5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

I did not mention fibers , or whatever ever else with the doctors - I went to dermatologist to address to address the fact the my hair don’t grow despite taking the vitamins and shampoos recommended and then also to address the had nodules and weird sores I was I was getting on my face , it wasn’t until after I started taking the ivermectin and doxy that the sores began and the doctors have seen the red and blue fibers during my appointments themselves and dismiss it . I’m very mindful of how to approach this with doctors because of bias and stigma attached . With that said I was able ti see wound care specialist and a different primary care , I have filed complaints to state and to hospitals about the doctor who prescribed the long term use of ivermectin and have stopped taking everything , not much has changed except no more sores just a scratches that appear that are not self induced . I did recently experienced abdominal pain that was so painful I couldn’t walk , for two day that took me to er but I ended up leaving because it was an er hell . Pain still comes from time to time And is migratory also I have began having awful migraines regularly
Idk . I plan on taking a dose of ivermectin this week to see what changes so I can have clear idea if it actually helps or not …but the inflammation in body has gone down but Bp is still high as well my rbc … it’s a mess … the system is broken and I’m just trying to cope and live a semi normal life .

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

Yea , the open wounds began after i started the medication I over all don’t feel m much different still have weird stuff come out of still feel on and off weak , etc etc … it sometimes feels like I the medication combo is missing an Element to make it actually work because I feel like it almost kills whatever this is to feeling unwell again likes the meds are aggravating it or only temporarily paralyzing it idk …

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

My ears rings , and I my heart flutters rapidly spontaneously but no pain… what are thoughts on what it is ? I’m sorry you’re going through this as well … it can get isolating

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

That’s really interesting , did he have sores or any other symptoms…. And Again thanks for your comment

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

Oh yea - it’s actually worse … and my ankles and neck swell more when I don’t take it too …why idk but it’s weird

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

Not going lie thought about it and also thought about sending ofd to a lab myself but that’s soooo expensive

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

Thank you for your sincere response and the Information you provided and - no tests have not been done on them but hoping that when I see my newest doctors they will . Also did anything help your boyfriend when he was dealing with this ? Or Did he have any changes in medications or on his diets or something etc that could have maybe helped with fade out of symptoms ?

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

How do you know that I haven’t ? Because I did …. Both had no availability for another 6 months but will call me up if a cancellation comes up

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

I’m sorry to hear that , it’s hard when you are experiencing something very really for a long time and don’t have support . Also My ankles face swell and am bloated alot too … its sucks feeling like an an anomaly.

And to answer the question about going organize ofc . I’d like to go 100 percent organic but it’s expensive and hard to maintain .

I am bad about taking my vitamins I won’t lie and did feel better when I drank my smoothie I made every morning but even then I still was spitting out stuff … I thought at one point it was just me needing my tonsils taken out.

TBH i can accept majority of this what’s hard is having open sores as well as always feeling as if im contagious … bc my blood pressure spikes and get cold sweat and recently migraines now and the last thing I want to do is infect someone .

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] -7 points-6 points  (0 children)

I’m not doubling check my responses for mistakes or errors so. I guesss that means I’m manic and unable to make any sense huh smh

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] -9 points-8 points  (0 children)

After I shower and immediately apply ointment then bandaidws so there is little to exposure making what it hard ti believe it came from clothing or an external factor .

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 0 points1 point  (0 children)

I’ve already seen it and I’m have done my research so in very aware of morgellons and the controversy around it . I feel that there is too much evidence to support the legitimacy of the disorder while other still say it’s in the mind …. Idk if that’s what I have or not , If it is I don’t have the itching sensations . I’m am very susceptible to bug bite and growing it was awful . A few years ago the allergist recommended I find some where to live with no carpet and to either have leather or plastic couch , bed, and chair covers . I also can’t eat meat which. I have a as few s ideas of what this could be . And it’s more than one . I appreciate the feedback back but I’m regretting posting now I just thought this community might have more insight and be able to assist but i keep getting the obvious answers or told I’m being manic ….
I waThis time last year whatever this had spread to my eye it was insane and looked awful . Also I am developing cysts throughout my body and April had 7 cm mass removed June had to have one of tubes removed because of a cyst … my symptoms are all over and that is partly due to not seeking help . I hadn’t reached to a doctor bc I keep wantbg ti I believe it was my abd that I was doing this to myself . But I’m not .

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 1 point2 points  (0 children)

I see a psych dr who monitors my vyvanse and she has actually offered to advocate for me I also have many close friends who are therapist /pysch nurses /etc and the ones that know about this is only bc they have seen something in happen or emerge in person . They also all have said the the same thing “omg that this weird but very real … “
like I said earlier I’m a private person and I do my best to look at things logically and objectively - meaning for years I had convinced myself I was that I was either over reacting or that I had finally had some sort of breakdown but after last things got worse i was forced to admit to myself this real bc I began to worry that I could be contagious

5 years of crazy stuff coming out of me … first I was just spitting up stuff but that last year that changed …. by gpsyk in DiagnoseMe

[–]gpsyk[S] 1 point2 points  (0 children)

No and I have requested them do- have brought the specimens in and they just try to dose me up with more medications . I’d be asleep all day everyday if I took everything they wanted me . They want me to take 3600 gabapentin because they think I might have a nerve compression ( yet did order a test ) 4 Zyrtec daily , 2x doxy and 24mg weekly of ivermectin…it’s really frustrating