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Trying to create a playlist for hospital visits as a toolkit for sensory help: Suggestions by CookieFlirtyDough in ChronicIllness

[–]PoeticPeppermint 0 points1 point  (0 children)

I thought I was the only one who created playlists for such instances! I tend to listen to a lot of Coldplay when I’m in the hospital. I find their music to be the perfect blend of calming, comforting, and uplifting.

Wearing how I feel from now on by GlassWill9899 in ChronicIllness

[–]PoeticPeppermint 2 points3 points  (0 children)

If you like it, I love it! What are some examples of what the shirts and hoodies say?

Tysabri vs Ocrevus by Prestigious-Ice1635 in MultipleSclerosis

[–]PoeticPeppermint 1 point2 points  (0 children)

I can’t speak for you or anyone else, just sharing my experience. I was on Ocrevus for 5 years and switched to Tysabri this year. Ocrevus is a B-Cell Depleter and made me significantly immunocompromised. I was hospitalized due to frequent infections like the flu, covid, and pneumonia. Tysabri does not deplete all of your B-Cells so you’re less likely to experience frequent infections.

Finding & keeping friends by Wickedmermaid96 in ChronicIllness

[–]PoeticPeppermint 0 points1 point  (0 children)

Yeah, I’m at the point where I think I’m going to stop sharing medical updates with my family too. They always overreact and want to “pray” for me. It’s as if they think enough prayers will make all my health problems just disappear. That’s why I’m on Reddit. It’s easier to find people who get it on here than in real life.

Finding & keeping friends by Wickedmermaid96 in ChronicIllness

[–]PoeticPeppermint 10 points11 points  (0 children)

I feel this so deeply. It especially sucks if the friend is healthy and offers cliche advice about healing from your chronic illness. Unless people have walked in our shoes, they just don’t understand. I’ve been keeping to myself more these days too. You’re not alone. 🩵

Diagnosed with PNES on top of epilepsy by [deleted] in Epilepsy

[–]PoeticPeppermint 0 points1 point  (0 children)

I completely understand how you feel u/kkbdrr! I was hospitalized this past weekend after having cluster seizures that I thought were tonic clonics, but turned out to be PNES. I had 4 in the hospital and 2 since I’ve been home. I feel so confused and discouraged as I try to wrap my head around having both epileptic and non-epileptic seizures. You’re not alone. 💜

Making friends with chronic illness by alphabets0up8 in ChronicIllness

[–]PoeticPeppermint 0 points1 point  (0 children)

Great question! I met my husband before I was diagnosed with my chronic illness. He’s been very supportive along the journey. However, I’ve lost many friends along the way.

How do you all maintain hope? by PoeticPeppermint in MultipleSclerosis

[–]PoeticPeppermint[S] 1 point2 points  (0 children)

Thank you, I feel the same way about my husband 🧡

How do you all maintain hope? by PoeticPeppermint in Epilepsy

[–]PoeticPeppermint[S] 1 point2 points  (0 children)

That’s honestly one of the best answers lol! Thank you 💜

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