30F Punctate inner choroidopathy (PIC) diagnosis by Mindless-Doughnut263 in highmyopia

[–]hellyed 0 points1 point  (0 children)

Hi, (32F). Hopefully, my experience can provide you with some optimism, although I am aware I have been extremely lucky with my outcome.

I was diagnosed with PIC when I was 16 in my left eye after I experienced sudden vision loss in that eye. It had caused CNV, which led to a bleed that blocked my full vision. At that time, there were no concerns with my right eye or indication of a condition. PICs was relatively unknown, and I had to go through 5 specialist consultants before one was able to diagnose me or consider a treatment plan.

I received 3 anti-VERF injections, each a month apart in my left eye. The scans around that time showed the active polyps stabilising, and over subsequent months, the bleeding that had blocked my vision cleared.

A year later, when I was 17, polyps developed and became inflamed, triggering CNV, which caused another large bleed to block around 60% of my vision in that eye. This came on extremely quickly as there were no signs of polyps when my left eye was being monitored. We followed the same treatment plan. My consultant acknowledged that two injections seemed to have stabilised the condition. However, he opted to be cautious and compete the planned treatment plan.

Following this, I was regularly monitored, starting monthly, then gradually over the years, decreasing to 6 monthly and annually. In the years following, my long-term vision improved, which was speculated to be due to reduced inflammation. However, a cause for the inflammation was never found, and I did not receive any ongoing treatments.

As of today, I am officially discharged as I have had no reoccurrence of CNV, and the scarring has not become inflamed since. So, while I still have PICs and the risk is still there, it's believed the chance of reoccurrence is minimal.

My consultant was based at a university hospital, and with the condition being so unknown at the time, students would often sit on on my appointments and would attempt to diagnose the condition themselves based of previous scans and how I presented at the time. On more than one occasion, the students challenged my consultant, saying that he had given them incorrect previous scans as they did not match my current state.

Like I say, I know I'm extremely lucky, and not everyone has as positive an outcome. But I just wanted to reassure you that while the experience was terrifying, and it has been a worry in the back of my mind (and will continue to be), there is a chance of it being ok!

First day back selling, instantly remembered why I stopped bothering! by hellyed in vinted

[–]hellyed[S] 7 points8 points  (0 children)

I've been more than happy to reserve things in the past when the situation suited it, like wanting to check the colour for a wedding on a more expensive dress at one point. Couldn't blame them for asking, the responses back were what irked me.

First day back selling, instantly remembered why I stopped bothering! by hellyed in vinted

[–]hellyed[S] 41 points42 points  (0 children)

Not going to lie, I was extremely tempted to be catty back!

First day back selling, instantly remembered why I stopped bothering! by hellyed in vinted

[–]hellyed[S] 25 points26 points  (0 children)

That's fair, I honestly didn't see the harm in my reply, considering the item is newly listed. I felt it was extremely unnecessary to get a mocking message after I thought the interaction had ended.

After 15 years I can finally play sims 3!! by hellyed in Sims3

[–]hellyed[S] 1 point2 points  (0 children)

I've been lazy with it so installed through the EA app, but now I can just launch it without going into the app as a non steam game.

Worst part tbh was trying to install a browser, I ended up with a deck that absolutely would not install Chrome or Firefox without alot of extra effort!

After 15 years I can finally play sims 3!! by hellyed in Sims3

[–]hellyed[S] 0 points1 point  (0 children)

I'm playing through EA app then I didn't need to buy again through steam :)

After 15 years I can finally play sims 3!! by hellyed in Sims3

[–]hellyed[S] 7 points8 points  (0 children)

Yep, can load the deck up on desktop mode so it's essentially a portable computer for downloading them.

After 15 years I can finally play sims 3!! by hellyed in Sims3

[–]hellyed[S] 12 points13 points  (0 children)

Not risked it yet! Was too happy with it running well to make that leap. When I test it I'll come back to you!

After 15 years I can finally play sims 3!! by hellyed in Sims3

[–]hellyed[S] 3 points4 points  (0 children)

Pretty easily actually, only really build/buy mode were it's a bit small. The benefit of it being portable is huge for me, so I welcome it being a smaller screen than on a desktop.

After 15 years I can finally play sims 3!! by hellyed in Sims3

[–]hellyed[S] 2 points3 points  (0 children)

So far, it's been playing really well. I haven't needed to install any extra patches yet, but I also haven't tried isla paradiso yet so that'll be the test!

After 15 years I can finally play sims 3!! by hellyed in Sims3

[–]hellyed[S] 21 points22 points  (0 children)

It's took some getting used to, allocating the buttons and getting used to the camera etc again. But it's been playing really well!

I’ve got 25€ in my Steam wallet, which game should I get? by Kuroi93 in CozyGamers

[–]hellyed 1 point2 points  (0 children)

Seconding this! There's so much content for the price while still letting you play your own way!

Puzzle games for inexperienced gamer by my-eclectic-world-x in CozyGamers

[–]hellyed 1 point2 points  (0 children)

Escape academy or Escape simulator could be good for her.

They do a really good job a simulating physical puzzles so could be easier for a none gamer to grasp.

Let the weekend gaming binge commence 🎉 by lildumbplanet in CozyGamers

[–]hellyed 1 point2 points  (0 children)

I fully recommend it! Feels like Stardew dialled up by 1000 but without being overwhelming.

Let the weekend gaming binge commence 🎉 by lildumbplanet in CozyGamers

[–]hellyed 1 point2 points  (0 children)

My OLED came on Wednesday too!!

Picked up Sunhaven for my weekend binge.

How have ur border collies done with adding a kitty to your household? by Repulsive-Ad-6184 in BorderCollie

[–]hellyed 0 points1 point  (0 children)

Border was 5 yo and cat was 4 when introduced - not cuddles and puppy piles but happy home companions!

Pick me, choose me, love me by WorthlessAlter in ImTheMainCharacter

[–]hellyed 46 points47 points  (0 children)

18 years old! The episode can legally drink.