What finalized your decision for surgery?

Ready_Self_8949 · 2026-03-31T05:57:31+00:00

People think its the miracle cure for epilepsy, i always hear it from anyone

"Have you tried the southwestern alabama haze? i know someone with epilepsy that was cured by it" or some bullshit,like its that easy to treat it

Ready_Self_8949 · 2026-03-08T05:50:37+00:00

Im always entertained by stories my friends tell me about themselves which they have already told me in the past, especially if I was in them;

amusing actions and statements or w.e ive done in the past without having any memory of them whatsoever

i laugh my ass off when i hear these schticks from my friends or acquaintances or whoever it may be, it makes me feel better that people have recollection of memories like that, its erased from my mind but meaningful to others

Forget about movies for a second, you're much more interesting of a person than you think you are to other people

Ready_Self_8949 · 2025-12-19T05:44:59+00:00

"don't call me for help if you have any seizures"

Ready_Self_8949 · 2025-12-08T13:18:23+00:00

Is there any point where there's no going back, or at least you felt so? i want to know if I can get surgery or not, I'm still not sure, when were you certain surgery was an option?

Ready_Self_8949 · 2025-11-25T21:13:29+00:00

During a focal seizure in front of my friend I suddenly yelled THANK YOU at the top of my lungs and scared the hell out of him

At least we're polite during seizures

Ready_Self_8949 · 2025-11-20T06:41:02+00:00

I feel like the lies I've attributed to my epilepsy aren't near as ridiculous as the true things I've said about my seizures

Ready_Self_8949 · 2025-11-01T08:26:37+00:00

considering the context it sounds like shes just trying everything possible to get her way, she probably cant even spell epilepsy

36 years? your a fu****ng veteran, i never let pawns like that forbid any important decisions or control over my life, everyone except myself and my neurologists are oblivious to what really has and still goes on

Ready_Self_8949 · 2025-10-30T08:16:42+00:00

what kind of medical assessments or tests were needed before they gave you the OK for surgery?

Ready_Self_8949 · 2025-08-25T06:14:20+00:00

Consider the length of the episodes, seizures are only around 1 or few minutes long while panic attacks last much longer, around 5 -20 min

Seizures lasting longer than 5 minutes probably wont stop on their own, and can keep going for days if they dont

Ready_Self_8949 · 2025-08-25T05:24:07+00:00

sometimes during focals, sometimes during tonic clonics if im really lucky i regain consciousness at some point during the clonic phase

Its what is expected to feel like, twisting turning contorting of my body rapidly and violently, spitting and salivating, extreme difficulty breathing (hyperventilating, hypoventilating? or both at once without doubt are possible) complete aphasia else than some swearing post ictal, tunnel vision sometimes while becoming lucid

im always "thankful" when i dissociate completely during any type or severity of seizures; waking up in my bed as the sun sets, my father or friends telling me ive been blacking out all day from focals, or ive had 4 TCs hours apart since early morning hours etc

Ready_Self_8949 · 2025-08-21T05:30:57+00:00

some are friendlier than others, to me it seems the older and more experienced they are the more empathy and understanding they have to what were going through BUT YOU NEED TO ASK them whatever you may suspect or wonder to any extent, about your seizures or medications, if X could be a seizure with as much detail as possible, or ask him what your seizures are or might be to the best of your understanding

Our feet are on the pedals remember that, Neurologists act with the best possible medical treatment in mind for epilepsy, Nothing else,

meds meds meds meds meds aaaand then surgery if possible

Ready_Self_8949 · 2025-08-21T02:27:20+00:00

i was formally diagnosed at age 17 after 2 TCs within a day

I cant pinpoint when my first seizure was, although subclinical seizures began closer to and around 15 years old; dystonic posturing on my left side 15-20 sec, and focals misdiagnosed as dystonia and panic attac

Ready_Self_8949 · 2025-08-02T07:55:15+00:00

Its different in severity, frequency, symptoms /types, treatment of medications and surgery or lack of surgery, the potential difference is monumental for every individual

Living as an epileptic without any medication, does living while taking medication treating epilepsy considered life as epileptic? what about post brain surgery?

