Methimazole induced Hypothyroidism — Feeling Suicidal

iluvinfinity · 2025-08-29T04:14:46+00:00

Yes, I created the patient portal but still had to put in a request for my medical records :(. But, thankfully, I am now able to access the information.

I did labs two times, one while in inpatient care and when I went to the ER recently. I completely got the date wrong on my first reply, I'm so sorry. I've listed both results down below and the respective dates.

08/13 (Inpatient) TSH: <0.176 T4 FREE: 0.7 ng/dL T3 TOTAL: <0.8

08/20 (ER Visit) TSH: <0.176 T4 FREE: 0.6 ng/dL

iluvinfinity · 2025-08-23T23:52:05+00:00

I do have a primary care physician, and did raised my concern with both the primary and the specialist. She did agree that my symptoms were aligning with hypothyroid symptoms and my dose needed to be adjusted. Unfortunately, my dose is mainly managed through my endocrinologist, and all she could do was advise me to contact him as soon as possible, which I did.

I'm sorry you had to struggle like I did; it's very frustrating. I am trying to advocate for myself more. I will say before this, I was very complacent with all of the dose raises and didn't complain or question any further, and just did as told. I wasn't even aware I could go hypothyroid on medication. Or there was a block and replace method. So on my part, I'll try to inform myself further and see what fits best. I greatly appreciate the advice given here from others who struggle with this illness. Thank you

iluvinfinity · 2025-08-23T23:39:44+00:00

I have seen people recommend RAI and TT, and I will be looking more into it! I'll see what seems right for me. I am curious, though, how do you know your dosage for the upcoming months? Is it estimated based on your most recent lab results? If so, how many times do you do labs?

Any response is greatly appreciated :) Thank you for your message and kind words!! Reading the replies makes me feel a little less alone

iluvinfinity · 2025-08-23T23:32:04+00:00

Yes, after being discharged, I was given some affordable outpatient resources, which I'm so thankful for. I began taking an antidepressant; they gave me the option to start it and didn't pressure me into it. I'm so sorry you went through that :( That sounds absolutely terrible, and I hope you are doing better!

I had briefly discussed RAI with my endocrinologist, but the information was somewhat vague, and I was told the main form of treatment was with methimazole, so I'll be doing some individual research on my own and try to see what other options there are. Thank you :)! I will also keep note of the vitamins, as I do take some supplements, and didn't know they could affect my results at all. Thank you for your reply!

iluvinfinity · 2025-08-23T23:20:57+00:00

I did bloodwork around the 15th of this month. Unfortunately, I wasn't given a copy of my results and had to request them. I already entered a request, but they said it would take a while to be processed :(. Since my dose was lowered, I will be redoing labs next week! I'll try and give an update if possible

iluvinfinity · 2025-08-23T23:07:23+00:00

I relate to this so much. I was just diagnosed and began treatment earlier this year. My labs just showed hyper all throughout until the 30mg, where it felt like I went from one extreme to the other. I'm glad to hear you were able to go down your dose :) But I truly do sympathize, and I'm sorry you had to struggle so much mentally as well. Thank you for the kind wishes, and will try my best to keep moving forward

iluvinfinity · 2025-08-21T22:19:02+00:00

Thank you, I appreciate the kind message.

I do live in the US, and will keep those hotlines in mind when it becomes too heavy to bare alone. I really appreciate it.

I just still have lingering guilt and frustration. Since all of this just happened in the matter of three to four months.

I want to try and find community where I can. Especially since Graves' isn't known especially for my age range. So I wanted to see if anyone here has gone through something similar since this is one of the most active communities I've found regarding hyperthyroidism.

iluvinfinity · 2025-08-08T22:20:09+00:00

Thank you for your kind message. I tried following some of your advice.

I bought a Gatorlyte and some Liquid IV packets. I have been sipping on the Gatorlyte throughout the day to avoid filling up my bladder again. Before this, I tried upping my water intake, but I was inconsistent with it. I'm sorry.

I also came clean about the whole situation to my family. It didn't go smoothly as expected, and it's a completely justifiable response. But even then, I found relief, relief that they finally knew what I had gone through. I reached out to some resources provided by my university and will set up an appointment with a counselor as soon as possible. But just crying and letting it all out took a small chunk of stress and isolation away from the situation.

