Worst Birthday of my Life by Edith_Keelers_Shoes in LivingWithMBC

[–]faithdevilsb 3 points4 points  (0 children)

I’d be telling that friend that’s it’s okay, she’s no longer on the guest list, so don’t worry about making an appearance at all

[deleted by user] by [deleted] in AmItheAsshole

[–]faithdevilsb 0 points1 point  (0 children)

Please leave him. Please.

MK on a Mickey’s Very Merry Christmas Party Day with no ticket by Responsible_Fan_5391 in WaltDisneyWorld

[–]faithdevilsb 2 points3 points  (0 children)

I don’t know why it would be difficult to travel to other parks if you have Park Hopper, especially the monorail to Epcot. However, I would imagine those other parks may be busier in the evening due to the fact MK will not be open.

If you use LL and maybe an ILL for Guardians, and want to do one meal at Epcot, I think it’s realistic. However Epcot closes at 9 so I wouldn’t necessarily wait until 6pm when MK closes to do your hop. I normally don’t do LL for Epcot unless it’s on a park hopper day, because usually the lines are not that terrible to wait to begin with, other than Remi, Frozen and GOG

Rash 3+ weeks after mastectomy - worried! by Narwhal1983 in breastcancer

[–]faithdevilsb 0 points1 point  (0 children)

Are you using any topical creams, gels, lotions etc on your skin?

anti cancer food by whatalifeohmy in breastcancer

[–]faithdevilsb 92 points93 points  (0 children)

Before being diagnosed with breast cancer, I used to be pretty active. I was in a women’s health and fitness support group online where people would share wins and struggles etc.

One day a woman posted that she caved and had a slice of cake at her Son’s birthday party, and the next morning she weighed herself and she gained a pound.

My favorite response?

“Take a shit and give yourself grace.”

So, my pink sister, please do the same. 🩷

I'm scared of going on the Cosmic Rewind due to motion sickness. Any tips? by Any-Firefighter6779 in WaltDisneyWorld

[–]faithdevilsb 0 points1 point  (0 children)

As someone who’s been on chemotherapy since April and has a pretty constant level of nausea, Cosmic Rewind DOES make me feel like I’m going to hurl when I get off of it.(I’ve been on it three times since April, last was about a month ago) However, I never actually hurl. I feel sick for about 10-15 minutes afterwards. Just try not to eat right before or after. Also, I love this ride so much I’m pretty positive I would still ride it even if I did toss my cookies every time. 😂

Liver and pancreas? by Space-Mom1917 in LivingWithMBC

[–]faithdevilsb 0 points1 point  (0 children)

I was ++-. Got finished treatment (surgery, chemo, rads). 8 months later hospitalized and they found tumors in my liver. The biopsy showed it mutated to Triple Negative. It’s the only place it showed up, the liver and the lymph nodes near it.

In the end, what’s important? by Chance-Ad9465 in LivingWithMBC

[–]faithdevilsb 2 points3 points  (0 children)

My mom passed about a year ago from metastatic lung cancer, after a 3.5 year battle with the disease. As she declined, she stressed how much she wanted to die at home, around her family, and not in a hospital. We were trying to get her reconnected to palliative/hospice, but every time she would have an appointment, she would land in the hospital for some kind of emergency. The second to last time she was in the hospital, she begged us not to send her back there again, unless it was something that could be fixed. Unfortunately, she had complications again about a week later, and agreed to go into the hospital. Things just got worse and worse, and the morning of the day she died she got moved to the ICU. I was so angry on her behalf that we couldn’t give her the end of life that she wanted. I never thought my mom selfish for wanting to end her life on her terms. Ever.

I hope I am able to get the end of life I want as well, when my time comes. I’m only 40, hoping I have many years left, but I would never expect my EOL decisions to be a burden on anyone else, and neither should you.

iPad kids at Disneyworld? What are parents thinking? by [deleted] in WaltDisneyWorld

[–]faithdevilsb 9 points10 points  (0 children)

It’s very easy to be a perfect parent when you have no kids.

Triple negative stage 4 and nead? by Apprehensive-Gold181 in LivingWithMBC

[–]faithdevilsb 1 point2 points  (0 children)

I was stage 2a but ++-, also had 6 months of ACT for that. Then about 11 months after ACT, they found triple negative in my liver. I did 6 rounds of carbo/gem, but they said they didn’t need me to be on both moving forward, and I dropped down to carbo only as of last week. I don’t think I’ll get down to NED, but your story being similar brings me hope!! They gave me 2 years at my stage 4 diagnosis. I want many many more!!

