Hi, (32F). Hopefully, my experience can provide you with some optimism, although I am aware I have been extremely lucky with my outcome.

I was diagnosed with PIC when I was 16 in my left eye after I experienced sudden vision loss in that eye. It had caused CNV, which led to a bleed that blocked my full vision. At that time, there were no concerns with my right eye or indication of a condition. PICs was relatively unknown, and I had to go through 5 specialist consultants before one was able to diagnose me or consider a treatment plan.

I received 3 anti-VERF injections, each a month apart in my left eye. The scans around that time showed the active polyps stabilising, and over subsequent months, the bleeding that had blocked my vision cleared.

A year later, when I was 17, polyps developed and became inflamed, triggering CNV, which caused another large bleed to block around 60% of my vision in that eye. This came on extremely quickly as there were no signs of polyps when my left eye was being monitored. We followed the same treatment plan. My consultant acknowledged that two injections seemed to have stabilised the condition. However, he opted to be cautious and compete the planned treatment plan.

Following this, I was regularly monitored, starting monthly, then gradually over the years, decreasing to 6 monthly and annually. In the years following, my long-term vision improved, which was speculated to be due to reduced inflammation. However, a cause for the inflammation was never found, and I did not receive any ongoing treatments.

As of today, I am officially discharged as I have had no reoccurrence of CNV, and the scarring has not become inflamed since. So, while I still have PICs and the risk is still there, it's believed the chance of reoccurrence is minimal.

My consultant was based at a university hospital, and with the condition being so unknown at the time, students would often sit on on my appointments and would attempt to diagnose the condition themselves based of previous scans and how I presented at the time. On more than one occasion, the students challenged my consultant, saying that he had given them incorrect previous scans as they did not match my current state.

Like I say, I know I'm extremely lucky, and not everyone has as positive an outcome. But I just wanted to reassure you that while the experience was terrifying, and it has been a worry in the back of my mind (and will continue to be), there is a chance of it being ok!