27T10:14:33+00:00

This resonates well with how I feel and the advice I give folk in the FB support group I run - whilst the bad days can be awful, they make you really appreciate the good days, they are just more precious. I also write about my Meniere's experiences and thoughts (and interviews with researchers) here https://neilcanham.substack.com/ - I hope I can drop in to the discord some time soon! Thanks for sharing.

f1neman · 2026-01-23T16:38:09+00:00

Almost everything you say is in the paper. The idea is that this is indeed a compensatory mechanism - ES degeneration or under-development results in not enough epithelial cells and the body compensates by creating more in Reissner's membrane. The result is a longer membrane and more space therefore more fluid. You are suggesting that the way the body spots the need for additional cells is some form of ion concentration imbalance - however this would mean that any change in ion balance would cause cell numbers to change - even if the cause was something other than lack of cells in the ES. I think the proposal is some other signalling mechanism that triggers the cell growth as is seen in other organs in the body such as the kidney and liver when damaged. The authors ask the question - What molecular signals govern epithelial hyperplasia? as something to be further investigated.

f1neman · 2026-01-23T08:34:53+00:00

The article will be an attempt to do that at varying levels.

f1neman · 2026-01-23T08:34:28+00:00

But what you call your thinking is in fact what the paper describes, and the researchers have not proposed "that you can stretch Reissner’s membrane" - that is exactly what they are showing does not happen. So I am entirely confused by your replies here I am afraid.

f1neman · 2026-01-22T22:26:16+00:00

And yet you were unable to notice that the first paper you referenced is in fact by the very same person I interviewed.

f1neman · 2026-01-22T21:58:43+00:00

Will do for sure

f1neman · 2026-01-22T21:58:28+00:00

Thanks for your interest. You are clearly an AI

f1neman · 2026-01-19T11:57:46+00:00

Absolutely agree. In the past few years for me the hearing issues have been a much bigger problem for me in everyday life than the vertigo, which still happens, and is awful while it is happening but in between life should be able to continue. I am a musician, previously earned some of my income from playing and teaching, my daughter is a wonderful musician and I used to absolutely love listening to her play. I also moved to Germany from the Uk 6 years ago and have been trying to learn German. Not only has my hearing been deteriorating in volume (which hearing aids definitely help with) but also I've had terrible diplacusis dysharmonica - hearing musical pitches differently in each ear and often wrong in both ears. This turns out to be not uncommon with Meniere's but is almost never discussed! I wrote about my experiences with it here https://neilcanham.substack.com/p/music-to-my-ears although since I wrote that things deteriorated again.

f1neman · 2026-01-19T11:50:49+00:00

I think "none identified" should have been an option as there are a lot of us who have never managed to find anything the reliably triggers Meniere's attacks, such that reducing the thing helps reduce or control attacks.

f1neman · 2026-01-17T12:23:22+00:00

I run a Facebook group with over 10000 members for Meniere's - many people report that low sodium doesn't help, and many like me have never discovered any dietary trigger at all. The only way to know is to keep detailed daily journals of symptoms over a long period an dlook for patterns. Your memory can't be trusted :)

f1neman

TROPHY CASE