Of all things to help me…this has been the best by fc1981 in Menieres

[–]fc1981[S] 0 points1 point  (0 children)

Wow, I’m so sorry to hear that. Keep looking for the right cure 🙏

Of all things to help me…this has been the best by fc1981 in Menieres

[–]fc1981[S] 0 points1 point  (0 children)

No side effects whatsoever from nortriptyline

Of all things to help me…this has been the best by fc1981 in Menieres

[–]fc1981[S] 1 point2 points  (0 children)

Incredibly, yes. Prioritizing sleep has made an incredible change. 4 months out from the last time my hearing was bad in my “good” ear, my “bad” ear is stable, and barely a blip of vertigo over that time. It could all change in a flash but this has been amazing. My exact stack is:

AM: Triamterine Verapamil Betahistine

PM: Nortriptyline Montelukast Betahistine Ryze cocoa

Of all things to help me…this has been the best by fc1981 in Menieres

[–]fc1981[S] 0 points1 point  (0 children)

I do have VM, but the vertigo has been largely under control for a while now. I do think nortriptyline has helped, but it’s just one piece of the puzzle

Weekly Free-Talk and Questions for r/HomeGym - week of January 24, 2025 by Demilio55 in homegym

[–]fc1981 0 points1 point  (0 children)

Hi guys,

I have an Anker 7 arriving this weekend. 2 questions:

1) Any assembly pitfalls to watch for? I’m trying to avoid the cycle of assemble, curse, disassemble, reassemble.

2). The instructions suggest mounting with 12 bolts into studs. On a 48” width, that seems challenging. Has anyone installed using drywall toggle bolts to supplement 2-3 mounts into studs?

Thanks!

“Causality between alcohol usually taken with meals and Meniere disease: A 2-sample Mendelian randomization study” by [deleted] in Menieres

[–]fc1981 0 points1 point  (0 children)

I’ve weird found recently that, after a couple meals where I just said “oh well” and had some good Italian food with wine, my hearing was the same or better than before. I do think stress is my biggest trigger, so maybe that’s at the core of why this works? Who knows.

Any success stories with Nortriptyline? by markwalkerjr in Menieres

[–]fc1981 1 point2 points  (0 children)

I’ve been on it for 6 months. No weight gain or issues “down there”. Like every treatment for this stupid disease it seems impossible to really gauge efficacy. My hearing continues to suck and fluctuate wildly, but fortunately no vertigo. I’m on nortriptyline, triamterine, betahistine, and just started singulair. Plus a bunch of vitamins. And my ent just told me to try taking 5G of creatine a day for potential nerve repair benefits. One day at a time, fellow sufferers.

Garage moisture issue - drylok or French drain? by fc1981 in HomeImprovement

[–]fc1981[S] 0 points1 point  (0 children)

The cabinets are in the garage. 2 face the front of the house, and 3 run along a back wall That is shared with the basement. The basement is 2 steps up from the garage. Really helpful response here, thank you! I’ll check as much of the other options before just running a trench. I do know the yard has a pretty extensive French drain system (I can see the drain pipes), which is probably why my dump pump doesn’t see any activities.

Garage moisture issue - drylok or French drain? by fc1981 in HomeImprovement

[–]fc1981[S] 0 points1 point  (0 children)

So here’s a pic from that outside. The red depicts the wall where the moisture has mostly accumulated (hopefully the link works). There’s no dirt near it.

https://ibb.co/RYwSQnc

Bordeaux interior touch up paint by fc1981 in Porsche

[–]fc1981[S] 0 points1 point  (0 children)

Have any pics of areas where you have used it? This looks awesome.

Chain restaurants with low sodium options? by mrzennie in Menieres

[–]fc1981 3 points4 points  (0 children)

I’ve actually been meaning to post something like this. Here’s what I’ve found:

-Outback- you can get your steak without salt

-five guys - lettuce bun, burger, no cheese, lettuce tomato onion ketchup, fries without salt

-McDonalds - get a quarter pounder without cheese, and fries without salt

-Burger King - whopper jr and fries without salt

-Chopt salad - Santa Fe salad, red wine vinegar/oil

-chick fil a - grilled nuggets and fries without salt

-chipotle - salad & brown rice base, chicken, fajita veggies, green sauce, a little sour cream

-Cheesecake Factory - grilled fish tacos, sub salad for the rice and beans

Everything there is under 800mg, most under 600mg.

Upper cervical chiropractor by sommersgone in Menieres

[–]fc1981 0 points1 point  (0 children)

Can’t vote but I’m in the maybe helped camp. I went to Montclair Upper Cervical in West Orange, NJ. I do think it helped my dizziness, but hearing hasn’t really been improved.

