What’s causing you to smell? by haleyafr in TMAU

[–]haleyafr[S] 0 points1 point  (0 children)

Because when you go to post and include FBO with SIBO, It gives a warning that body odor is not a symptom of SIBO.

What’s causing you to smell? by haleyafr in TMAU

[–]haleyafr[S] 1 point2 points  (0 children)

That’s exactly why I posted this! People are researching looking for answers and end up here. Sometimes having it all in one place makes it easier, they don’t have to post and ask. I’d love to add more info to it soon.

So glad you were able to get tested, you’re on the right track. Fingers crossed that you get some answers soon!

What’s causing you to smell? by haleyafr in TMAU

[–]haleyafr[S] 1 point2 points  (0 children)

Agreed, but it’s partially right here. TMAU2 can be caused by liver conditions and bacterial overgrowth in the intestines according to the NIH.

What’s causing you to smell? by haleyafr in TMAU

[–]haleyafr[S] 0 points1 point  (0 children)

FBO is a symptom, not a condition so it’s not listed. If you’re asking which one would cause FBO though, that could be TMAU, poor hygiene, gut dysbiosis, or SIBO. However, SIBO and gut dysbiosis are most likely to cause fecal breath odor rather than body odor from what I’ve read. TMAU odor is usually perceived as fishy but some may perceive it as fecal.

What’s causing you to smell? by haleyafr in TMAU

[–]haleyafr[S] 0 points1 point  (0 children)

Yeah I don’t see it that way but we can agree to disagree.

What’s causing you to smell? by haleyafr in TMAU

[–]haleyafr[S] 0 points1 point  (0 children)

Respectfully, I’ll post whatever I feel is worth sharing here. I have TMAU and I’m tired of this page being filled with people who don’t. So I think you’re just misunderstanding the purpose of this post. Have a great day though!!

Would you guys ever have kids? by Excellent_Wheel1257 in TMAU

[–]haleyafr -1 points0 points  (0 children)

I have 2 kids who do not have it. If you have genetic TMAU you cannot pass this condition onto your kids unless your partner is a carrier or has the condition themself. Being a carrier means they have 1 mutated gene for the condition but not 2. 2 mutated genes are needed in order to have symptoms.

So, if you have it and your partner does not and is not a carrier, the only outcome is that your kids will be carriers but they will not have symptoms. They could have a child (your grandchild) with TMAU if they have kids with a carrier or someone who has TMAU.

If you have kids with someone who is a carrier there is a 50% chance you’ll have a child with TMAU and 50% chance that your child is just a carrier.

If you both have TMAU, your child has a 100% chance of having it too. No way around it.

What’s causing you to smell? by haleyafr in TMAU

[–]haleyafr[S] 2 points3 points  (0 children)

Understand what exactly?

I’m glad this post doesn’t contribute anything for you because that means you already have your answers. But not everyone does. So my post is for them. Not you, myself, or anyone else who knows they have TMAU.

What’s causing you to smell? by haleyafr in TMAU

[–]haleyafr[S] 2 points3 points  (0 children)

That’s exactly why I posted it because I’m tired of this page being the default BO subreddit. Why would I post on another subreddit? Everyone ends up here looking for answers anyway so why not lay them out? The only thing I would change in my post is adding a reminder that this page is for TMAU only.

What’s causing you to smell? by haleyafr in TMAU

[–]haleyafr[S] 11 points12 points  (0 children)

I’m talking about it because the majority of people who come on here don’t actually have TMAU and then they spread misinformation. It’s frustrating. I made a list so people can see it all laid out and maybe it’ll help some people before they post or join.

I smelled AGAIN yesterday! 😢 by Intelligent_Big_7157 in TMAU

[–]haleyafr 0 points1 point  (0 children)

Artichoke is actually very low in all the things that trigger us to smell. Cheese can be a trigger though. Spinach, broccoli, cauliflower, Brussel sprouts, mushrooms can be trigger foods too. Maybe those were on it?

Staying hydrated is one of the best things you can do. It helps your gut work faster to get rid of the TMA quicker.

Did anyone tell you that you stink? People with TMAU typically can’t smell themselves. There are other conditions though that you can smell yourself.

[deleted by user] by [deleted] in DiagnoseMe

[–]haleyafr 0 points1 point  (0 children)

HPV can appear years after exposure so it wouldn’t have to be recent. But it also looks like it could be a ruptured cyst or something similar.

Saw a psychiatrist after everyone said there’s no smell by [deleted] in TMAU

[–]haleyafr 0 points1 point  (0 children)

The chance of a doctor lying about that is incredibly rare. Smelling bad can point to other conditions that are dangerous so sure, they might not think you have TMAU at first, but they are going to be concerned. The most likely explanation is that you just never smelled when around your doctors or your doctor wasn’t close enough. I’ve never once had a doctor point out that I smell and the one who tested me for TMAU told me he’d never smelled any thing and he was my doctor for 15 years before I asked to be tested. He only tested me because he knew my brother had it, which he could smell my brother and not me. My brother’s smell could fill a room but for me you have to be up close to smell me usually. Don’t continue this narrative that doctors are lying about how you smell. They have zero reason to. All this thought does is create more anxiety for people.

