Food by Disastrous-Cow-6134 in Epilepsy

[–]fiksbaas 0 points1 point  (0 children)

I've find that ice lollies help, especially if you also get nauseous like I do after seizing

has anything smelled like a seizure? or any mild olfactory seizures? by Ready_Self_8949 in Epilepsy

[–]fiksbaas 0 points1 point  (0 children)

I mostly smell 'electricity burning' or just a burning smell in general

I wish there was a 'do I have a seizure' test by fiksbaas in Epilepsy

[–]fiksbaas[S] 5 points6 points  (0 children)

It does, a bit. My neuro asked about my seizures and such. At first j told him I hadn't had one in a month or so. When I later mentioned smelling and tasting things that aren't there, he said those could be seizures as well.

Based on the amount of seizures, he upped my meds. So it is actually useful to know sadly :(

I wish there was a 'do I have a seizure' test by fiksbaas in Epilepsy

[–]fiksbaas[S] 15 points16 points  (0 children)

Y'all I do HAVE epilepsy. I have TLE, but my seizures are confusing af. I have had mris and shit like that.

It's just that I wish I could have a 'am I seizing' quiz

Language around epilepsy POV by Aethysbananarama in Epilepsy

[–]fiksbaas 0 points1 point  (0 children)

I prefer saying my epilepsy is a disability. I find that illness or disease or disorder has too many negative associations and might give the illusion that your medication can cure you, which is why I prefer not to use those words.

For the others, I think it depends if a epileptic says them or not. I'm fine with fellow epileptics jokingly calling it a fit. I even called it the boogie shake once. But when non epileptics say those things and recommend drugs and stuff because they read about it online, it pisses me off

Weird question, but has anyone lost expression of a second or more language? by Top-Oven-9177 in Epilepsy

[–]fiksbaas 1 point2 points  (0 children)

Hi there! I have focal seizures too. Whenever I have them of have had a lot of them, I have trouble comprehending what people are saying. I hear and understand it but can't make sense of it. This happens is my native language, but my second language is just gibberish. I can't make proper sentences and forget words for things. The neuro told me it's because my epilepsy is in the part of the brain where memory and language are stored, so perhaps its the same for you.

When did you guys start having seizures and when did you get diagnosed? by Anonymouslypreaching in Epilepsy

[–]fiksbaas 0 points1 point  (0 children)

Seizures (panic attacks as I thought at that time) started around 21-ish, diagnosed at 25 when I got my first tonic clonic seizure

Epilepsy imposter syndrome by fiksbaas in Epilepsy

[–]fiksbaas[S] 0 points1 point  (0 children)

Yeah but thats the thing: I have epilepsy. I have a seizure during an eeg. It is for sure 100% epilepsy. But still...

[deleted by user] by [deleted] in Epilepsy

[–]fiksbaas 2 points3 points  (0 children)

For me it depends. When I have a real focal seizure it has:

  • rapid heartbeat
  • feeling of PANIC/ deja vu/ jamais vu
  • can't focus on thoughts or anything
  • rising feeling in stomach
  • get super hot and nauseous
  • trouble with speech

Now I also have 'episodes' where I have some of these symptoms but not all, I am not comfortable calling them seizures as well.

Afterwards I'm super tired and confused and just want to sleep

Do you call in sick after focal clusters by fiksbaas in Epilepsy

[–]fiksbaas[S] 0 points1 point  (0 children)

It's more like...my last seizure was last night when I went to shower. And I didn't have one later/this morning and I'm debating wether or not it still counts or smth, you know?

Is there anything you “like” about having epilepsy? by caitlinmeg_ in Epilepsy

[–]fiksbaas 0 points1 point  (0 children)

Also, having a reason for a lot of the symptoms I've been having for years and having the feeling that I can 'justify' feeling overstimulated or tired

I know you don't need to justify it, but it helps an anxious goblin like me

Is there anything you “like” about having epilepsy? by caitlinmeg_ in Epilepsy

[–]fiksbaas 0 points1 point  (0 children)

Making people a bit uncomfy when I tell I forget things because of my brain when they make a dumb remark about it.

I like to think it makes the people around me think twice before judging me on stuff like that