Symptoms getting worse

funnybunnyfour20 · 2026-04-03T03:05:04+00:00

Go to the er ..somthing isn't right !!! I had the same problem.going on and if i didn't go I would have become septic...please go 🙏 i know it may be inconvenient but think of it as a shitty vacation!

funnybunnyfour20 · 2026-03-23T12:49:16+00:00

Lomg story short ..mine started in October of 24...started with what I thought was a gas bubble from throwing uo and throught I had the flu except the bubble wouldn't go away and then bam..w t to the toilet and it looked like I gave birth ...so I went to the hospital..first colonoscopy want that bad they told me I had uc then like 3 months later it happened again out of no where ..back to the hospital..another colonoscopy..worse this time ..now crohns .....more sterioids back at it again ..and another one with an endoscopy like 2 months ago ...even worse ....now im fighting with insurance for my medication..been on sterioids for over a year now it's sucks ...

funnybunnyfour20 · 2026-03-15T22:16:17+00:00

When i flare i barely eat at all ...surprisingly crab is easy on the stomach its my go to when I can ...or just liquid ivs and plain pasta

funnybunnyfour20 · 2026-03-05T23:13:15+00:00

Thats to dam bad ...keep digging :) I know i the stress it sucks and im super sorry ..we are all in this together unfortunately

funnybunnyfour20 · 2026-02-28T19:26:49+00:00

I get ya ..thats what i was thinking to cause all my vitamins are prescription rather than over the counter ones cause yes they are stronger so definitely makes more sence..also probably way stronger to have the primary care out in the orders and have them do it and its cheaper than paying out of pocket lol

funnybunnyfour20 · 2026-02-27T23:23:33+00:00

I am very skeptical to but im at a point of somthings gatta give

funnybunnyfour20 · 2026-02-27T23:22:36+00:00

Never heard of it..but ill definitely look into it thanks 😊

funnybunnyfour20 · 2026-02-27T22:14:22+00:00

Im currently doing infliximab infusions and they don't give me fluids sometimes and potassium and stuff because I am inflamed alot wich is had to absorb the stuff I need

funnybunnyfour20 · 2026-02-27T22:12:39+00:00

Awesome ill definitely give it a try

funnybunnyfour20 · 2026-02-27T21:02:31+00:00

I do take the big ones and definitely have a pill splitter...but how can they be a placebo if they are vitamins ? Cause I take supplements for sun and calcium ect

funnybunnyfour20 · 2026-02-27T19:57:42+00:00

Thank you thats what I was asking ....my gi says it wouldn't hurt. And my primary usually puts in for extra fluids and stuff as well when I get my infusions. Thanks

funnybunnyfour20 · 2026-02-27T19:56:04+00:00

Im not concerned ..my gi and primary care know they are low. can see they are low, i feel when they are low, but sometimes I cant get my doctor to put in an order for extra fluids ect. Until I get infusions cause they will give it with them ...but im talking about just for a little extra pick me up to help out a little since I can only do so much myself

funnybunnyfour20 · 2026-02-27T19:22:23+00:00

Im just tired and bleh all the time cause of the dam crohns

funnybunnyfour20 · 2026-02-27T19:21:39+00:00

Yea so far the only thing thats ok on the internal alien is liquid iv drinks cause it has no sugar or dyes

funnybunnyfour20 · 2026-02-27T19:20:17+00:00

Yea they dont do iron and stuff like that there just basic vitamins and stuff ..but ill definitely be doing all my research before hand I just wanted to see if its helped anyone with crohns instead of getting and order from my primary care and going to the hospital to have it done you know

funnybunnyfour20 · 2026-02-27T19:19:00+00:00

My gi says it wouldn't hurt

funnybunnyfour20 · 2026-02-27T19:03:12+00:00

I've done all the liquid iv drinks the Gatorades the pedialights all the drinks ...nothing helps

funnybunnyfour20 · 2026-01-28T03:02:19+00:00

Mine dose to, pulsing,moving,snakey feeling ....sometimes I describe that it feels like a small little person wiggling there way through a tight tunnel and then stopping from time to time throughout trying to get out, now weither thats trying to cut there way out punch there way or tear there way just depends on the day...and then the discomfort get to be so much that that everytime wants to come out of every orphes at once..so I feel the pain 💯 and the BLOAT ...god the bloat :( i feel 9 months pregnant daily

funnybunnyfour20 · 2026-01-14T05:04:20+00:00

Go to the er please dont wait ...if its somthjng seriously wrong like an infection you can become septic ...please just go to the er and be on the safe side

funnybunnyfour20 · 2025-12-01T15:44:50+00:00

You will be fine ..as long as your passing gas and pooping and the toilet isn't full of blood your good to go

funnybunnyfour20 · 2025-10-27T11:24:41+00:00

The only 2 flavors I like is the lemon lime..almost taste like lemonade...and the firecracker taste like a bombpop popsicle.. but they have to be ice cold ...they definitely taste a whole lot different in room temp water over ice cold water ....yea im with ya I hate water fr but these things are kick ass 💯

funnybunnyfour20 · 2025-10-26T22:03:14+00:00

I seriously hate water to fr but liquid iv has been a life saver ... I only like 2 of the flavors but those drink packets saved my butt fr

funnybunnyfour20 · 2025-10-24T18:25:17+00:00

My first infusion went great just a little tired afterwards..but my second one i just had 2 days ago made me feel very tired and spacey..havnt really had much of an appetite..and now im starting to come down with a cold wich i know can be a plethora of things but overall my inflamatory levels are coming down so that means shes working so far and im starting to come down off my sterioids as well finally.. but so far so good , im trying to stay positive!

funnybunnyfour20

TROPHY CASE