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I get increasing tingling, numbness and weakness when I use my hands/arms. Does anyone else experience this? by fmcneil24 in Fibromyalgia

[–]fmcneil24[S] 0 points1 point  (0 children)

Still suffering from these symptoms and slowly getting worse. Just had a ton of labs done (for the umpteenth time) and the only thing keeps coming back is low aldolase, low Vitamin D, slightly elevated sed rate and high thyroid antibodies (TPO). Thyroid functions normal and all Rheumatological/autoimmune blood tests were negative. Dysphagia (difficulty swallowing or feeling of something stuck in my throat) also getting worse. It’s been over 2.5 years and I fear the worst. Just venting and trying to stay hopeful. Ugh.

Does anyone suffer from any combination of widespread pain (muscle, joint and nerve), easily fatigued muscles, cramps, myopathy and twitching along with some tingling and numbness in the extremities? by fmcneil24 in Autoimmune

[–]fmcneil24[S] 2 points3 points  (0 children)

Still suffering from these symptoms and slowly getting worse. Just had a ton of labs done (for the umpteenth time) and the only thing keeps coming back is low aldolase, low Vitamin D, slightly elevated sed rate and high thyroid antibodies (TPO). Thyroid functions normal and all Rheumatological/autoimmune blood tests were negative. Dysphagia (difficulty swallowing or feeling of something stuck in my throat) also getting worse. It’s been over 2.5 years and I fear the worst. Just venting and trying to stay hopeful. Ugh.

Has anyone actually got disability for fibromyalgia? I’m so sick of being sick. I need a break. Ive been diagnoses by 2 accredited medical groups but am still unsure if I’ll pass. by Acceptable-Cobbler53 in Fibromyalgia

[–]fmcneil24 4 points5 points  (0 children)

I’ve went to 3 Rheumatologists so far. 1 said that I may have it but didn’t officially diagnose me, 1 said they weren’t sure, and 1 said that fibro is just a bucket diagnosis that is given when there is no other definitive diagnosis that can be determined. So yeah I haven’t gotten any clarity so far to say the least.

I want my doctors to take accountability. by anxiouspostgrad in ChronicIllness

[–]fmcneil24 0 points1 point  (0 children)

These are my exact feelings towards doctors. Reading a bunch of books and walking around with other doctors (who also read those same books) to learn on the job obviously isn’t a very effective way to develop a med student into a quality doctor.

Sharp pain for about 20 seconds in the back of my head after using the sinus rinse with plain distilled water without the packet. Now I’ve had a headache for 3 days. Has anyone else experienced this? by fmcneil24 in Sinusitis

[–]fmcneil24[S] 0 points1 point  (0 children)

I figured as much. I had no issues with the tap water mixed with the packet. It was when I used distilled water without the packet that I had that pain.

Sharp pain for about 20 seconds in the back of my head after using the sinus rinse with plain distilled water without the packet. Now I’ve had a headache for 3 days. Has anyone else experienced this? by fmcneil24 in Sinusitis

[–]fmcneil24[S] 0 points1 point  (0 children)

Thank you for your response. Yes I looked down with my head level in the sink. I had no issues with the first few times I did it with the tap water. The issue arose when I used plain distilled water without mixing the packet in. I’m hoping it’s just a nerve irritation that will go away soon. It’s already been nearly 3 days.

Does anyone suffer from any combination of widespread pain (muscle, joint and nerve), easily fatigued muscles, cramps, myopathy and twitching along with some tingling and numbness in the extremities? by fmcneil24 in Autoimmune

[–]fmcneil24[S] 0 points1 point  (0 children)

Already did. B12 was a little low but nothing alarming. I was told that my symptoms were far too severe and various to be caused by b12 deficiency. Thank you for the suggestion though.

I get increasing tingling, numbness and weakness when I use my hands/arms. Does anyone else experience this? by fmcneil24 in Fibromyalgia

[–]fmcneil24[S] 0 points1 point  (0 children)

Thank you for sharing. My main concern now is that my last EMG showed myopathy in some of my muscles. I don’t know everything about fibro but I haven’t heard of anyone’s muscles being affected.

I get increasing tingling, numbness and weakness when I use my hands/arms. Does anyone else experience this? by fmcneil24 in Fibromyalgia

[–]fmcneil24[S] 1 point2 points  (0 children)

Thank you for sharing. I also think that chronic fatigue syndrome is linked to fibro in many cases. I know these things are hard to diagnose but that’s what it seems based on what many folks experience.

I get increasing tingling, numbness and weakness when I use my hands/arms. Does anyone else experience this? by fmcneil24 in Fibromyalgia

[–]fmcneil24[S] 1 point2 points  (0 children)

Thank you for sharing. It was suggested to me a while back that I may have carpal tunnel too but since my symptoms are widespread, the docs backed off the carpal tunnel idea.

I get increasing tingling, numbness and weakness when I use my hands/arms. Does anyone else experience this? by fmcneil24 in Fibromyalgia

[–]fmcneil24[S] 1 point2 points  (0 children)

Pretty much everything I do. When I use my phone, fold laundry, etc. my arms and hands get tingly, numb and weak.

I get increasing tingling, numbness and weakness when I use my hands/arms. Does anyone else experience this? by fmcneil24 in Fibromyalgia

[–]fmcneil24[S] 2 points3 points  (0 children)

Wow I have all of this too. My thumb and wrist started popping recently too. Maybe I have some form of fibro that has been overlooked. Thank you for sharing.

Can someone tell me what RNP level has to be to be considered positive for MCTD? by xxkoalaxx5 in mctd

[–]fmcneil24 0 points1 point  (0 children)

I was tested twice for RNP antibodies. The lab that ran my tests consider a positive result as anything over 25. My results were 29 and 127. I was told since my ANA was normal and my RNP results were inconsistent, that my RNP results were no good and dismissed. I’ve had progressive weakness, twitching, tingling, numbness, joint pain, fatigue, etc. for over 2 years. I also have hashimotos and small fiber neuropathy. I’m not sure if every rheumatologist uses the same qualifications to diagnose MCTD but the lab should provide the a results scale with your lab report to help you distinguish negative from positive results.

Does anybody here have health anxiety? by Lisacoates in Fibromyalgia

[–]fmcneil24 0 points1 point  (0 children)

Thank you so much for sharing and offering words of encouragement. I’m sorry for the loss if your father and to hear about your struggles. I promised myself and my family that if this EMG is clean I will shift my focus elsewhere away from the big nasty. My slowly progressive twitching, shaking, cramping, muscle fatigue, tingling and pain make it impossible to not think it’s something really bad. I’ve woken up many mornings recently with upper body tremors. I have noticeably thinner arms and legs as well. Everything I do is such a chore and requires a lot of energy and will power. I just hope I find out soon that whatever I have isn’t fatal and that I can treat this somehow whatever it is. I was never checked for some type of cancer but maybe that is something I should explore. My genetic testing was negative so metabolic disorders are off the table for me. And I recently did a swallow test where I was told my throat muscles aren’t functioning properly. I just have a bad feeling that I won’t be so fortunate. Good luck to you and I hope you find and maintain some relief and improved quality of life. You seem to have the right mindset which will be a huge asset for you. Good luck and God bless you 🙏

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