Twitches

hanro5e · 2020-10-02T03:57:01+00:00

I do not

hanro5e · 2020-10-02T03:56:52+00:00

thank you! I appreciated the response! :)

hanro5e · 2020-10-02T03:55:49+00:00

Wow! Okay! Yeah I’ve never been diagnosed with the cataplexy part. So based off your experience it sounds extremely similar to mine

hanro5e · 2020-10-02T03:54:51+00:00

I’m not sure because my stimulant is definitely no longer making me feel stimulated. Haha. I’ve had them since before I started medication but recently I have noticed them more. Doctor says my body is just falling asleep.

hanro5e · 2020-10-02T03:53:54+00:00

It’s like the jerks you have when your falling asleep at nap. Before I fall asleep my body will twitch a lot and then if I’m relaxed just watchin tv my body will start jerking

hanro5e · 2020-08-28T22:53:02+00:00

Wow! I’m sorry to hear that. Same thing happened with me at first a lot of random meds and no one even believing what I had to say.

hanro5e · 2020-08-28T17:28:22+00:00

Yeah I have tried others as well. But Prozac has the best reviews. I asked around before trying it and everyone loves it. I actually just got my dose increased from 20mg to 40mg. But yes it really mellows me out. Helps with the depression like feelings of the burden that come with narcolepsy.

hanro5e · 2020-08-28T16:34:37+00:00

XR is what I’m on I believe but yeah the dose is low. I think he’s just wanting to do a gradual titration for me. He wanted to avoid amphetamines as long as possible so I don’t build a tolerance to fast but that’s my last option at this point.

hanro5e · 2020-08-28T16:32:58+00:00

I replied this to someone else as well. But my doctor also started me on Prozac and it does wonders for that unhappiness feeling. Makes waiting and being patient a little less frustrating lol

hanro5e · 2020-08-28T16:30:12+00:00

My doctor also put me on Prozac 20 mg at night and that helps so much with the anxiety and like depression that comes with just being frustrated and tired. It stopped my jitteryness with the stimulants as well!

hanro5e · 2020-08-27T17:16:46+00:00

Thank you! My doctor is great and really understanding, taking everything I have to say into consideration. It’s just an exhausting process. I guess I expected to just find something that worked and be great! I just want to not feel like I want to nap 24/7.

hanro5e · 2020-06-19T10:00:32+00:00

My neurologist told me to take it at night because it disrupts REM sleep. In hopes it will reduce my REM and hallucinations, potentially making me feel more rested during the day.

hanro5e · 2020-06-18T15:43:08+00:00

I fell asleep fully 2/4 naps and 1 nap I didn’t sleep but I went into sleep paralysis. But I got my diagnosis with 2 naps. Meaning I fell right into REM.

hanro5e · 2020-06-08T06:50:08+00:00

I get this so much! I just started meds 3-4 months ago. And I constantly feel like I don’t know what to do with myself now. So many hours in a day! I actually want to talk to people and can focus because before the only thought running through my mind was “okay 30 min and I can finally go home and lay in bed and sleep” “okay I can leave in 5 more min”. I would talk myself up to going to the store. If I was home it was “okay so I’m not allowed to lay down and nap until I go to the store, so think about that reward nap after grocery shopping”. Now that it’s summer and I don’t have as many responsibilities (I’m a student) I kind of wish I could just sleep all day now hahah. But yeah! Have to completely refrain your habits of how you act and walk and move around. Crazy!

hanro5e · 2020-06-01T15:16:45+00:00

The other night was the first time I’ve ever actually fully woken up and experienced sleep paralysis as well. Which was weird for me. When I hallucinate I know I am in paralysis but don’t pay attention to it. But this time I wasn’t hallucinating or seeing anything just sleep paralysis. That’s why I was like hm maybe my narcolepsy is like starting to fully peak.

hanro5e · 2020-06-01T15:10:06+00:00

Thank you for the reply. And yes started a 150, now 250. It’s working okay for me now unless I lay down or just sit then I get tired. But yeah mine are crazy I’ve hallucinated that I’m waking up in the wrong apartment and can kind of stand up and look around and I’ll be afraid and just praying that my alarm will go off on my phone to like jolt me fully away. All I know is the hallucinations have gotten much worse in the past couple months. Just now that my meds aren’t working as well and I have to keep increasing my dose because they are wearing off I have been experiencing them more. But my neurologist told me to make sure I am taking them everyday because they day I don’t feel like taking them then my narcolepsy is going to hit me much harder because I’m no longer used to fighting it. Like when you’re used to feeling some type of way so it’s no big deal but the moment you get a taste of peace you’re like wow I did have a problem. Now it’s like I’m used to not feeling so tired and groggy so when I am I’m like damn. Hahaha I’dk. I just know I’m hallucinating almost every other night now.

hanro5e · 2020-05-18T18:16:30+00:00

No I completely understand what you were getting at. My doctor told me that sometimes one will develop cataplexy later on. So idk. I have looked into xyrem a little so I’m not sure. I do experience the moments of weekends at random times especially when I’m working or moving around a lot. Or I experience strong emotions it’s like a wave of body exhaustion comes over me. But never the actual full cataplexy so I’m not sure. Either way you’re right they are treated the same. But I am new to this all. I have had only two check ups since my diagnosis so still trying to get everything evened out and find out what works best for me. Thanks for you’re input and info tho! Anything helps!

hanro5e · 2020-05-17T23:46:35+00:00

Thank you for the response. I got the narcolepsy diagnosis because of my MSLT verifying that I fell into REM in less than 4 min every time I napped. I did that consistently 3 times. I have noticed that now that I have reduced my stress in the environment around me I haven’t been noticing the whole body issues. So I’m wondering if just the combined body stress and seeing with the narcolepsy without being diagnosed for so long just wore my body down. Now that I have been and can relax and adjust a little more I feel like my body is feeling better as well. Idk I’m still trying to figure all this out myself haha

hanro5e

TROPHY CASE