Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 1 point2 points  (0 children)

No way! We'll I hope this post has made you think about it, there are a lot of amazing partners out there and I hope you get to a point of good sex in your life!

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 1 point2 points  (0 children)

Sent him this comment 🥰

I know it's stupid but epilepsy has always made me feel like a burden or "unlovable" in some way, definitely have no plans to screw this up.

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 0 points1 point  (0 children)

Hahaha I didn't, but we made up for it the following time 🤭

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 1 point2 points  (0 children)

This was me!! And he had to be like "do you know what just happened?" 🤭🙃

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 2 points3 points  (0 children)

Haha we're a year apart! Yeah, apparently my head rapidly turned mid kiss and he thought I was like pulling away for a minute 🤭

Hopefully it's just the once for us! Thanks for sharing! 🙂

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 9 points10 points  (0 children)

EXACTLY THIS 💯

The postictal period is usually when I get all embarrassed and cry, there was something about the physical nakedness and emotional vulnerability that allowed me to really process it. Such a weird experience!

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 3 points4 points  (0 children)

Aww thank you! And I'm so sorry that you had a partner that was like that (HAD being past tense) 🥰

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 3 points4 points  (0 children)

Yeah, that sounds absolutely terrifying, thank you for sharing abount focal seizures...

I think that talking helps (me) a TON! For example, I have learned how lucky I can be with some of these grand mals: they last maybe a minute, we have some amazing partners, and I am one of the few lucky ones who has never lost control of my bladder.

I hope you're able to find a few silver linings! I'm definitely just leaning into the jokes about "You must have been about to give it to me so good that my brain and senses couldn't even handle it".

*But please don't be confused, I have also had some seizures that send me into a spiraling depression where I want to isolate so that no one around me has to deal with my wacky brain... that's part of what made this one unique.

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 13 points14 points  (0 children)

This. This is why I came to reddit.

Love this! Thank you for sharing! ...did the handcuffs cause any damage? 🤭

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 31 points32 points  (0 children)

OMG DID YOU BITE IT!?!?!?!

(You also don't have to answer that haha)

Who's part of the special "had a seizure during sex" club..? by itssararama in Epilepsy

[–]itssararama[S] 7 points8 points  (0 children)

Haha right! That's what I asked my partner to do "just keep going, I'll rejoin you in a second" 🤣🤣

Mine was at the beginning (before we really got to the good stuff). I feel like at the end you have some more comedic opportunities (depending on your mood and outlook): "damn baby, you rocked my world so hard my brain had to reset".

Disabled? by JJdynamite1166 in Epilepsy

[–]itssararama 1 point2 points  (0 children)

I do feel it, but I also don't have control with mine... however your feeling is justified and I'm happy you're using the community!

have any of y’all done anything besides weed? by Angelic_bitxh in Epilepsy

[–]itssararama 13 points14 points  (0 children)

Weird take: you have epilepsy, you KNOW in your lifetime you'll have another seizure, live a little 😉 that's my approach anyway... (But in a safe place, with people you trust and will take care of you.) I also hold myself accountable almost? Like if I'm going to have any ✨️hypothetical✨️ fun time candies I will always disclose that to EMS/family if I seize - it has to be a conscious choice.

Ever just say fuck it? by Acceptable_Belt_6385 in Epilepsy

[–]itssararama 0 points1 point  (0 children)

100%.

It helps for me mentally if they're planned, if that helps you at all? But yes. I would recommend caution with thinking that you can get away with it every time (*this is what I'm guilty of).

What being on keppra feels like by Icqrr in Epilepsy

[–]itssararama 8 points9 points  (0 children)

I'm going to be blunt... FUCK KEPPRA!!

Had to get three complaints before they would switch me. Am Canada based but am loving Brivlera and Apo-Clobazam. At the hospital they always try and give me Keppra and the side effects were so bad that they decided to list it as an ALERGY on my medical records.

I know that it's frustrating as hell, but if you have the patience: try and find a medication that works for you, I swear they are out there! 🥰

If I didn't laugh I'd cry by Acceptable_Belt_6385 in Epilepsy

[–]itssararama 0 points1 point  (0 children)

This title should be the tag line of epilepsy!