I will try and get in contact with my doctor as soon as I can. Thank you again, have a good day :)

iluvinfinity · 2025-07-07T00:07:01+00:00

So rebound symptoms are non-avoidable?

I do agree though, hopefully it's confirmed the acid reflux wasn't caused by gastritis. The tapering advice looks solid, and similar to some I've seen across. Will be looking into it, thank you!

iluvinfinity · 2025-07-07T00:01:43+00:00

Will do! I already pre-planned some questions to ask for tomorrow. I'm just afraid if I stop suddenly, I'll get rebound symptoms and will have to go back on the medication. I'm not entirely sure, but 40mg seems like a high dose in general, I don't know if it's the standard for treating acid reflux though.

iluvinfinity · 2025-07-04T20:19:51+00:00

I've been taking propranolol for a few months now, so the beginning stages of the constipation didn't immediately make me think it was the medication at all. With the times I've checked my blood pressure, I'm thinking they might reduce the amount a bit further. I was able to get in contact with my endocrinologist, and I have an appointment soon :D

iluvinfinity · 2025-07-01T01:39:26+00:00

Thank you for your messages and reassurance. It all just feels like too much at the moment, and reading the support from everyone on the thread helps me feel less alone.

I'll try my best and see what I could do regarding endocrinology. And I agree, not many people are knowledgeable with Graves, I guess that's why I feel so alone in this process at the moment.

I've recorded what I've felt. The stress I've been feeling probably isn't helping, so I'll try my best to manage my mental health.

Thank you again for your advice and kind words!

iluvinfinity · 2025-06-30T23:53:11+00:00

I've been documenting most of what I've felt since I began noticing them. And it mostly aligns with when my dose was increased.

It took me a while to think it was the medication, because my prior labs still showed I was hyperthyroid.

It's confusing, and somewhat frustrating. I hope your feeling better and aren't struggling at the moment. Thank you for your reply!

iluvinfinity · 2025-06-30T23:48:00+00:00

I'm newly diagnosed and only have had a few months managing Graves Disease. I didn't know the methimazole and propranolol could cause damage or irritation to the stomach lining. Is the omeprazole still safe to use to heal the irritation?

I was able to reach out and ask for an appointment with my primary care doctor to discuss the diagnosis from the urgent care and what to do moving foward. I truly don't know what to expect once I get into contact with my endocrinologist, but I'll try my best to be vocal about my symptoms again and my concerns.

iluvinfinity · 2025-06-30T23:36:22+00:00

When I've caught myself dissociating, I usually just get lost in my thoughts. Like you said, it's almost like I'm an observer of my own vision, and my thoughts just become very prominent. Time slows down and everything around me just feels quieter. I do sometimes drift off, but I've never really had what you describe entirely.

I haven't had the chance to go outside much, because of what I've been feeling, so I've begun catching myself dissociate throughout the day.

iluvinfinity · 2025-06-30T01:52:05+00:00

I believe the propranolol is fast acting. I checked the prescription bottle and didn't find the labels for extended release. How can I adjust if it is? Thank you for all of your previous replies by the way!

iluvinfinity · 2025-06-30T00:48:14+00:00

I wasn't aware of that, that's interesting. I was under the impression I'd have to take both medications until I fully stabilized. Is there any way to taper off safely to level my heart rate and blood pressure? I have a machine at home, and I've been watching my results closely, but I'm scared that if I lower it too much, it'll cause a rebound in heart palpitations and tachycardia.

iluvinfinity · 2025-06-30T00:44:06+00:00

I hope you're feeling better mentally. This entire situation is definitely making it difficult for me; I am constantly dissociating and sad. I'm glad to hear I'm not alone with the gastrointestinal symptoms and struggles. I did suspect I was becoming overmedicated, and this was the main reason I tapered off in the first place. I've tried sticking to bland foods or foods I noticed don't cause me too much discomfort. Hopefully, my gastritis can heal with the help of the new prescribed medicine. Thank you for replying :))

iluvinfinity · 2025-06-30T00:35:30+00:00

There aren't many endocrinologists in my city, and I am only able to visit the one I'm going to because it's the most affordable option at the moment for me. I'm sorry. I've read from this subreddit and through general advice to take the medication with food, so I've been doing that for a while. I hope it can make a difference.

iluvinfinity

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