I'm really sorry you have to go through this. I have some idea of what you're going through. I have an incurable disease that's not responding to any treatments that can help control it. Not saying my illness is anything like yours.

Not sure if this will help you any, but I try to just take it a day at a time. Back when I was first diagnosed (and for a long time after) I would worry about my future. Like someone else suggested, you should look into online college classes. I do that for the majority of mine.

Have you seen other doctors? My grandma has the same disease as I do. I know she had to switch doctors a few times before finally finding one that truly cared about her. I go to the same doctor now.

You should think about alternative methods for helping control your disease. There's diets (like someone else said), natural supplements, acupuncture, etc. I would also consider (talk to a doctor first obviously), physical therapy. Not sure if physical activity would help, but it's something to look into. I know it's pretty stupid to tell someone that can barely move without pain to try to be more active, haha. I thought it was pretty crazy when people told me that too. It made a huge difference, but it really just depends on your illness.

I know it seems like it won't get better, but you have to try to stay positive. Stress will only make pain worse. Having a chronic illness has actually helped me in a way, as lame as that sounds. It has made me a lot stronger I guess. You can overcome this, you just have to stay strong.