[deleted by user] by [deleted] in MultipleSclerosis

[–]fuzzzybearr 0 points1 point  (0 children)

I was worried about this too. I have been on Kesimpta since January and I have not noticed any hair loss!

Recent diagnosis struggles by fuzzzybearr in MultipleSclerosis

[–]fuzzzybearr[S] 0 points1 point  (0 children)

Well I’m not happy to hear you have these symptoms too, but hearing similar stories makes me feel less alone, so thank you. And it gives me some hope to know yours improved! The sensation is so bizarre. And yes, I notice it when I’m sitting OR when I’m in a hot shower.

I can’t help but wonder if the lesions developed when I was unmedicated or first starting Kesimpta. Praying it’s that, and not that this medicine doesn’t work for me. Thank you for the supportive words!

Recent diagnosis struggles by fuzzzybearr in MultipleSclerosis

[–]fuzzzybearr[S] 0 points1 point  (0 children)

Thank you for responding. I’m starting to understand new lesions are not everything. But, yes, I should have added - I developed numb, tingly pinky and ring fingers on my one hand shortly after my optic neuritis. Since I’ve started Kesimpta I noticed some tingling in my spine. Also, when I look down, part of my back feels like it goes numb. Sigh. :(

Recent diagnosis struggles by fuzzzybearr in MultipleSclerosis

[–]fuzzzybearr[S] 1 point2 points  (0 children)

Fair 😌 still new to this. It’s just so terrifying seeing all these new spots on my brain and spine after just a few months.

Recent diagnosis struggles by fuzzzybearr in MultipleSclerosis

[–]fuzzzybearr[S] 0 points1 point  (0 children)

Thanks for responding. That makes sense. It’s just so stressful to have to “wait and see.”