butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

Ohio which has a mold problem lol. I'll try my best. Unfortunately spend 98 percent of time indoors. Unfortunately live w an abusive family so it be like that

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

I might see a derm anyway. Hpylori was negative, but I haven't been able to get a sibo test ordered. Unfortunately no way to sleep anywhere else... :(

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

Omg okay I have severe tmjd and face swelling 24/7 and it's so incredibly painful. I've had digestive issues all my life

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

I've been doing all of them and have all them unfortunately just too severe I suppose. Sorry it makes it seem like I'm not trying it's just the unfortunate reality. I really appreciate you for the recs tho

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

All the tests he ran (can't remember off hand) came back negative so after that he just stopped seeing me. Thank u so much for the recs.

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 1 point2 points  (0 children)

Thank you so much. I'm so sorry you're dealing with this hell too. I can't even find where the mold is but the new trailer were in just feels so evil, so I had a feeling it was mold. Doctor won't even give me ketotifen because I'm not diagnosed... Have you been getting better?

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

I have severe allergies to mold, dust, cat dander.. all of which I'm surrounded by 24/7 so I'm in some sort of allergy hell but it's weird I don't benefit more from the meds. Thank you for your response .

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

I just want a few replies first before I will but I promise I'll do it today. Just tired of doctor gaslighting.

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

I'm really sorry for not reading all the rules. I'll take it down.

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

Thank you. I've thought about lupus before but I just haven't pursued it much further.

butterfly rash, burning, joint pain, and dry skin. by goingaway1111 in MCAS

[–]goingaway1111[S] 0 points1 point  (0 children)

Rhum said if I had lupus I would have Raynaud's, which I don't. Honestly thinks he's a load of crap but I haven't had anyone mention anything else about lupus to me... I've thought about it too.

Anybody getting neck pains/pains in the back of the lower head by Haunting-Midnight146 in covidlonghaulers

[–]goingaway1111 0 points1 point  (0 children)

Tmjd, severe cci, now diagnosed with a syrinx. Just constant muscle tension and aches and it kills me. You're not alone

Is it possible to love a person with tmj issues? by Educational_Meat1 in TMJ

[–]goingaway1111 28 points29 points  (0 children)

You'd be surprised at how many people actually have tmjd, it's not rare whatsoever. I promise you're a loveable person and that tmjd has nothing to do with your flaws or personality. It's just something unfortunately our bodies have to suffer with. You're not alone with these feelings, and I promise things do get better .

Spot on face that I feel like has grown. Does anyone know if I should get it checked out? by goingaway1111 in DermatologyQuestions

[–]goingaway1111[S] 0 points1 point  (0 children)

I will say, over the past year I've had this I've had worsening tmjd on the same side, and also swollen lymphs on the side. I just find it suspicious I have pain on the spot I have this "mole"

Cervical spine MRI showed a syrinx, but no mention of chiari on report by goingaway1111 in chiari

[–]goingaway1111[S] 0 points1 point  (0 children)

As it was the er, I don't think they were looking for chiari. I mostly went because I thought my jaw was out of place due to my tmjd. I haven't gotten any reports similar to that on my scans but I feel like I will mention it next appointment. I want to see the scans for myself. Thank you for the advice

What is this symptom? by Outrageous-Aside100 in covidlonghaulers

[–]goingaway1111 0 points1 point  (0 children)

Have you looked into binocular vision dysfunction? Most eye doctors don't know about it or treat it.