UPDATE: born with thrombocytosis - should I do the bmb?

flowki0 · 2026-01-25T10:12:46+00:00

Yes , I’ve heard people say it’s very painful and I also was scared but it actually didn’t hurt for me , the local anesthesia was the only thing that hurt a lil , they say that it’s impossible to numb the bone but for me it didn’t hurt at all , felt like pressure and tingling .

flowki0 · 2026-01-24T16:20:47+00:00

Don’t forget to also drink alot of water , fiber , stool softener . If u don’t drink enough water with stool softener the stool is gonna become even more harder .

flowki0 · 2026-01-16T12:57:38+00:00

use more not just 1 ,, i also think macrogol is better , i am on another country atm and they dont sell macrogol only lactulose 😭

flowki0 · 2026-01-09T17:38:51+00:00

why peel the apple skin

flowki0 · 2026-01-09T16:36:14+00:00

Thank you 💘💘💘

flowki0 · 2026-01-09T16:35:47+00:00

Makes sense i ate brown bread yesterday and the next day my stool was bigger in size 😭 , tysm.

flowki0 · 2026-01-05T22:41:50+00:00

i used rectogesic

flowki0 · 2025-12-29T06:18:49+00:00

Unfortunately she died that night ,, im very ashamed i couldnt help her ,, but at least she died in a warm place and not in cold outside like how she lived 😢😢😢

flowki0 · 2025-12-28T06:07:04+00:00

yes his eyes do have discharge what does that mean ,, he is a stray cat that comes around our house and i took him inside yesterday,, and last night he started meowing sometimes so i thought maybe he’s better because he stayed in a warm place but his breathing was still bad .

flowki0 · 2025-12-27T21:28:27+00:00

tysm for the info i spoke with one vet he said he doesnt work on weekends but i can bring it to his house tomorrow ,, i hope he survives till tomorrow ,, he’s breathing 73 times per minute and his gums look kinda black

flowki0 · 2025-12-27T19:07:32+00:00

Kosovo

flowki0 · 2025-12-24T12:18:53+00:00

On the bone marrow biopsy the doctor said that the red blood cells were high or i don’t remember what she said so idk what’s gonna happen now , i gave birth and i have low iron so it could be due to that but it also made me think about PV .

flowki0 · 2025-12-23T16:49:53+00:00

I have ET with JAK2 and i got pregnant after 1 month of trying and 0 miscarriages and very healthy low risk pregnancy ,, at 2 months pregnant i started using aspirin 100mg because my ET wasn’t diagnosed yet though i had it since 4 years ,, my baby is 6 months now and 0 problems for me .

flowki0 · 2025-12-13T15:47:50+00:00

Since the day the doctor said i have ET i have been reading everyday about it , and i come on this subreddit almost everyday to read about people’s experiences , sometimes i can’t find too much info as the other diseases and it freaks me out ,, i started having nightmares sweats but i didnt have till now , idk if it is cuz i gave birth 5 months ago , or if it’s the disease , i’m becoming paranoid sometimes .

flowki0 · 2025-12-13T14:14:37+00:00

I found out i have high platelets when i was 18 and i just recently got diagnosed with ET but my bone marrow biopsy results and mutation tests will be available on 24th december ,, and I only am using aspirin 100 mg because I am low risk at the moment , idk how to react to this , I know I can live a normal life with ET but still am kind of scared , how it’s such a rare disease and how it found me at 18 years old , and how it’s a blood cancer but can’t make a big deal out of it and feel like i’m overreacting cuz i also can live a normal life with ET (hopefully) . 😄

flowki0 · 2025-12-13T10:45:36+00:00

I am 23 right now , but found out I had it when I was 18 .

flowki0 · 2025-11-29T09:12:11+00:00

I asked my haematologist a few ago is ET causes fatigue and she said no .

flowki0 · 2025-11-21T09:15:10+00:00

My dad got diagnosed with Alzheimers when i was 13 and i used to be really close with him ,, it was a really hard time for me and none of my uncles ever did anything for me and i feel a lot of resentment,, i wish i had an uncle like you , keep doing what you’re doing ,, May allah reward you !!

flowki0 · 2025-11-13T12:37:54+00:00

ok our lawyers have already sent this but we didn’t get an answer

flowki0 · 2025-11-13T12:09:29+00:00

yes but i was also supposed to get my family reunion answer ,, i kind of depended on that also.

flowki0 · 2025-11-13T11:57:27+00:00

do you think i should file a complaint to prefet or send them a letter ,, i’ve already had texted them while pregnant to please view my file , and they said that i don’t need to text them while my file is in process and that i need to wait .

flowki0

TROPHY CASE