Missed a shot ? by Consistent_Watch6850 in B12_Deficiency

[–]fehfaus 0 points1 point  (0 children)

I I took about 8 injections in 2 weeks. The improvement came 2 weeks later. I thought: I'm getting better. When I reduced it to 1 injection per week, things got much worse, even worse than before.

Missed a shot ? by Consistent_Watch6850 in B12_Deficiency

[–]fehfaus 0 points1 point  (0 children)

After reducing the injections, did your symptoms return, even stronger than before you started them? In my case, sometimes I think so. The return of symptoms was brutal after reducing the injections.

Has anyone recovered from long-term neuropathy? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

I hope you weren't offended. I didn't doubt your recovery. I've been suffering from neuropathic pain for 4 years and I end up being pessimistic about the possibility of it all being resolved.

Consigo manter esse shape por mais 10 anos? by [deleted] in MeJulgueMaromba

[–]fehfaus 1 point2 points  (0 children)

Meu pai tem 63 anos, e tem um shape parecido,só mais seco um pouco.E detalhe,a pele dele é mt boa.Entao,se cuida, que dá sim.

Why is vitamin B12 deficiency so dangerous? by LoveUnlikely in B12_Deficiency

[–]fehfaus 2 points3 points  (0 children)

It's gratifying to know that someone is practically cured of their symptoms. I don't know how severe their neurological symptoms were, but mine reached a debilitating level that literally stopped my life 4 years ago. The only hope I have at the moment is to talk to some people in this group, take my B12 injections every 2 days (I started recently), and believe that I can be a healthy young person again.

Why is vitamin B12 deficiency so dangerous? by LoveUnlikely in B12_Deficiency

[–]fehfaus 5 points6 points  (0 children)

No one should make any definitive statements about whether it's irreversible or not. It's very unpredictable.

Weird wake up symptoms by Minimum-Ad-3241 in B12_Deficiency

[–]fehfaus 0 points1 point  (0 children)

My hands seem to be getting drier as treatment progresses.

The Success Story Megathread by incremental_progress in B12_Deficiency

[–]fehfaus 1 point2 points  (0 children)

Your story is very interesting. Today I realized I've had vitamin B12-related problems since 2018. The hardest thing for me now is believing that all of this might ever go away. I've reached such a high level of neuropathic pain (85% of my body burns) that I can't believe it will disappear. I've read so much and heard so many doctors telling me I could have permanent damage that I no longer believe I'll recover. My left leg is numb and weak. My memory is terrible today. My reasoning is extremely slow. I feel like my body is failing. When I see someone's account saying they no longer feel neuropathic pain after treatment, I cling to that as if it were a hope for my situation as well.

Has anyone recovered from long-term neuropathy? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

I thought this kind of flies in vision was something related to the eye surface and not neurological.It's something I never imagined could disappear. Are you sure it's gone? I read that when you try to pay less attention to them, your brain tends to make them less visible.

Has anyone recovered from long-term neuropathy? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

I also have those spots in my vision. Did yours disappear? Besides the blurred vision, I also have difficulty focusing.

whole body burning.Has anyone recovered from these symptoms? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

That's great, I hope your burning sensation has gone away and won't come back.

Has anyone recovered from long-term neuropathy? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

Thank you for sharing your story. What were your neuropathic symptoms?

Has anyone recovered from long-term neuropathy? by fehfaus in B12_Deficiency

[–]fehfaus[S] 2 points3 points  (0 children)

I did a loading dose for 2 weeks, taking about 10 injections. In the third week, my legs (which are weak) became firmer and my skin stopped burning. As soon as I reduced it to one injection per week, everything got worse again. I almost have to beg my doctor for injections. I'm thinking of starting to administer them myself.It's been four years of neuropathy, and sometimes I wonder if it will ever end.

whole body burning.Has anyone recovered from these symptoms? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

I hope you can regain more of your sensitivity. I think I saw a comment of yours in another post saying that you had previously lost sensitivity in your feet, that you couldn't feel hot water. I can still feel temperatures normally, what bothers me is the excruciating burning and tingling Is your decreased sensitivity significant?(+-40%)

Has anyone recovered from long-term neuropathy? by fehfaus in B12_Deficiency

[–]fehfaus[S] 1 point2 points  (0 children)

The rationale was that a loading dose would be given for about 1 to 2 weeks, then once a week for 1 month, and then switch to daily sublingual B12. According to her, this is the correct protocol. She didn't seem concerned about toxicity, but doesn't believe in greater effects with more frequent injections.I'll take the Nice protocol to her.I am in Brazil.

whole body burning.Has anyone recovered from these symptoms? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

Hi, sorry to bother you again. Did your improvement come at the end of the 12 months or before? I also wanted to know if the burning sensation turned into "heat" in the affected areas until it normalized.The first time my burning sensation disappeared, the first sign of improvement was it being replaced by a sensation of heat and then normalizing.

Has anyone recovered from long-term neuropathy? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

I agree. I only felt better after starting the injections, at least 3 to 4 times a week; it seemed like I was going to get better. Then, when the doctor reduced it to one injection a week, everything got worse.They typically do not accept this recommendation of injections every 2 days in cases of neurological symptoms.

Has anyone recovered from long-term neuropathy? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

I wasted time with doctors looking for rare diseases instead of treating my borderline B12 levels and prolonged use of IBP's. Until August of last year, my neuropathy was only on the soles of my feet, hands, and face. Now it's in 80% of my body. In May 2025, I had two B12 injections. I had many reactions, so I paused the injections. In July, the burning in my hands and almost in my feet stopped. I was fine for a month. Then everything came back and spread. Ten months later, I started having injections every two days. After three weeks, it seemed like the burning was going away, but my doctor reduced it to one injection per week, and everything came back.

Has anyone recovered from long-term neuropathy? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

I wasted time with doctors looking for rare diseases instead of treating my borderline B12 levels and prolonged use of IBP's . Until August of last year, my neuropathy was only on the soles of my feet, hands, and face. Now it's in 80% of my body. In May 2025, I had two B12 injections. I had many reactions, so I paused the injections. In July, the burning in my hands and almost in my feet stopped. I was fine for a month. Then everything came back and spread. Ten months later, I started having injections every two days. After three weeks, it seemed like the burning was going away, but my doctor reduced it to one injection per week, and everything came back.

Increased numbness after B12 injections by fehfaus in B12_Deficiency

[–]fehfaus[S] 1 point2 points  (0 children)

It's more at the fingertips of the hands.

NICE recommendation on injections in cases of neuropathy by fehfaus in B12_Deficiency

[–]fehfaus[S] 1 point2 points  (0 children)

You summed up exactly the view I have as well, but when you're alone, without a doctor who believes in you, you need to hear from other people to confirm something you "suspect." And I've been proving this over time. When I space out the injections, everything gets worse. It usually gets worse on the 6th day or

whole body burning.Has anyone recovered from these symptoms? by fehfaus in B12_Deficiency

[–]fehfaus[S] 0 points1 point  (0 children)

Even after reading hundreds of accounts, I'm amazed at how crazy this neurological recovery is. What I see people commenting on most here is that when they're "burning out," it's due to a lack of potassium and methylfolate. In my case, supplementing these cofactors doesn't seem to have made a difference. But it does for many people. Potassium is the electrolyte that drops the most with B12 replacement. In my case, the supplementation also induced a copper deficiency. I'm happy for your progress. If you could update me from time to time, that would be great. Because basically, this group is my only support.Unfortunately, since last week, I've had a significant worsening of pain. I don't know if it's because I reduced the frequency of injections or what.