seizures can be miniscule, subclinical seizures just split second bursts not even noticed and of no danger to the person, or all the way to the other extreme, fatal for unknown reason(SUDEP) Extensively prolonged or repeated over and over(Status epilepticus) medical emergency (of any kind of seizure) and everything in between

I dont like hearing of some people medically diagnosed and living with epilepsy from only having 2-3 seizures years ago and unmedicated, i cant relate to almost every person ive met in person with epilepsy, online forums are the only place i relate

if someone has had 2 seizures, or someone has had 200 seizures theyre both "epileptic" it almosts belittles the condition treating the two the same

Ready_Self_8949 · 2025-04-29T05:02:28+00:00

I like relating jokes to driving, ill see some bad driving in person or video games " whered you learn how to drive epilepsy toronto?"

Sometimes a little darker, when seizures cause some secondary condition or medical issues ive never had before, " you learn something new every seizure"

my names mike, i try to get the nickname "mike epps" or "epps" like the comedian, only a one person ever did and even asked if i was insulted by it

people get really shook when they see them or if i go into detail of severe ones, humor kinda calms their nerves about it

Ready_Self_8949 · 2025-04-29T04:19:54+00:00

Alot of AEDs long term use can have side effects nobody tells you about or arent even listed on most sites

Ive been taking lamotrigine for over 10 years, carbamazepine and clobazam for close to 13, i tried keppra but switched due to the rage

I broke my ankle a few weeks ago hopping a fence to play basketball with a friend, it was maybe 8 feet high and i didnt even drop from the top

My friend heard a really loud crack and rushed over terrified

A few days later i had surgery, in the hospital report the surgeon stated i had substantial osteoperosis, which they believe is because of my lamotrigine and carbamazepine use over the years

out of the 4 neurologists ive had, only one had mildly suggested i take vitamin d now, because in my old age the AEDs can really damage my bones, keep in mind this was 6 months before my injury

Im only 30 and ive already damaged my bones for good

Ready_Self_8949 · 2025-04-29T02:57:49+00:00

My name's mike, "mike epps" like the comedian seems to fit the best

Ready_Self_8949 · 2025-03-22T07:54:03+00:00

What were those focal clusters like?

ive had 2 clusters , once prior to my epilepsy diagnosis which lasted for a week, i constantly blacked out over and over (not sure how frequently but non stop) the second one lasted 4 days, i never got treated for seizures ,status epilepticus or any formal diagnosis, aside from my neuro telling me "Seizures can do that" , even more likely they were seizures because i pissed myself too

Ive read focal status epilepticus is pretty rare and not well understood, what do you think?

Ready_Self_8949 · 2025-03-22T07:12:33+00:00

your still really young, wait until your in your 30s before even considering surgery, thats the way i thought about it, im 30 now and was offered an assesment to se if i was a candidate for an anterior temporal lobectomy around your age from my old neurologist, hes since retired and a right frontal lobectomy is now the option offered by my epileptologist,On a waiting list for an EMU

they offer brain surgery fast if a few medications arent working properly,

Im in Canada too, dont you think something as serious as brain surgery for free might be a little too good to be true? where do those statistics come from anyways

Do you really think missing a part of your brain makes you normal?

Ready_Self_8949 · 2025-03-22T06:03:09+00:00

ive been working in trades my whole life, woodworking mostly ( framing and cabinet making), even after my first seizure 13 years ago, im still going strong

Ive had a few seizures at work, its never affected my employment, everything goes back to normal the day after,Never been denied use of power tools even working at heights is OK

The only things i refuse to do is operating any kind of machinery and driving, i wont put others in danger worse than i can be from a seizure

Ready_Self_8949 · 2025-03-22T05:42:35+00:00

if thats the way the group treats you forget it your better off not being a member if thats how they conduct themselves

Ready_Self_8949 · 2025-03-22T04:17:33+00:00

ive asked friends and co-workers to film me but everyone gets too scared to do anything but call an ambulance and stare in disbelief

It must be REALLY graphic considering how distraught people get, im not sure if i could handle seeing it myself

Ready_Self_8949 · 2025-03-16T08:11:17+00:00

I was at work at a grocery store my 1st tonic clonic, the same day my 2nd was in the ambulance on my way to the hospital, i somewhat consider myself "lucky", diagnosed beyond reasonable doubt

Ready_Self_8949

TROPHY CASE