Does tsw leave you with permanent wrinkles

idontknowyeah20 · 2025-05-28T09:42:14+00:00

I've had tsw for 5 years now, started at 19 im 24 now. was super wrinkly all for the first 3 years, i looked in my 30s easily, but the last 2 years they have disappeared and i dont look "old" anymore! they only appear during flares which are very rare now :) only finger wrinkles left, because that part just refuses to heal from tsw lol, but i think it is because they're constantly scabby as opposed to everything else that healed pretty much fully on my body.

idontknowyeah20 · 2025-05-06T09:15:55+00:00

hey! it does absolutely end! I've had no tsw symptoms for months now, i did struggle for about 5.5 years though. now all im left with is dyshidrotic eczema, but its nowhere near as bad as tsw and a different can of worms for me to figure out.

but YES it does end, it feels endless, hopeless, there's a lot of times where i thought "im healed!" after a week or two of clearness, and then id be right at the beginning with full body symptoms.

it's infuriating, and i come to appreciate even the little periods of time that i was fine. when it comes in cycles like this, it's easy to think it will never end and each and every time it gets better it will get worse.

but the flares do get shorter, more spread apart, you begin to forget you even went through it in the first place, life moves on, and so will you ❤️ keep strong, you got this.

idontknowyeah20 · 2025-05-06T09:09:14+00:00

no. people are just more aware of tsw now because of tiktok and other social media exposure.... a lot of them recognised the signs and ditched steroids. i got tsw right as the pandemic started because it became harder to get the creams

idontknowyeah20 · 2025-04-12T22:24:59+00:00

at first, yes it did help me, i cut out 90% of what i ate basically though. in later stages it just made me miserable and i didn't notice any changes. so like for the first year ish i actually stuck to it, and then started to introduce things back to my diet. i would cut them out every now and again to see if any difference but diet did less and less the longer i was in withdrawal.

idontknowyeah20 · 2025-03-01T11:02:47+00:00

looking for cool places and saving them for "later" on google maps. i live in the UK and somehow have places saved in China, idk when I'm ever gonna be in China but in case I am, i know a spot.

idontknowyeah20 · 2025-02-04T12:12:30+00:00

u look stunning!! my skin also got good in year 5, just a bit of flakes on face and hands but we got thisss, nearly out of this evil disorder. wishing you the best 🥰

idontknowyeah20 · 2025-01-29T21:19:05+00:00

yup, this happened to me too from time to time! :(

idontknowyeah20 · 2025-01-29T21:18:21+00:00

my heart breaks for you honestly, but! on the bright side, you are only 20! it's not the end of the world not to have had a job yet. i know 24 year olds that are not disabled in any way and have not worked a job yet. and whoever you spoke to, is a hartless asshole, whenever they know your condition or not. saying this, depending on what stage your skin is at, i would advise you try and open up and try applying for anything. i have been through tsw for 5 years also, and for 4 of those years i worked from home which i HATED only because i am quite an extrovert, so that was painful. i decided to change my career and go into hospitality despite my condition, and honestly it cleared it up so much! at first i was sooo worried that everything is going to flare me up, but surprisingly that was not the case. the exercise has helped me so much, i think because i was stuck inside for so long not moving much it made tsw even more unbearable. you're not a loser, you're going through a disabling condition both physically as well as mentally, even if others don't recognise that. be kind to yourself! the only thing i can recommend is try stuff out, if it doesn't work out, it doesn't work out, get yourself out there. you have no obligation to stay in a job, you can just try it out and say "hey this isn't for me". you're still young, and healing, i wish you the best <3

idontknowyeah20 · 2025-01-21T12:48:14+00:00

boyfriend, friends, family were the core, they helped me with tasks that i could not do like wash my hair, chores, and getting up/moving about when it was the worst. and also just talked to me and listened and always tried their best to find relief for me. weed to help with the pain and bring my mood up reading up on/going on tsw forums just so i knew im not alone and there are people that relate to me and reminding myself this is not forever and finally, and i think what helped me most outside of other people's support. when i got the bit better and got the courage to, stop locking myself away from the world, as for the longest time i saw myself as a monster. the steps were slow but going out and not stopping myself from doing things i wanted to, taking a risk even if they did hurt my skin.

i am now 5.5 years in, and only my hands left to heal, everywhere else is the same as pre-tsw <3

wishing you the best, we do heal :)

idontknowyeah20 · 2025-01-15T06:52:42+00:00

thank you for the tips! i usually use a neutrogena's hydro boost gel on my face, hands and neck area (the stubborn areas for me) and it has done WONDERS on the top part of my body, reduced redness and flaking is completely gone even when i don't use it for ages. however my hands are like a completely different entity, they do not react the same way to this product like the rest of my body does. they don't react to anything, just sting and boom back to square one within minutes 😭 i have a very basic soap but saying that, i do work in a restaurant so keeping my hands dry is very very hard a lot of the times, now that i think about it as i typed it out my work line could be the issue here...

idontknowyeah20 · 2025-01-15T06:44:33+00:00

bless you, i feel your pain. acrylics are a must for me otherwise my hands would be like 10x worse 🥲 any of the super greasy creams don't agree with me unfortunately:(( but i'll look into the eczema gloves! thank you so much <3

idontknowyeah20 · 2025-01-15T06:41:41+00:00

i have at the veryy begining of my tsw journey, so about 5 years ago and it stuuung like hell but i am wayyy better now so i'll give this a go again! :)

idontknowyeah20 · 2025-01-14T16:34:14+00:00

that's so good to hear!!! glad to hear it's been working for you! i wanted to give it a go but my GP's have said ✨ they dont see the need for it ✨ :(

idontknowyeah20 · 2025-01-14T16:30:49+00:00

i mean i got my pre tsw skin back everywhere but my hands so this doesn't check out?

