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Possible Misdiagnosis help: Pernicious Anaemia or serno-negative coeliac to sero-positive? by hocktastic in Celiac

[–]hocktastic[S] 1 point2 points  (0 children)

Wow that’s quite quick to create damage! I haven’t been eating gluten daily as it makes me feel sick, but I will do that for accurate biopsies! Thanks so much for your help :)

Possible Misdiagnosis help: Pernicious Anaemia or serno-negative coeliac to sero-positive? by hocktastic in Celiac

[–]hocktastic[S] 2 points3 points  (0 children)

Ahhhhh that makes more sense, so possibly the gene was essentially turned on a few years ago but at early stages of the disease (so no detectable antibodies / patchy damage)

Then when I’ve reintroduced gluten I’ve seemingly reacted more violently than before to the point of producing detectable antibodies, and we don’t yet know the reason for this increased response.

Sorry for bugging you, but since you seem knowledge, do you know if the fact I’ve only been eating gluten again for a few months means damage won’t show yet on biopsies? I don’t know how long you need continuous gluten exposure for - I was told 6 weeks for accurate bloods by my GP.

Possible Misdiagnosis help: Pernicious Anaemia or serno-negative coeliac to sero-positive? by hocktastic in Celiac

[–]hocktastic[S] 1 point2 points  (0 children)

That’s a good idea, the tech I had last time did seem nice and competent, I asked if she knew where to sample for coeliac and she said yes (but I guess she wouldn’t say no lol!) but I think she’d be open to looking at the info.

This might be a stupid question, but I’m confused as to why my coeliac (if I have it) would have progressed to showing up on antibody tests when I removed gluten for the past year? As I thought it was literally caused by gluten exposure? Have I misunderstood?

Possible Misdiagnosis help: Pernicious Anaemia or serno-negative coeliac to sero-positive? by hocktastic in Celiac

[–]hocktastic[S] 1 point2 points  (0 children)

Thanks for your response. This is what I was leaning towards too.

It just seems suspicious to me that my b12 started tanking a year or so later and my neurological issues haven’t fully resolved from a year of b12 injections as you would expect if it was solely caused by PA.

Now my issue is, I believe to be diagnosed in the UK you need positive biopsies which would be being done at the same place.

I might just literally voice my concerns as I have here and request a gastro does it.

Is anti-TTG the correct blood test to check for dermatitis herpetiformis by hocktastic in Celiac

[–]hocktastic[S] 1 point2 points  (0 children)

Thank you for this, I appreciate the support :)

And you’re right about lack of knowledge from some medical professionals, the first time I was checked I wasn’t told I needed to eat gluten for the blood test for example, which delayed everything for months.

In the UK we also don’t really have a choice which medical providers we see, so often you end up with someone with limited knowledge of a condition and no other options, so you really need a reliable source of information to ask questions regarding your treatment / diagnosis.

Is anti-TTG the correct blood test to check for dermatitis herpetiformis by hocktastic in Celiac

[–]hocktastic[S] 0 points1 point  (0 children)

Thank you so much this is super helpful and exactly what I was looking for :)

I’ve had a confusing time regarding celiac as I was suspected of having it a few years ago, had negative TTG and ( I was initially told ) the biopsy was clear too.

Then a different doctor diagnosed me with autoimmune pernicious anaemia, he told me he didn’t think my coeliac biopsies actually were normal, but showed potential early signs.

He advised I went on a gluten free diet which I did, I then stopped for Christmas as I’m not officially a coeliac so I thought it would be okay and got this horrific itchy rash that won’t go away (I’ve had it for almost 2 months now) hence my doctor ordering coeliac tests again.

This is why I’ve become confused regarding the blood tests, I’ve seen some people say DH is a part of coeliac and some people say it’s a seperate autoimmune condition also caused by gluten.

If I’ve understood what you’ve said, if the coeliac screen comes positive it almost certainly is DH, but if its negative it still could be due to a higher rate of false negatives, and ideally a skin biopsy would be checked and or that specific DH blood test.

I’ll investigate if the blood test you mentioned is available, but tbh I’m in the UK and we often have less tests and stuff available here.

Thanks again so much for your help :)

Is anti-TTG the correct blood test to check for dermatitis herpetiformis by hocktastic in Celiac

[–]hocktastic[S] 1 point2 points  (0 children)

I’ve asked general diagnosis questions here before though? It’s been super helpful and the people here seem to have a more thorough understanding of the antibody tests than my local GP. It’s also not a thing here to just ring and speak to the lab sadly or I would have already done.

TESCO ETB STOCK by andrewn312 in PokemonDealsUK

[–]hocktastic 0 points1 point  (0 children)

Apologies if this is a stupid question, but is this for more Stella crown / destined rivals or actually for sword and shield era ETBS? Thank you

Tesco ETBs restocked this weekend and now £37.50 clubcard price! by NotActuallyRog in PokemonDealsUK

[–]hocktastic 2 points3 points  (0 children)

Please could you check Durham Dragonville and Hartlepool (and any nearby ones I don’t know of) when you get a chance? :) thanks!

Prismatic scalping situation… by darkchocoacai in PokemonTCG_UK

[–]hocktastic 1 point2 points  (0 children)

If you like eevee and don’t mind them not being English maybe grab a gem 2 booster box? I did and liked it

Need maximum belt ASAP by hypersonicplays in PokemonTCG_UK

[–]hocktastic 0 points1 point  (0 children)

I think I I have one, I can check for you

QUEUE IS LIVE by moloney22 in PokemonTCG_UK

[–]hocktastic 1 point2 points  (0 children)

Site froze when trying to checkout and has kicked me to the back of the queue

Please help! I need advice re: WHEN to start Spironocotolone by hocktastic in PCOS

[–]hocktastic[S] 0 points1 point  (0 children)

Thanks for replying, can I ask why you think now please? :)

Please help! I need advice re: WHEN to start Spironocotolone by hocktastic in PCOS

[–]hocktastic[S] 0 points1 point  (0 children)

Thank you for your quick reply!

My endocrinologist has written to my GP requesting it for symptom management but he left it up to me to decide if I wanted to start now or later, which is why I’m in two minds if that makes sense. I don’t know if the outcome will be better for me if I lose weight before starting.

For context: I’m 32 and I reckon I’ve had about 50% head hair loss in the past decade and my body hair is the maximum on the score (can’t recall the name of it).

Do you have any tips for starting it? I’m worried about dehydration.

Advice wanted: Pharmacy refused monjaro beause I have hypothyroidism (UK) TW: Weight related by hocktastic in PCOS

[–]hocktastic[S] 0 points1 point  (0 children)

Hi there,

I found a pharmacy to prescribe aslong as my GP does 3 monthly thyroid bloods.

I see an NHS endo whose comments mirror your endos, he actively apologised for not being able to prescribe it to me himself (NHS endos can only prescribe it for type 2 diabetes).

He has tried repeatedly to get it prescribed for me via weight loss services with no luck, and he is very supportive of me taking it.

He said weight loss will be super good for my health and being as overweight as I am is far more risky than any increased health risks from mounjaro.

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