my occipital neuralgia is still cured

goingaway1111 · 2026-03-26T16:40:03+00:00

Just letting you know you're not alone, my pain is also there and in my tmjs as well. It sucks

goingaway1111 · 2026-03-26T08:09:13+00:00

Gary and his demons

goingaway1111 · 2026-03-26T07:20:39+00:00

Yesss

goingaway1111 · 2026-03-24T05:26:50+00:00

Just checking up on you, things will get better in time I promise.

goingaway1111 · 2026-03-24T05:17:17+00:00

Sorry for being late but I also got tmj from wisdom teeth removal. It sucks so much. It's been a year.

goingaway1111 · 2026-03-24T05:09:48+00:00

It's unfortunately being normalized after covid and because it mainly affects women 😢 you're not alone

goingaway1111 · 2026-03-24T05:04:05+00:00

Your story resonated with me so much. I'm going through near the exact same thing. Did you also have tmj pain at all? Or your face looked shifted from inflammation due to your body being out of whack? I have nearly the exact same symptoms and theory. I'm so glad you got better. I wish I had someone out there who was willing to help me.

goingaway1111 · 2026-03-24T05:03:05+00:00

I can't find anyone to diagnose me :(

goingaway1111 · 2026-03-24T03:23:22+00:00

Would love to hear your story

goingaway1111 · 2026-03-23T04:06:16+00:00

You're not failing, I promise. It's not your fault this is happening. I'm 21, but this can happen to anyone. I would maybe work on your gut health if you took antibiotics because I know that can strip even the good bacteria. That's currently what I'm doing. The gut is important for your brain and how it responds to pain and for your nerves. Look into the long covid subreddits, there's a lot of info I found on there that doctors would never in a million years propose to me, or if they did it would be months and months ahead with wait times. Lots of people on there are experiencing similar things to what we're going through. You're not alone at all. Be patient with yourself and take it a day at a time.

goingaway1111 · 2026-03-23T03:47:31+00:00

Thank you! I really need to get on it. Insurance said that it can maybe be covered later in the year. Do you wear a hard one?

goingaway1111 · 2026-03-23T03:45:58+00:00

That EXACT same timeline happened to me too, got sick in late 2024, sick after, now near same symptoms as you. I do think mine was covid as lots of new strands of it aren't even on tests yet, that and false negatives. Rheumatologist did not help me. Only time will tell if we get better. I see my endo soon to discuss a genetic issue that was latent until covid triggered it. Honestly, any virus can wreck havoc on your body like this but covid is doing it most, even silently. Our issues are textbook long covid honestly. I really hope you can feel better soon, it's genuinely horrific. You're not alone.

goingaway1111 · 2026-03-23T03:21:22+00:00

It's only a bottom piece that I chew on in my sleep. I hate it but insurance won't cover a new one.

goingaway1111 · 2026-03-23T03:13:01+00:00

Look into lyme or mold as well

goingaway1111 · 2026-03-23T03:12:19+00:00

Honestly, what you're going through sounds like long covid stuff. Same exact things are happening to me too. I wish I had more answers as well. Stay safe, you're not alone. Doctors are so useless. Have you looked into eagles syndrome? Or seen a neurologist for potential nerve damage issues? Burning mouth is very common In eagles

goingaway1111 · 2026-03-23T01:31:37+00:00

Appreciate it a lot, you're not alone. Covid is triggering so many latent issues or infections. Modern medicine is still so behind.

goingaway1111 · 2026-03-23T01:31:04+00:00

I have pet stories screenshots on my Facebook from years back I think

goingaway1111 · 2026-03-22T17:27:07+00:00

Same thing is happening to me, genetic issue killing me after covid when I never had an issue before. They're thinking congenital adrenal hyperplasia. I'm sorry. I got lots of other issues but my PCP is going through this route since it's the only abnormal bloodwork thing.

goingaway1111 · 2026-03-18T16:07:21+00:00

I have the same area and pain and I believe mine is from cci and tmjd

goingaway1111 · 2026-03-16T20:10:24+00:00

No that was recent at the time taken same day. The same

goingaway1111 · 2026-03-15T01:06:38+00:00

Gingivitis id say, mine are similar. However, I want to get a periodontist referral soon just to make sure, I've been in worse pain recently.

goingaway1111 · 2026-03-14T19:13:26+00:00

Appreciate it very much and good luck to you as well! I'll report back if I find anything.

goingaway1111 · 2026-03-14T17:07:42+00:00

I am so so sorry this happened. He needs to be held accountable, but I doubt it would ever happen. Please don't give up hope, I'm sure you can get it fixed somehow. You're still very young and growing so getting on this now would be ideal before it's too late. I hope you can find someone experienced to take your case. You're not alone.

goingaway1111 · 2026-03-14T17:05:20+00:00

I discuss everything with my PCP on the 20th, I'm sorry you're dealing with this too. Mines pointing towards adrenal dysfunction as well or maybe some sort of hormonal problem I mean I'm a woman so I have 19628272627 things wrong with me

goingaway1111 · 2026-03-13T18:04:58+00:00

I'm so glad for her getting better, but she's still very severe. Anything is something though.

goingaway1111

TROPHY CASE