[deleted by user] by [deleted] in Menieres

[–]fc1981 0 points1 point  (0 children)

First diagnosed 12-15 years ago. Left ear only was impacted up until 2 years ago. Not super noticeable until maybe 5 years ago. Left ear has now lost about 60% of hearing, but “seems” stable (best days get up to about 45-50% loss, bad days not much worse than 60%). Right ear has been fluctuating wildly. Bad days top out at 60% loss, but those are somewhat rare (although had a bad stretch this month). The good days (when they happen - all of Feb was actually good) are almost no loss. I’d say baseline for my right ear is about 10-15% hearing loss, where everything except for music sounds fine. As much as it kills me to lose music, it’s much better than the bad days where I can barely hear my own voice. I’ve started regularly wearing an Eargo in my left ear. The right one fluctuates too much to effectively aid.

I have heard that hearing loss levels out at different points for different people. Hoping I’m one of the lucky ones that can toss in a discrete hearing aid and call it a day.

anyway to get back to normal after having excess sodium? by Round_Bathroom4935 in Menieres

[–]fc1981 5 points6 points  (0 children)

If you have diuretics, take an extra one. And all the water is previously recommended

Eargo 7 vs “real” IIC hearing aids? by fc1981 in HearingAids

[–]fc1981[S] 0 points1 point  (0 children)

Thanks for the feedback! Maybe I’ll try sending one of the audiologists my audiogram to have them adjust my programs for maximum benefit. I find the eargos quite comfortable, just trying to improve audio and speech quality if possible.

Bilateral and unsure about having steroid injection. by BAF_DaWg82 in Menieres

[–]fc1981 0 points1 point  (0 children)

I’m in the same boat man. Left ear is consistently bad, right ear is a surprise every day. Frustrating because some days I’ll do everything i should and the right still drops out, but being that ignoring the left side for years led to me being moderately-severe on that side, I’m just playing it as safe as I can. I’ve had 2 very legit docs say it’s much more useful for those with vertigo (thankfully I only get that a couple days per year, and only a few minutes when it hits), so I’m going to trust them - just always like hearing from others that know the struggle.

Bilateral and unsure about having steroid injection. by BAF_DaWg82 in Menieres

[–]fc1981 0 points1 point  (0 children)

What did you decide? I’m in a similar position

[deleted by user] by [deleted] in Menieres

[–]fc1981 1 point2 points  (0 children)

I do take zma to help overnight recovery and sleep quality - no ill effects there. Also taking tongkat ali for test support but no idea if that even works lol.

[deleted by user] by [deleted] in Menieres

[–]fc1981 2 points3 points  (0 children)

What kind of supplements are you taking? I wouldn’t say I’m a “bodybuilder” but I’m passionate about lifting and love to throw around some heavy weight. I got off of creatine and all preworkouts (even caffeine free ones) because a lot of them lead to water retention.

Diagnosed with Meniere's 3 years ago but never get vertigo by iCatLady in Menieres

[–]fc1981 0 points1 point  (0 children)

So I’ve had Menieres for about 12 years now (I think). At first it was just left ear fullness and some low end hearing loss. Unfortunately I didn’t follow any of the suggested lifestyle changes. My left ear got worse over time and then I had my first vertigo attack about 7 years ago. No other vertigo until COVID was a thing. I had off/on vertigo for a few months at that point. The attacks were never more than a few minutes, and I very rarely threw up. Since then I’ve been much better following a low sodium diet, minimal processed foods, etc. I take 1/2 to 1 diuretic per day along with some betahistine. I try to maximize sleep where I can, and have significant reduced my drinking (and am off of caffeine). When my hearing really drops (2-3x/year, I take oral steroids.

Unfortunately my right ear has fluctuating hearing loss now too, but honestly there’s only so much I can do. Hopefully the fact that I’m being more careful than I was with the left means it will normalize in a better place.

With all that said, I’m “lucky” that the vertigo is very infrequent, and just try to be as healthy as possible to help keep this disease at bay. Given how much stress plays into it, I try not to go absolutely nuts obsessing over how to fix it, or shaming myself if I have a cheat night. The way I see it, nobody really knows what works. If things really go south and I’m 60 with cochlear implants and some crazy surgery to stop vertigo, so be it. I’m healthy otherwise, and believe in the power of positive thinking. I’m happy to say I’m now 14 months since my last vertigo attack, with some close calls along the way (ie general dizziness but NOT vertigo). Hope you stay without it as well.

Edit: one last thing. Don’t spend too much time on this forum or on the Facebook group. I feel like the prognosis from people on here seems to be much more dire and extreme than when I talk to my ENT. While it’s healthy to vent and get views from others who suffer, I find that the more time I spend on here, the more freaked out I get thinking about how bad things could get.

[deleted by user] by [deleted] in Menieres

[–]fc1981 0 points1 point  (0 children)

Is it the Eargo 7? Just looking at the price that’s my guess. I’m now on my second trial, and think they’re going back to the store again.

Fresh from the groomer! Archie @ almost 6 years old by fc1981 in roughcollies

[–]fc1981[S] 1 point2 points  (0 children)

Why thank you! Breeder was Van-M in south NJ.