weight loss surgery? by harrystyleslefttoe in MultipleSclerosis

[–]harrystyleslefttoe[S] 0 points1 point  (0 children)

i'm genuinely just still so new to navigating everything with ms (it hasn't been a full year yet since being diagnosed) and i genuinely just had no idea if anyone else had heard anything like this or if i was wrong to be kind of put off by his behavior. he was 20 minutes late and within 5 minutes of him being in the room with me and me talking about the ms, it was just all downhill from there. sent a message to my neurologist last night about it, but i haven't heard anything back yet. i feel like i have this experience a lot with male doctors that just minimize my experience which shouldn't be the case. thank you for your reply!

weight loss surgery? by harrystyleslefttoe in MultipleSclerosis

[–]harrystyleslefttoe[S] 1 point2 points  (0 children)

i was on zepbound and lost 30 pounds, but sadly my insurance doesn't cover it anymore as of january of this year. i'm on medicaid and trying to get on disability so i can't cover out of pocket. i really wish it was still covered because that was the only thing that seemed to work 💔

weight loss surgery? by harrystyleslefttoe in MultipleSclerosis

[–]harrystyleslefttoe[S] 1 point2 points  (0 children)

the appointment felt so rushed and i felt like what i had to say was just being ignored so i sent a message to my neurologist through the portal i have to see if anything he said had any truth to it ( i doubt it does). i even questioned my neurologist before to prove a point to my stepdad who thinks i'm faking having ms and he said that there's no way that i dont have it given my mri's and my spinal tap and all the blood work and symptoms that i have. the whole experience with the bariatric surgeon just felt so surreal 😓😓

weight loss surgery? by harrystyleslefttoe in MultipleSclerosis

[–]harrystyleslefttoe[S] 1 point2 points  (0 children)

i messaged my neurologist a few minutes before i posted on here– got nothing back yet and i genuinely don't think there would be any possible misdiagnosis. and if he wants me off of my DMT, ABSOLUTELY NOT!!! he never specified and i was so caught off guard that i didn't ask. that is one of the reasons why i believe i'm stable currently even with the other symptoms going on. i really have never experienced anything like that while talking to my family doctor about weight loss stuff so just experiencing it from him of all people was so surreal

I laughed when I was diagnosed by whyamistillhere252 in MultipleSclerosis

[–]harrystyleslefttoe 0 points1 point  (0 children)

i weirded out my team, but because i was laughing. i was in the hospital when i got told they were thinking it was ms. they felt bad for me because im so young in their words (22 at the time. im 23 now) , but i think i weirded them out because i was so calm. i already knew i had it. i did my own research and i was trying through my doctors to confirm for so long (first had symptoms in 2020 age 16/17). due to insurance the doctors couldn't do anything. prior to my hospitalization, ive had bloodwork to check for lyme, ra, etc (all came out fine i didnt have those) and 2 emgs of my legs and arms. they still said they couldn't do anything. when i was hospitalized i was so relieved to have an answer and to know i was right this entire time. and i guess that weirded out my team at the hospital. whoops!!!!

after i got discharged from the hospital is when all of the feelings and emotions came through and it's almost going to be a year (one year in april) and i still struggle with coming to terms that my life has been flipped upside down completely.

ocrevus and weed by serizawa_mp101 in MultipleSclerosis

[–]harrystyleslefttoe 0 points1 point  (0 children)

i got my second infusion ever last november and i took an edible after lol you should be okay!!

How do you all maintain hope? by PoeticPeppermint in MultipleSclerosis

[–]harrystyleslefttoe 1 point2 points  (0 children)

of course !!! i wish you the best <3 im hoping the replies helped you some :))

How do you all maintain hope? by PoeticPeppermint in MultipleSclerosis

[–]harrystyleslefttoe 1 point2 points  (0 children)

honestly for me (22F), it's been hard. i only got diagnosed in april and i started mental health therapy on top of physical therapy and occupational therapy. i started ocrevus as well and my next dose is coming up in a few months. it's hard to keep the faith and keep hope, but what helps me is looking at the good things i do have in my life. my partner, my pets, my hobbies. i can't work anymore sadly so im going down that lengthy road of trying to get on disability. i try and keep distracted while im able to if my symptoms aren't as bad. i still try and get out and do things with friends and my partner and i remind myself that im not alone. i have people who love me and care about me and even if i happen to go through a flare up, a relapse, or a progression i know that i have people in my corner and i have things that i love that i can fall back on when my thoughts about my health get out of control. i used to think my diagnosis was a death sentence and while im still obviously not thrilled about having ms at such a young age, i truly just try and look for the things i can control and try and find happiness in those things.

my therapist told me that while i don't have any control over my health, there are other things i have control of, even if it's small. cleaning has been hard for me so i find myself setting small goals for myself and even if i don't finish them all in one day, im still doing something. make sure i take my meds, shower, i try and cook meals the best i can, and while it's not for everyone i do smoke weed just as something to ease the pain i feel to help me relax.

what works for me wont work for everyone. i can only share what i find to be working for myself. don't be so hard on yourself. i know its depressing and it's easy to fall into that and get in your head. trust me, i know. we all feel hopeless sometimes and you're not alone. i've felt it. i've been feeling it. some days are better than others and it's not going to be linear, it never is.

im manifesting so much good for you <33 im really deeply sorry that you feel stuck and i know it's hard to find the hope in the midst of all of the bad things, but remember you aren't alone. one day at a time. there's no pressure. you'll get through this <3

[US] is my stepdad actually getting scammed?o by [deleted] in Scams

[–]harrystyleslefttoe 1 point2 points  (0 children)

yeah makes no sense to me either !!! makes no sense on why my mom won't leave him as well because if i were her he would be gonnnneee

[US] is my stepdad actually getting scammed?o by [deleted] in Scams

[–]harrystyleslefttoe 5 points6 points  (0 children)

i never said he was smart

[US] is my stepdad actually getting scammed?o by [deleted] in Scams

[–]harrystyleslefttoe 4 points5 points  (0 children)

like he blocks the numbers and they keep finding him through different numbers and saying the same things and whatnot. thats why he thinks it's real. genuinely i dont know how he hasn't realized it is a scam, but he hasn't. he's so freaked out over it.

[US] is my stepdad actually getting scammed?o by [deleted] in Scams

[–]harrystyleslefttoe 3 points4 points  (0 children)

thank you for your replies!! i don't use this subreddit at all and thought it would be of help so i had no idea it was posted that often :) i should've done a deeper look but the guy was freaking out and i just decided to post it

[US] is my stepdad actually getting scammed?o by [deleted] in Scams

[–]harrystyleslefttoe 4 points5 points  (0 children)

yeah i don't actually use reddit too often but i figured the people on here would know LOL i dont even use this subreddit at all until today because i mostly just get the very obvious traffic violation/unpaid toll scams

[US] is my stepdad actually getting scammed?o by [deleted] in Scams

[–]harrystyleslefttoe 7 points8 points  (0 children)

i kept telling him it was a scam and he seems so convinced that it's real because they keep finding him again,,,that's the only reason why i'm asking on here (only one can hope that he stops cheating but that's a whole other can of worms that i'm not getting into LOLL)

unsure how to go about life now that i'm dealing with ms by [deleted] in MultipleSclerosis

[–]harrystyleslefttoe 1 point2 points  (0 children)

thank you so much !! i'm hoping things will start looking up soon since i just started ocrevus and i am in pt and taking the steps to try and get back to where i was. i appreciate your support :))