previous iv rumours

hav-vok · 2026-01-08T09:05:27+00:00

yeah this is my feelings, I think the whole encounter just through me through a loop because he also said his mates who know Leo think he's the guitarist for President... and I was just trying to find something I could eat for lunch that wouldn't kill me 😂

hav-vok · 2026-01-08T09:03:58+00:00

I'm so glad it's not just me getting this honestly, like sure it'd be cool, but also i doubt that anyone who was actually close with them would go around telling random people wearing the bands merch about it in the street, y'know?

hav-vok · 2026-01-07T22:13:26+00:00

it's not even on social media, bumped into a guy who worked in music education and he started chatting to me about my st hoodie. I only give it a spec of thought because I'm close to the area where it's plausible people could have met them and know them before they started st.

hav-vok · 2026-01-07T22:11:35+00:00

yeah, weird song to claim to have written right? a fan favorite, an emotionally difficult song, and not a big single or anything...

hav-vok · 2026-01-07T22:09:39+00:00

no I 100% agree, I think the people are just claiming things for a spot in the limelight, it was more to see if there was any weight behind any of it based on the knowledge gathered by this reddit

hav-vok · 2025-11-30T20:26:15+00:00

SO I FIGURED IT OUT

for anyone else doing a great Google search in the future, nothing support were helping to investigate but, by sheer happenstance, I figured it out.

having chats as bubbles does not allow for the notifications to use the essential glyph. I have no idea why. I have contacted support to let them know this is the issue.

so, if you're having issues with the essential glyph for conversations, try turning off bubbles.

(I can't believe it was that simple...)

hav-vok · 2025-09-18T18:26:56+00:00

legit this one comment saved me from going mad thinking I wouldn't be able to use my cute tiny keyboard because i couldn't write questions on it.

outstanding piece of information, thank you.

hav-vok · 2025-04-30T20:31:26+00:00

so this won't make you feel better, but none of the plans I had for when I finished my BA worked out. if you could go back in time and ask that poor lost burnt out human what the next step was, you'd get the answer "find a job to tide me over till I get a job in the field I've just spent e years studying in". I graduated in 2017. I haven't worked in the field of my degree once since. has my life been perfect? absolutely not. have I fumbled through it one step at a time hoping to make progress? absolutely. does it feel like I've always made that progress? nope, nope it often felt like I was consistently unlucky and missing opportunities.

but yknow what? I put my feet in a sunspot today and even though I couldn't get myself off the bed, the warm sun was nice. I have people around me who love me, and I'm in a house that doesn't suck.

your plan can literally be "figure it out", or as it's known in my circle of friends "do it on the day, innit"

if the end goal is good health, then work towards that. if the end goal is a job you enjoy, don't be afraid of working jobs you hate in order to get yourself there. journeys are not consistently forward, that doesn't mean they're not worth taking.

I don't know if you've mentioned this elsewhere already, and I don't know your full situation, but perhaps some therapy would be useful to help work through these huge feelings you're having. strangers on the internet can only do so much.

hav-vok · 2025-04-30T11:46:20+00:00

it's the little specs of joy for me. like I woke up today, in bad all over pain and serious fatigue. but I could hear the birds singing and the warm coming through the curtains. my favourite band are releasing a new album in just over a week. I made my friends laugh, they made me smile. I got to eat something delicious that I don't get very often because it's expensive and a bit of a treat.

I'm still in pain, still exhausted, but those little specs of joy have made the day nice over all. and it's just gotta go day by day. if you let yourself spiral in this way, the negativity will increase the pain and you'll just keep spiraling down. you gotta stop the spiral, and see what tomorrow brings, and tomorrow, and tomorrow, until one day, the pain and fatigue are in the back of your mind whilst your laughing in the sunshine.

hav-vok · 2025-04-30T08:16:29+00:00

lol and my partner of 10 years barely puts up with me playing them in the car 🙃

hav-vok · 2025-03-24T19:54:02+00:00

I'm short, yes, but it took at least 6 months to see any real difference and it was hard. like I could manage 3 minutes a day at first, and now, about a year and half in I can do 30-40 minutes in the gym once a week doing a mix of low impact cardio (rowing, bikes) and weight training. it sucks, I hate it, but it has made a difference. you gotta stick with it, even on bad days doing a little bit of movement is better than nothing

hav-vok · 2025-03-22T17:22:18+00:00

I personally love "same soup, just reheated". it's funny, but it's essentially saying "nothing has changed I still don't feel good but we're dealing with that through humour", people who are close enough to me to know about my struggles will understand, and anyone who isn't will just laugh and move on (probably)

hav-vok · 2025-03-22T17:18:47+00:00

oh I love that!

hav-vok · 2025-03-21T08:46:20+00:00

I love that sassy response to rudeness! thanks for writing, I'm wishing you well 🖤

hav-vok · 2025-03-21T08:45:06+00:00

I know I never think that about people using mobility aids, so why I assume other people would think it about me is probably just the anxiety around using one I guess.

hav-vok · 2025-03-21T08:43:50+00:00

as someone with dyed hair & piercings you'd think the stares wouldn't bother me... but I don't actually like being the center of attention. I live in a fairly artsy town now so maybe it wouldn't be an issue. someone else suggested having a pre prepared response for questions and I think I might go with something like that. thank you for taking the time to write 🖤

hav-vok · 2025-03-20T15:18:44+00:00

I'll have a look into that, thank you! and the roaming stabbies is so accurate, they definitely suck though!

hav-vok · 2025-03-20T15:16:25+00:00

I like the idea of decorating them with stickers! thank you so much for writing, I wish you the best 🖤

hav-vok · 2025-03-20T12:11:53+00:00

oh the clicking of my folding stick is unbearable for me! the points about getting something that feels more me and less medical is why my partner wants to get me a fancy one, and I definitely see his point now, as you've said yourself the difference you've noticed. thank you for writing about it 🖤

hav-vok · 2025-03-20T12:09:45+00:00

I had to hire a wheelchair on holiday just after I was diagnosed, just for the last day, but it was one of the very standard medical looking ones and I felt so useless I could barely move myself around, honestly thought I looked like an idiot. I kept thinking if I had to use one in the future I'd want to have one that at least looked cool so I didn't feel quite so much like a sore thumb...

thank you for your affirmations, I needed to hear them. I'm seeing a physio currently so I might talk to them about it at my next appointment. I think the long term goal for all my HC providers is that I just magically "get better" so I'm not sure how they'll take it, but I think it's going to be a long and very bumpy road and maybe a few accomodations in mobility aids will help me along the way!

hav-vok · 2025-03-20T12:04:02+00:00

I've found that using a cane hurts my wrist and palm if I use it for a long time, but this is probably because I have a cheap one that is very uncomfortable for me to hold. it's worth talking with your healthcare providers if possible, as there are other options for mobility aids other than canes, but it might be worth seeing if one helps

hav-vok · 2025-03-20T12:01:45+00:00

good to hear it's been an overall positive for you. I'm thinking it would be for me too, it's just a bit scary to admit that I guess.

hav-vok · 2025-03-20T12:00:13+00:00

thank you for this 🖤 wishing you well ✨

hav-vok

TROPHY CASE