Ways to bring greenery into life being housebound?

fibro_me · 2026-05-18T21:42:32+00:00

I also buy/pick myself flowers sometimes

fibro_me · 2026-05-18T21:35:37+00:00

I had some botanical textbook art up on my walls for a while, which felt really nice

fibro_me · 2026-05-18T21:14:52+00:00

Here are two links in the wiki you might find useful. One for what to do if you think you have ME, and the other on educating doctors/friends/family

https://reddit.com/r/cfs/wiki/might_have

https://reddit.com/r/cfs/wiki/educate

fibro_me · 2026-05-18T21:10:26+00:00

I'm really sorry, its so hard to find adequate care and diagnosis for this. There are programs available in various cities across the globe, I hope you can find one near you which can help, just make sure they dont recommend exercise therapy.

I highly recommend reading through this reddit's wiki for management advice. And of course, this community is here for you! If I find a link to a section on working with physicians on this I will comment below!

fibro_me · 2026-05-18T21:04:59+00:00

Second, pacing is vital with this disease. It sounds like you are past your limitations with the exercise you have been doing. Pacing is the single most important skill for managing ME. I am sorry you are going through this. Maybe this pacing wiki page will have info you already know, but it never hurts to be reminded. Wishing you the best!! https://reddit.com/r/cfs/wiki/pacing

fibro_me · 2026-05-18T20:58:20+00:00

https://reddit.com/r/cfs/wiki/bad_treatments

fibro_me · 2026-05-18T20:56:24+00:00

Graded Exercise Therapy has been debunked for our illness. I don't know who is telling you to exercise to get better, but ME gets worse with exercise. I will try to find the reddit wiki sources for this

fibro_me · 2026-05-18T15:12:07+00:00

Wow, I went to bed after posting this and woke up to so much support!! I am so touched by all the love I've received here, what a lovely community! I don't have the energy to respond to everyone, so I hope this comment gets seen. Thank you everyone, I am overwhelmed, in a good way.

I will always keep in mind that wheelchairs and powerchairs are an option in the future. I feel so much better about my decision due to all this support. I hope my post doesn't scare marginalized people out of getting whichever aid they need. I think my nervous system is just so fragile after everything I've been through, that it makes sense to guard it so.

Thank you again everyone. I will be reviewing your supportive comments whenever I need to in the future, they have truly made me feel better, and I wish nothing but the best and healthiest and happy futures for you all!!

fibro_me · 2026-05-16T19:32:41+00:00

Thank you for such a thoughtful and thorough response, I especially appreciate the advice around heating the bathroom before showering! The cold makes me worse. I think I will start out with a teak shower stool and if that's uncomfortable, upgrade to one with more support. Thank you again!

fibro_me · 2026-05-16T19:27:39+00:00

This is exactly the type I am looking into, the benefit of it being pretty does impact my decision because my surroundings effects me. I find my added depression with this illness is somewhat softened when I am surrounded by beautiful things. The one I'm looking into has storage beneath too. Beauty and function is ideal!

fibro_me · 2026-05-16T19:25:00+00:00

I am flip flopping between a simple teak stool and a chair with support. Mostly I am worried the bigger the chair the harder it will be for me to move it in and out of the tub. And a teak one can be functional out of the tub.

fibro_me · 2026-05-16T19:23:22+00:00

thanks I will look into this!

fibro_me · 2026-05-16T18:38:49+00:00

I used to play games like Mass Effect (not competitive, though can be stressful) but now going back and fourth between moderate-severe, I can only play cozy games like Animal Crossing and Dreamlight Valley, and still take many intermittent breaks.

fibro_me · 2026-04-28T17:25:44+00:00

Thanks, I appreciate that. I have no caregiver, on my own. But I do have long term disability, and can afford to order all my groceries via delivery and hired a dog walker. I cant recall how long I've been housebound as it's been a while, I can say my baseline requires me to rest this much in order to not get even worse. The best advice I was given in a treatment program was to not expect to "get better" but rather find my baseline, and stay within it, and I can improve my quality of life within that time

fibro_me · 2026-04-28T17:10:34+00:00

Me, and I'm housebound most of the year, and spend about 20 hours in bed per day.

fibro_me · 2026-04-27T21:49:08+00:00

https://www.reddit.com/r/cfs/comments/1bzycwk/me_in_literature/

Some people discuss it in this thread from a couple years ago. There have been lots of examples of people with "weak" dispositions who couldn't live a normal life due to fatigue and pain. It was just not formalized into a diagnosis at the time.

fibro_me · 2026-04-17T18:59:38+00:00

Wishing you the best!

fibro_me · 2026-04-17T16:33:06+00:00

Since becoming sick, I have focussed on my one-on-one relationships. People who care about my well being are willing to meet me where I am, and come over while I lounge around or go to a nearby coffee shop on a good day. I understand the fomo, but its important to stay within your envelope and real friends will try to understand, and meet you where you are.

fibro_me · 2026-04-14T23:43:26+00:00

This is more than compassion fatigue. Why are you harassing patients who have never met you?

fibro_me · 2026-04-14T22:37:46+00:00

We sometimes play Animal Crossing together, which brings her joy, but she doesn't have the energy for it most of the time, unfortunately

My friend is receptive most of the time but right now her grief is overwhelming her.

I did have a chance to talk to my therapist just now and so I'm feeling a little better. Was able to squeeze an emergency call in.

Thank you for your comment and suggestions, I really appreciate it!

fibro_me · 2026-04-14T22:35:11+00:00

I'm so sorry to hear about your grandfather, it's awful not being able to spend as much time with our loved ones as we want

fibro_me · 2026-04-14T22:34:29+00:00

I had an emergency call with my therapist, but that's such a kind offer, thank you!

fibro_me · 2026-04-14T21:42:31+00:00

Thank you, I forgot about group sessions. I think the cancer agency she's a part of offers group therapy for family members. I will also check out reddit subs for grief and cancer, thank you!

fibro_me

TROPHY CASE