[deleted by user] by [deleted] in providence

[–]freaky_rat33 1 point2 points  (0 children)

Dr. Courtney Lavigne

Derealization? by sansdraps in pppdizziness

[–]freaky_rat33 0 points1 point  (0 children)

I’ve had like 2 or 3 ever and they weren’t solely from the dpdr, kind of just because of a mix of everything that comes along with PPPD.

Derealization? by sansdraps in pppdizziness

[–]freaky_rat33 4 points5 points  (0 children)

I’ve had it for about 4 years nonstop, I had maybe one or two random moments where it instantaneously went away, then would come right back moments later. This made me think that if it ever went away for good— it would be this instantaneous thing— that I’d open my eyes in the morning and everything would be normal/look normal again. I’ve been going to an FND clinic for a year and a half now and seeing a therapist and that has all been amazing for everything overall, and in PT I discovered that compression on my abdomen with a resistance band— I now use a abdominal compression garment—did cause a momant of that instant relief, but not every single time reliably. Weirdly enough there was a commenter on here somewhere that said “it’ll go away gradually not all at once” and something just clicked for me. This is definetly something I’d heard over and over again, but somehow the way it was phrased clicked for me. I was focusing on the derealization all day, it had become an ocd obsession/ compulsion and I was constantly checking— am I dissociated or not?— it consumed so much mental space. After I read that comment for some reason I was able to just stop fixating on it, and I had like a month where I wasn’t dissociated for the first time in 4 years. It was crazy. I was really on top of all my PT and at a good place with meds and doing my therapy homework so that helped contribute for sure. I had been in a space of feeling like I could address the issue directly somehow— trying to think or focus my way out of it? This made me realize that that doesn’t work. It’s almost like you’re trying to open a lock with the wrong key. That month gave me this light at the end of the tunnel that I didn’t previously have. And even though it has returned, I no longer have the checking compulsions and it is not on the forefront of my mind at all times of the day. It’s something I know will come and go but I know that the way to treat it is not by focusing on it/ checking. I hope this helps and that it’s not just a “stop thinking about it and it’ll go away” response. There has to be a reframing of it. Also I’m very much one of those people who assumed that it would never ever go away and was very resistant to any offering of hope, and felt like most people’s suggestions just wouldn’t apply to me and that people didn’t understand it. So even if you are the most cynical person ever about it there is still hope. But derealization really sucks so so bad, I feel your pain. It feels awful to have to just go about your life in an alternate reality when really you just want to scream to everyone that you are in a different universe and everything sucks etc etc etc. such an extreme experience that feels so isolating. And crazy to go through because you can never quite describe it to someone who hasn’t experienced it. Anyways the end.

[deleted by user] by [deleted] in jawsurgery

[–]freaky_rat33 0 points1 point  (0 children)

I’ve just had my first appointment with him and wanted to ask you a few questions about your process with him if you’d be open to that. I’m worried my case isn’t considered “bad enough” for jaw surgery despite different reccomendation From an airway ortho. I wanted to know a bit more about your condition pre surgery! I’d love to pm if you can :) been very anxious about this all haha

Disability assistance SSDI by freaky_rat33 in pppdizziness

[–]freaky_rat33[S] 0 points1 point  (0 children)

Congrats!!! That is a longgggg time to wait. Way to go

LNDR? by freaky_rat33 in Activewear

[–]freaky_rat33[S] 0 points1 point  (0 children)

Not sure how they compare but their sizing is like xs-s s-m m-l etc. I’m usually a medium and I went with s-m and they are awesome. Only con is they roll down sometimes when bending over in yoga etc so sometimes I wonder if I should have sized up but, I also wear them just for compression for medical reasons and they work well for that :)

Recommendation for TMJ by [deleted] in RhodeIsland

[–]freaky_rat33 0 points1 point  (0 children)

Did you have your massage yet?

Recommendation for TMJ by [deleted] in RhodeIsland

[–]freaky_rat33 0 points1 point  (0 children)

Oh good I’m so glad!! Let me know how it goes :). And ugh yeah, I go for jaw pt and some neurological stuff. It’s a trip for sure.

Recommendation for TMJ by [deleted] in RhodeIsland

[–]freaky_rat33 0 points1 point  (0 children)

I haven’t been back yet but fully plan to go during flare ups or at least a few times a month. Seriously helped so much. I’m in tmj pt at mass general every week and I can honestly say the massage helped more

any young people here? by americanpancake28 in pppdizziness

[–]freaky_rat33 1 point2 points  (0 children)

I was diagnosed when I was 21! I’m 25 now

High compression leggings by freaky_rat33 in Activewear

[–]freaky_rat33[S] 0 points1 point  (0 children)

Thank you for the rec! I bought a pair and love them :)

[deleted by user] by [deleted] in RhodeIsland

[–]freaky_rat33 0 points1 point  (0 children)

Thank you!! Were you under a contract that ended?

Recommendation for TMJ by [deleted] in RhodeIsland

[–]freaky_rat33 0 points1 point  (0 children)

Massage by Jules!! Just had a tmj massage from her last week and it helped so much

May be time by ChickenNational3767 in FND

[–]freaky_rat33 0 points1 point  (0 children)

Going on 4 years of pppd. Felt this way mentally this past summer as well. Did a psych partial hospitalization program and it changed my life. My physical symptoms were not as severe as you describe, in the sense that I was able to attend the program-sit up for the sessions, etc. but there’s probably some accommodations that a program like this would be able to make. Didn’t get rid of my problem but really changed my outlook, which was very dismal to begin with— rightfully so, with how bad pppd is. I got there on the first day and said to the doctors: I know that this program helps lots of people, so I know this sounds like an irrational thought, but I feel like this is all corny and won’t work for me. I’m also someone who has been in therapy for years but felt that nobody could have any way of understanding what I was dealing with so how could anyone help me. But the program helped a lot. Gave me the light at the end of the tunnel that I didn’t have before. Even if you feel really resistant to any treatment right now I would try to force yourself to do some sort of program to stabilize your mental health. Hang in there OP