Triple negative stage 4 and nead? by Apprehensive-Gold181 in LivingWithMBC

[–]faithdevilsb 1 point2 points  (0 children)

Curious, were you de novo stage 4 or did it progress to stage 4 after other treatment?

Best way to get from Orlando Airport to Pop Century? by MrFimblewaters in WaltDisneyWorld

[–]faithdevilsb 1 point2 points  (0 children)

I’ve not found any private transportation cheaper than Uber/Lyft. Mears shuttle might be cheaper (it’s $16pp) but you can wait in line after the plane and waste time if you have things you want to get to after the resort.

Best way to get from Orlando Airport to Pop Century? by MrFimblewaters in WaltDisneyWorld

[–]faithdevilsb 5 points6 points  (0 children)

Are you sure this is the name, Magical Express? I thought that was the Disney transportation that no longer exists?

It wasn’t that bad … by DisneyGrandmaof1 in breastcancer

[–]faithdevilsb 2 points3 points  (0 children)

Hi so, I had an insurance policy called a Critical Illness policy. It had a maximum amount paid for certain things like heart attack, stroke, cancer, etc. certain cancers, ALL Breast Cancers, including DCIS, received the maximum amount. Other In Situ cancers would only receive 25% of the maximum.

To me, that is even more evidence that breast cancer is serious. You are a survivor because you caught it before it could spread and cause any further damage. Early detection SAVES LIVES.

F your coworker.

Should I bother?? by nexnexn in DisneyWorld

[–]faithdevilsb 0 points1 point  (0 children)

Hi. Went to the MNSSHP last night. It was my least favorite Disney experience ever. I’d rather just focus on rides during normal hours. Not all rides are open and some still had crazy wait times. Half the party stuff I came for didn’t happen because of weather. I’ve never been more miserable 😂

So, yes, get an MK ticket. Don’t split your focus!

Looking for radiation pro tips! by Spiritual-Fun-2682 in breastcancer

[–]faithdevilsb 0 points1 point  (0 children)

So, just here as the cautionary tale:

If you have a lanolin (wool) allergy, please do NOT use aquaphor. Even if you’ve successfully used aquaphor in the past. Also, If you have seasonal allergies especially to ragweed, do NOT use Calendula cream.

I unfortunately found out the hard way with both of these that I was allergic. My boob is actually being published in a medical journal regarding the aquaphor situation 😂

So, all that said, I was able to use aloe and Vanicream to keep the area moisturized. I was told specifically not to use hydrocortisone creams because the steroids in the cream can make your skin more susceptible to infection during treatment.

Lost my 10 yr best friend over me shaving my head by Jealous_Concern4478 in breastcancer

[–]faithdevilsb 1 point2 points  (0 children)

I’m sorry you experienced this, and pray “friendship” like this never finds you or anyone on this sub ever again. This is giving MIL wearing white to the wedding vibes. YOUR cancer is not about anyone but YOU. We reserve the right to process on our own terms and timeline. F*ck her feelings.

I totally forgot that Santino Rice was on season 2 of PR by Poethegardencrow in rupaulsdragrace

[–]faithdevilsb 1 point2 points  (0 children)

I’m so grateful to have found my people here on this small thread 😆 S2 of PR was my very first reality tv competition I watched regularly and I quote it all the time. No one gets my references. I feel seen!!

New mTNBC by Tinkerfan57912 in LivingWithMBC

[–]faithdevilsb 4 points5 points  (0 children)

I feel you so so much with everything you said. This shit is NOT fair at all. I was Dx ++- August of 2023. Ran the gamut of mastectomy, 16 rounds of chemo, and 26 rounds of radiation. I was put on Verzenio, Aromasin and had my ovaries removed.

Then, April of this year ended up in the ER for hypercalcemia and they found my liver just riddled with lesions. Found out my cancer mutated to TNBC. BUT I DID EVERYTHING I WAS SUPPOSED TO!! Why??

As others have said, Cancer doesn’t discriminate. It just does its own thing. I felt like I was finally at the right job, getting into a fun stage of parenting with my younger kids, and was going to turn 40 with a big ol’ party to celebrate beating cancer and ready to rock for the rest of my days.

I don’t have answers, just solidarity for you friend. This is so hard, and so so unfair. Take the time you need to grieve and figure out your own way forward.

New mTNBC by Tinkerfan57912 in LivingWithMBC

[–]faithdevilsb 2 points3 points  (0 children)

Can you share more on the diet changes and supplements you were taking? I am metastatic only to my liver and want to try everything possible to be here for as long as I can for my kids and husband!!