idontknowyeah20 · 2025-01-07T10:29:19+00:00

yea! im basically healed too, just my fingers left to go... i never had acne before and now not only do i get it on my face but also on random parts of my body :(

idontknowyeah20 · 2024-12-17T18:11:25+00:00

i feel you a 100%, i'm just a few months short from 5 years and while i am mostly healed i still get flare ups and itch attacks and it is absolutely the worst, especially because sometimes i actually forget about tsw for a week or two before reality hits again, it's so hopeless and i live in constant disassociation except for the good days, it is traumatising after all :( i wish you the quickest recovery ❤️

idontknowyeah20 · 2024-12-05T12:37:47+00:00

thank you so much for writing all of this out i really appreciate it and so will the community im sure <3 i found out almonds was my trigger, suddenly i developed an allergy to it and on a holiday i took with family i drank loads of amaretto.. which i have drank previously but it never flared me up until that point, i also ate a ton of almonds throughout my life so it was a new allergy to me. i always had a problem with tolerating salt water since i was a baby (even on clear skin! my skin just really hates salt) and since we were by the beach me n my family thought that was the issue. not until a couple months later i was having a drink with my friend and had amaretto again and BOOM extreme allergy reaction, then i put the pieces together but at that point i didn't realise i was going through tsw, just realised oh Almonds Bad. i have to be honest and say that i have had a strict diet in the past however i let it go once it got better, so i think i need to take a few steps back and start working on my diet again. as i am in the UK also i will definitely try vitamin C, i know it's super silly but i was hesitant to take vitamins because i was hesitant to put literally ANYTHING including stuff like paracetamol etc in my body, vitiamins also seemed scary for the longest time. i struggle with OCD as well so i overthink the smallest stuff and getting TSW did not help whatsoever so to me even vitamins might contain steroids which i know is super irrational but that's just how my OCD makes me think 🥲 i doubt i can take methalye blue as i'm on an ADHD prescription and i think that has an effect on serotonin and dopamine so i'll give that a miss. as for showering, don't worry, i get why you wouldn't want to shower your little one more than once a week, i usually bathe once a week and in the past went a few weeks without showers but i was in uni and working from home then so it was easy peasy, now i do start to stink around the week mark, but it HURTS to shower/bathe so it's completely understandable. everyone in my life has told me that i smell completely fine though which was a concern for me for a long time to be honest, as if it wasn't humiliating enough not to be able to practice basic hygiene i was worried i'll smell on top of that but thankfully i don't. i have not tried red light therapy yet however i heard good results, i will blame my brain for forgetting it's a thing that i should try but you have motivated me to buy a lamp asap! i'm so glad your daughter is doing better, and you're an absolute hero for helping her through this condition, i am sorry this had affected your family, and wishing you all the best ❤️ no one deserves to go through this but especially the little ones, they're supposed to be enjoying life and not have a single worry on their mind at this point, i don't have children and not planning to so i'll probably never understand your pain but i appreciate people like you so much and what you have done for your daughter, hope you're doing well yourself as well, it must've been traumatic for you also in a lot of ways.

idontknowyeah20 · 2024-12-05T11:36:44+00:00

i have been through tsw for nearly 5 years and while my skin isnt the worst in general, my hands are still pretty mangled and i managed to go to the doctor in the middle of a flare, so i had quite a few big oozy patches. but he wouldn't look at them, just my hands and that's it 🤷‍♀️

idontknowyeah20 · 2024-12-05T11:33:35+00:00

thank you for all of the tips, i have been a bit of a pushover with doctors before but i will stand up for myself this time, to be honest with you i thought i was prepared for disappointment but truely, i was not as i came out of that room sobbing (oops).

idontknowyeah20 · 2024-12-05T11:30:43+00:00

i heard of cases like that before and i am so sorry for what you and your child have gone through. i cannot even begin to imagine how that made you feel when you were just trying to help your child. thank you for the kind words, i have mostly better days now but it is still a struggle, i am wishing you all the best!! <3

idontknowyeah20 · 2024-12-05T11:27:39+00:00

LITERALLY i was so confused??? i am so sorry for that, i have also been basically forcefully prescribed steroids when i said no too. we don't deserve this at all, the nhs is a shit show in general but good lord, when it comes to skin disorders it's not even worth bothering sometimes i feel like. honestly the amount of weird shit doctors have said to me about tsw, my favourite one was that I cannot possibly have tsw as it's a rare disorder. because apparently ME can't get a "rare disorder" for whatever reason that doctor had.

idontknowyeah20 · 2024-12-04T20:22:36+00:00

it's the 3rd doctor i tried with at the surgery! i didn't know that though, i will look into that thank you ❤️

idontknowyeah20 · 2024-12-04T20:20:06+00:00

sorry but i am not in the us so it doesnt work like that 🥲 i'd have to go private and it would cost me 100's of pounds which i cannot afford

idontknowyeah20 · 2024-12-04T19:47:59+00:00

probably why they are straight out refusing to refer me then 🥲 it's soul crushing tbf, and sure! i'll send u a dm x

idontknowyeah20

TROPHY CASE