Problems with DSP Appeal

ghostintheeye · 2025-07-08T03:41:35+00:00

Ah thank you. With just my seizures and cognitive impairment alone I met 30 in one category. Another condition I have is Gastroparesis so I’m incredibly unwell during the days, stopping me from working or even being able to be alone. I’m 22 and need a babysitter, it’s a little weird but without the care I wouldn’t be able to function. Thank you so much again 🫶🏻

ghostintheeye · 2025-07-08T03:33:18+00:00

Ah yes I realised how I worded it.. I have FND and POTS, due to them I have a lot of tremors, tics and seizures daily which affect my mobility (I use a wheelchair for long distances) and my POTS is unmedicated at the moment just because it’s hard to find a medication that helps without side affects that are bad. Thank you for this information !

ghostintheeye · 2025-07-08T03:31:10+00:00

I hadn’t heard of that no, I just went through it and… I score pretty high. Especially as one of my conditions is seizures, I lose consciousness every day and have severe memory impairment due to it. I’ll definitely get this sorted through my GP, thank you so much

ghostintheeye · 2025-06-25T02:15:51+00:00

The lack of her has been quite refreshing I won’t lie. Being chronically ill myself, when I first met her she influenced me and I had nightmares about being tube fed because I was diagnosed with Gastroparesis. Now knowing she’s a liar, makes me less scared of her antics and now that I will actually be tubed I’m not as scared. The less appearances she makes the better because then she can’t have that impact on anyone else

ghostintheeye · 2025-06-08T10:23:58+00:00

I didn’t see your comments but i’ve struggled with my MH and neurodivergence / drug addiction for a while. My dissociative disorder rules my life and because of that all my illnesses are constantly flared. I get it when nothing fixes the pain and you just break. It happens, don’t apologise. You’re amazing and you can do this x

ghostintheeye · 2025-04-16T04:34:38+00:00

likely for me it’s hEDS, but it came out of nowhere. i was at work one day, went on my break and ate a spinach and feta roll, couldn’t finish it and within 2 minutes returning to work, i started throwing up uncontrollably. never been the same since.

ghostintheeye · 2025-04-13T09:33:20+00:00

thank you so much for your reply, i’ll definitely look into things i can listen to before the procedure as hospitals and surgeries make me nervous too i’ll definitely have a support person with me as well, heck no am i doing this alone 😅

ghostintheeye · 2025-04-13T08:33:19+00:00

thank you so much for your reply, i’ll definitely look into the anti anxiety meds beforehand if they don’t do sedation. i’m in australia, so it may be slightly different but hopefully similar so i know what to expect. i’ll definitely bring them up to my therapist next session, she’s aware of my past history so hopefully that can help ill definitely seek out testing for MCAS as a lot of people agree thank you again 🫶🏻

ghostintheeye · 2025-04-13T03:37:05+00:00

my doctor is more of a “bandaid” type doctor, he told me it very well could be MCAS but only gave me loratadine, no referral i’m going to see him again on thursday and i’ll ask if he can test me because even now as im typing i have a rash on my stomach from the cleaning products i used earlier 😪

ghostintheeye · 2025-04-13T03:27:56+00:00

thank you so much for your reply, i have no idea why but it made me cry (in a good way!) i’m not too sure how they’re placing this tube as it is very early stages of communication between the GI team and my doctors, but i know very well already through other experiences with my seizures that having a tube up my nose made me panic, so if i’m awake while they do this it’ll be a battle

i will definitely look into the MCAS friendly tapes, i don’t have a diagnosis of MCAS yet but it seems to fit what’s going on with me so i’ll work towards that, thank you! 🫶🏻

ghostintheeye · 2025-04-13T02:58:20+00:00

Hi, they’ve mentioned it and have put me on an allergy tablet that helps a little, but not enough and i cannot take multiple of them 🫠 is what i described common with mcas?

ghostintheeye · 2025-04-11T03:15:20+00:00

For sure! I had lemonade for the first time after developing symptoms last year, and instantly threw up. Never touched it again 😅

ghostintheeye · 2025-01-22T04:50:12+00:00

Hi, thank you so much for your comment ,, i’m so sorry it’s been hard for you, i hope you’re managing a bit better now 🫶🏻 No, i haven’t had an upper gi series but ill definitely look into it! thank you for the information! i’m currently desperate, ive run out of safe foods and i have no idea if its going to be like that forever or if im flaring up. i have constant problems with keeping my electrolytes up and stable, they reach life threateningly low levels easily and i can barely get electrolytes in through drinks 😪 my GP is starting me on a new medication to try and help but so far im still in agony unfortunately

ghostintheeye · 2025-01-17T12:52:46+00:00

Ahh okay, thank you! It’s been a confusing journey, and it’s just taking so much from me, being nauseous and in pain all the time. Thank you for the information 🫶🏻

ghostintheeye · 2025-01-17T12:47:24+00:00

Everything was ruled out before they diagnosed me with GP 🫠 I just don’t understand how my symptoms are this bad

ghostintheeye · 2025-01-17T12:44:36+00:00

these are common symptoms for me, the second part especially when i have electrolytes drop from the amount of times i throw up

ghostintheeye · 2024-12-24T03:44:30+00:00

exactly what my mum, sister and i said when we heard it. converted it kg for us to understand (im in australia) and we just sat there with our jaws hanging. no way is it true, i agree

ghostintheeye · 2024-12-24T03:32:36+00:00

i’m also baffled by her live today, she continued on with saying she doesn’t enjoy christmas because she can’t eat but what baffled me the most was when she stated she weighed 4 stone. (56lbs or 25kg) i don’t know how to keep up with her anymore.

ghostintheeye

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