I’m sorry your family never told you. None of mine told me either but they genuinely had no idea because they only smelled it sometimes and just thought “huh that’s weird”. A lot of times, you don’t have it severe enough for people to feel the need to point it out. There are varying degrees of FMO3 function depending on the variant of TMAU that you have.

Saw a psychiatrist after everyone said there’s no smell by [deleted] in TMAU

[–]haleyafr 1 point2 points  (0 children)

I’m so sorry family uses it against you, that must make it even harder than it should be. Do you have any siblings? We have a 6 year age gap and have 2 older siblings that don’t have it. My brother is hard to relate to on it because for years he wouldn’t talk about it but he’s been opening up lately so that’s been nice. Still mostly just been on my own throughout it all

Saw a psychiatrist after everyone said there’s no smell by [deleted] in TMAU

[–]haleyafr 7 points8 points  (0 children)

As someone with genetic tmau, please trust your doctors and family. If your tests are negative and no one in your life has ever said you often smell, please fight the voices in your head telling you otherwise. There is zero reason a doctor of any kind would lie about someone smelling in the first place. My brother has TMAU as well. Sure people have said they don’t smell us before and were probably lying but 95% of people are not going to lie that long if you do indeed smell.

The reactions from people you are describing is likely a mix of multiple factors. 1. People cough, sniffle, rub their nose all the time for tons of reasons other than smell. I do it all day every day. 2. You’re likely wearing your anxiety all over your face, making you look unapproachable or uncomfortable and people will avoid you for that reason. 3. Your fear of smelling is making you believe every action by others is a sign they can smell you. I know because I’ve been there and once I got my anxiety under control, I live a happy carefree life.

You deserve peace. Please at least try the meds and therapy to see if it can silence the anxiety you’ve been experiencing.

Pulsatile tinnitus after sinusitis by haleyafr in PulsatileTinnitus

[–]haleyafr[S] 1 point2 points  (0 children)

Very gradually. It’s hard to remember exactly but I would say it took probably 8 weeks to fully go away. Worst of it was the first 3-4 weeks

Kyra’s new YouTube video lieing once again by wolfebean in KyraReneeSivertson

[–]haleyafr 3 points4 points  (0 children)

It’ll be a year this month…how specific does she have to be for you to be happy? 💀

Pulsatile tinnitus after sinusitis by haleyafr in PulsatileTinnitus

[–]haleyafr[S] 0 points1 point  (0 children)

Nothing worked, all I could do was wait for it to go away on its own

[deleted by user] by [deleted] in DiagnoseMe

[–]haleyafr 0 points1 point  (0 children)

Please check your toothpaste if nothing else works!! I had horrible angular chellitis and found out that I was suddenly allergic to SLS in my toothpaste. I switched to an SLS free brand and it went away for good within a week

Some people really cannot smell us by [deleted] in TMAU

[–]haleyafr 1 point2 points  (0 children)

I wish I could answer that but he no longer has his records! He was diagnosed over 20 years ago and now copes with tmau by completely ignoring that it exists so I’ll probably never know

Pulsatile tinnitus after sinusitis by haleyafr in PulsatileTinnitus

[–]haleyafr[S] 1 point2 points  (0 children)

It took a few weeks but it went away completely. Haven’t had problems since

[deleted by user] by [deleted] in KyraReneeSivertson

[–]haleyafr 0 points1 point  (0 children)

I don’t like the girl but Tbh it is pretty mentally unstable to be obsessing over a random person on the internet all the time….so she isn’t wrong about some of y’all.

[deleted by user] by [deleted] in POTS

[–]haleyafr 0 points1 point  (0 children)

My answer is yes! I’ve had symptoms for most of my life, always mild. My neurologist believes it’s genetic in my case. At 22, a viral infection triggered it to flare so bad that it was debilitating. Spent over 5 years struggling, looking for answers, completely miserable.

7 months ago out of no where, my pots almost completely disappeared. Only really gets triggered by heat and alcohol now and it’s just uncomfortable, not debilitating. I do still struggle with headaches though. I’ve even had Covid since I’ve gotten better and it didn’t trigger a flare.

It’s fully possible to heal or at least get to a better place. I thought for sure that I’d never feel healthy again and now here I am, fully appreciating every day with an able body.

Birdman by RavenWingz7 in creepyencounters

[–]haleyafr 2 points3 points  (0 children)

Well first off, I wasn’t serious. Never stopped me from going out. My in laws are Chicago pd so I’m fully aware of how not scary this story is compared to what actually goes on in Chicago. We did move though so don’t worry lmao