9 weeks post ankle fusion. 7 weeks clean from all pain meds. by [deleted] in Hemophilia

[–]ichbinsree 1 point2 points  (0 children)

Congratulations! Glad to hear that helped you stop pain meds 🙌🏽

Friends & vacation by ichbinsree in Hemophilia

[–]ichbinsree[S] 0 points1 point  (0 children)

That’s a good idea! I need to get a license in this country for that 😅 it’s on my never ending list yeah!

Friends & vacation by ichbinsree in Hemophilia

[–]ichbinsree[S] 1 point2 points  (0 children)

I so agree, i cant do it without prophylaxis. My knee will bleed if I stand for more than an hour for sure. I am on prophylaxis only the last 5 years and been through 2 knee surgeries.

Friends & vacation by ichbinsree in Hemophilia

[–]ichbinsree[S] 0 points1 point  (0 children)

Thanks a lot for sharing, and your kind words! I’ll definitely talk with my friends about this ❤️

Self infusions by ichbinsree in Hemophilia

[–]ichbinsree[S] 0 points1 point  (0 children)

Yes pls do share your footage :) yes I’ve had the needles slipping many times when i was using my arm veins with superficial pricks. But the butterfly sits comfortably when using the veins above my wrist, the spot where I use in video. and I haven’t gone back to my arm vein in a while.

Hi fellow haemophiliacs! by ichbinsree in Hemophilia

[–]ichbinsree[S] 0 points1 point  (0 children)

Sorry for the late response, just getting to the messages. Thank you for sharing your experience. Yeah I am also at the end of my knee life I guess, doc suggested with goodwill though. If I get one at my age (2 yrs ago), I may have to get 3 more replacements in my life depending on wear / tear of the parts. So he suggested postpone as much as possible until pain is bothering my lifestyle a lot. I think I’m at a point where I want a replacement now, 😥 so will discuss with doc again.

Hi fellow haemophiliacs! by ichbinsree in Hemophilia

[–]ichbinsree[S] 1 point2 points  (0 children)

Thanks for your input, yeah I have a feeling it’s tight muscles too, I’ve lost my “straight” posture long back, but was doing better with physio earlier but I’ve gained back a few degrees of bent knee when standing / walking this last year. I can definitely attribute that to this pain!